September 2014

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 4130
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

September 2014

Postby Rustsmith » Mon Sep 01, 2014 8:48 pm

September 1

Welcome to
JoanCalver, who wants to learn how to manage RLS and hear about other people's experiences.
JodyR, who suspects she has rls, but has not been formally diagnosed and wants to learn more about this disease.

Please feel free to search the existing discussions and join in whenever you like. Also feel free to post a question about anything that doesn't seem to be clear.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4130
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2014

Postby Rustsmith » Tue Sep 02, 2014 6:05 pm

September 2

Welcome
Tove, who would like to know more about this disease and find new ways to treat it.
nigelofyork, who has had RLS like symptoms for some years and is now looking for some help

Feel free to join in any of the discussions or post any questions or comments.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 15765
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: September 2014

Postby ViewsAskew » Tue Sep 02, 2014 10:05 pm

September 2

Welcome to tarris1, whose spouse has had WED for 30 years, but a recent medication change has eliminated all symptoms and no WED medication is needed any longer.

Please share what happened, tarris1.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7593
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: September 2014

Postby Polar Bear » Wed Sep 03, 2014 8:25 pm

3 September 2014

Welcome today to:
kmd - who has been diagnosed with WED and would like to hear what others do to treat this disease.

There is a lot of information to be gleaned from the threads, please feel free to ask questions, we are here to try and help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 4130
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2014

Postby Rustsmith » Wed Sep 03, 2014 10:07 pm

September 3

Welcome to
Happy, Mostly - who has been having a lot more trouble with my legs lately and wants help to narrow which variable might be causing it.

There is a lot of information that you may find helpful in the existing threads, or feel free to post a question if you cannot find the help you seek.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7593
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: September 2014

Postby Polar Bear » Thu Sep 04, 2014 1:20 am

4 September 2014 (UK time)

Welcome today to:
Bonnie Campbell - who wants to learn more from WED and research and make comment.
Gisela in California -who wants to join to listen.
momrobare - WED/RLS goes way back, family members have it also, would like to talk with othrs about what works and what triggers WD/RLS.

Welcome all of you, read all you can and ask questions, We are all sufferers and all our members were new at one time, just like yourselves.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 4130
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2014

Postby Rustsmith » Thu Sep 04, 2014 11:03 pm

September 4

Welcome to

lindascott, who wants to be able to talk with people who know what she is going through.
Murl, who wants to talk to others who understand will offer comfort, and perhaps help.

Talk away lindascott and Murl, that is why we are here. Feel free to jump into any existing discussions or start a new one.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4130
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2014

Postby Rustsmith » Fri Sep 05, 2014 9:39 am

September 5

Welcome to
radioray, who was diagnosed with RLS 20 years ago and wants to share his experiences and learn from others who have coped with RLS for years

Please feel free to search the existing threads, jump into any of the existing discussions or post new questions/comments.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 4130
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2014

Postby Rustsmith » Sat Sep 06, 2014 8:33 am

September 6

Welcome to

gbonno2, who has RLS and whose treatment isn't working
Ms Connie, who is now in augmentation and is trying to work with her doctor.

Take a look through the discussion threads to see if you can find information that helps or feel free to post a new question.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7593
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: September 2014

Postby Polar Bear » Sun Sep 07, 2014 1:50 am

7 September 2014

Welcome to:
Quilter who is interested in medications and effects, and other methods of help.

Please browse the forums, there is a lot of available information. When you are ready just join a thread or start your own,
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

ViewsAskew
Moderator
Posts: 15765
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: September 2014

Postby ViewsAskew » Mon Sep 08, 2014 8:22 pm

Welcome, September 8th, to

cbisrn, who would like to learn more about how to control RLS/WED and to share with others about medications, research and experiences.

and

Phyl513 - who wants to learn more about WED.

Many posts here may help; also, jump in at any time and post about your experiences, your questions, etc. We're a pretty friendly community.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Chipmunk
Moderator
Posts: 655
Joined: Thu Mar 03, 2011 10:44 pm
Location: Madison, WI

Re: September 2014

Postby Chipmunk » Tue Sep 09, 2014 5:53 pm

September 9th

Welcome to WarriorMonk, who has had RLS/WED for a number of years but just had knee replacement and the RLS/WED has gone into overdrive.

We're sorry to hear that. :( Unfortunately, it is not uncommon for RLS/WED to worsen after an operation. Have a look around and see if we can be of any help. If you have questions, feel free to start a post. :)

Gjoevan - who has suffered for 30 years and tried many things with varying degrees of success.

Many of us have been sufferers of long standing, we look forward to hearing how you have coped so far.
Tracy

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the WED/RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 15765
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: September 2014

Postby ViewsAskew » Wed Sep 10, 2014 7:29 am

September 10th, welcome to:

Yankiwi - who's had WED a long time and had recently started ropinerole.

Glad to hear it's working. There is a lot of information on the board about maximum doses (lower than they used to be) and the need to have your serum ferritin at or above 100 when taking ropinerole or pramipexole. We're happy to answer any questions you have - or just jump in and start chatting with us however you prefer.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7593
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Re: September 2014

Postby Polar Bear » Thu Sep 11, 2014 6:21 pm

11 September 2014

today we welcome:

EmmmaJ - who has severe WED/RLS and is desperate to find relief without taking the high dose medication currently prescribed.

Check out Forum - Non Prescription Medications, and Forum - Prescription Medications, there is likely to be relevant information.
Please feel free to ask questions, start a thread when you are ready and we will do what we can to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 4130
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Re: September 2014

Postby Rustsmith » Thu Sep 11, 2014 7:22 pm

September 11

Welcome to:

fdurr, who is looking for help with RLS for my mother.
Evelyne, who wants to learn from other people's experiences with RLS

If you cannot find the information that you are looking for by looking through the threads here, please feel free to post a question. We are here to help and have lots of information to share.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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