Dr. Silber and the Mayo Clinic

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pblackwell
Posts: 7
Joined: Sat Sep 13, 2014 11:55 pm

Dr. Silber and the Mayo Clinic

Postby pblackwell » Sat Sep 20, 2014 5:02 am

I am a very new person on here but not new to RLS (17 years). Finally had enough and told my Neurologists I was suffering from augmentation even though he said I wasn't. I wanted off of the Requip 12 mg XL a day and I wanted to see someone that had more than an occasional RLS patient. I started this on Monday of this week and Wednesday I reduced my Requip to 8 mg xl daily and added 75 mg Lyrica. I must say that Wednesday and Thursday nights were HELL! Maybe 2 hours sleep each night and no quality. It is Friday night and looks like it will be the same. On Monday I also did an online request to the WED speciality clinic at Mayo and Wednesday morning received a phone call from a very nice lady at the Mayo Clinic telling me they had received my request for an appointment and walked me through the steps to make it happen. My physician was to call a special number to refer me. I sent my physician all the info Wednesday and around noon Thursday my physician sent me a message he had called and sent my records to the Mayo Clinic and they would review my info and would then contact me if they felt it was appropriate for me to see a physician there. Less than 2 hours after receiving the message from my physician that he had gone through the process I received another call from the MAyo Sleep Center wanting to schedule my appointment. I was extremely happy to get that call and I now have an appointment the first week of December wit see Dr. Michael Silber. If anyone has any experience with the Mayo RLS Clinic and/or with Dr. Silber pleas share. During these nights from HELL and coming off of Requip I focus on my appointment and hope that something will be found to make this better.

ViewsAskew
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Location: Los Angeles

Re: Dr. Silber and the Mayo Clinic

Postby ViewsAskew » Sat Sep 20, 2014 5:57 am

I hope someone here has seen him. I recall a few people over the years saying they have seem him, but I don't know if they still post here.

But, I honestly am not sure you should be reducing the ropinerole on your own. At your higher dose, you definitely need to go slow. As important, this is often very difficult and most people cannot do it without additional drugs to help.
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

pblackwell
Posts: 7
Joined: Sat Sep 13, 2014 11:55 pm

Re: Dr. Silber and the Mayo Clinic

Postby pblackwell » Sun Sep 21, 2014 6:17 am

I actually am not reducing my Requip on my own. My Neurologist is the one who prescribed the 8mg for me to switch to. I really thought that going from 12 to 8 was too drastic of a change. It hasn't been fun.

ViewsAskew
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Location: Los Angeles

Re: Dr. Silber and the Mayo Clinic

Postby ViewsAskew » Sun Sep 21, 2014 7:45 am

I can imagine that it has not been fun at all! I am so sorry you're going through this.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Chipmunk
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Location: Madison, WI

Re: Dr. Silber and the Mayo Clinic

Postby Chipmunk » Wed Oct 08, 2014 9:49 pm

That name sounded familiar so I did a search on the board for "Silber" and came up with several posts recommending him! Here is a video of him discussing treatment options for RLS/WED:
https://www.youtube.com/watch?v=HRuX3cWUOnE

It sounds like you will be in good hands!
Tracy

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the WED/RLS Foundation, and are not medical advice.

Yankiwi
Posts: 390
Joined: Wed Sep 10, 2014 7:20 am
Location: West Coast, South Island, New Zealand

Re: Dr. Silber and the Mayo Clinic

Postby Yankiwi » Fri Oct 10, 2014 3:35 am

I just watched the video, it's excellent and I recommend it.

EeFall
Posts: 1494
Joined: Thu Jan 03, 2013 4:11 am
Location: USA

Re: Dr. Silber and the Mayo Clinic

Postby EeFall » Sat Oct 11, 2014 1:26 am

I have no experience with the Mayo Clinic but my sleep doctor where I live recommended two hospitals when my RLS became out of control and it was Johns Hopkins or Mayo Clinic. I ended up going to Johns Hopkins but he highly recommended either. The two best in the country according my sleep doctor here and he is a great doctor himself. I can't remember the name of the doctor at Mayo but no doubt it was him. I think you have picked an excellent doctor.

badnights
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Re: Dr. Silber and the Mayo Clinic

Postby badnights » Tue Oct 28, 2014 3:33 am

Silber co-authored the algorithm on WED/RLS treatment. He's got a good reputation, though I don't know of anyone who has personally seen him. He certainly is one of the big names in WED/RLS research.
Beth - Wishing you a restful sleep tonight
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I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.


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