IRLSSG Augmentation Paper - August 2015

Use this forum to discuss any issues associated with Augmentation
Post Reply
Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

IRLSSG Augmentation Paper - August 2015

Post by Rustsmith »

The IRLSSG published a white paper on the prevention and treatment of Augmentation last month.

http://irlssg.org/wp-content/uploads/2015/05/Summary-of-recommendations-RLS-Augmentation-13Aug2015.pdf

The paper discusses levels of augmentation, the selection of various treatment schemes depending upon severity of RLS symptoms to prevent augmentation and recommends various adjustments to treatments following augmentation depending upon the current treatment and the severity of the augmentation.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 6259
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: IRLSSG Augmentation Paper - August 2015

Post by badnights »

They suggest use of opioids only in "very severe" augmentation which they describe as "almost 24 hr". I'd like to see one of them tolerate even 12 hr daily of augmentation without an opioid. Actually, I'd like all of them to do it - and then be offered a chance to re-write, with their new-found knowledge.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

ViewsAskew
Moderator
Posts: 16570
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: IRLSSG Augmentation Paper - August 2015

Post by ViewsAskew »

badnights wrote:They suggest use of opioids only in "very severe" augmentation which they describe as "almost 24 hr". I'd like to see one of them tolerate even 12 hr daily of augmentation without an opioid. Actually, I'd like all of them to do it - and then be offered a chance to re-write, with their new-found knowledge.


Agreed!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8797
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: IRLSSG Augmentation Paper - August 2015

Post by Polar Bear »

Also agreed !!
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 6476
Joined: Sat Sep 28, 2013 9:31 pm
Location: Colorado Springs, Colorado

Re: IRLSSG Augmentation Paper - August 2015

Post by Rustsmith »

I wouldn't wish this on anyone. However, there should be a requirement that a physician who treats RLS patients should occasionally have to spend a night following a patient with severe RLS to at least observe what we go through. No fair slipping away for any reason other than restroom breaks. And the patient has the right to wake the doctor at any time if they try to take a nap at 2A. I would be more than happy to occasionally provide one of them with that sort of harrasment. :D
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 8797
Joined: Tue Dec 26, 2006 4:34 pm
Location: United Kingdom

Re: IRLSSG Augmentation Paper - August 2015

Post by Polar Bear »

What an excellent idea.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

badnights
Moderator
Posts: 6259
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: IRLSSG Augmentation Paper - August 2015

Post by badnights »

I'll volunteer!
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

degan
Posts: 5
Joined: Wed Feb 03, 2016 3:53 am

Re: IRLSSG Augmentation Paper - August 2015

Post by degan »

Great that this was published - wonder if my Neurologist received a copy?

The paper refers to a 'maximum recommended dosage' but does not provide the actual amounts. Is the maximum dose for Ropinirole still 4mg?

ViewsAskew
Moderator
Posts: 16570
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: IRLSSG Augmentation Paper - August 2015

Post by ViewsAskew »

degan wrote:Great that this was published - wonder if my Neurologist received a copy?

The paper refers to a 'maximum recommended dosage' but does not provide the actual amounts. Is the maximum dose for Ropinirole still 4mg?


It is and it isn't. The FDA didn't change their guidelines, but several RLS specialists have changed their minds. I have taken all my meds, however, and I cannot remember what it is! 1 mg seems right...but don't count on it (sorry!).
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 6259
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: IRLSSG Augmentation Paper - August 2015

Post by badnights »

The link in my signature will take you to a page that lists a number of downloads. The Buchfuhrer 2012 download is one of the papers by a specialist that makes the lower recommendations for RLS/WED patients (it used to be that we were assumed to be ok with the doses given to Parkinsons patients). p780. ropinirole 1 mg, pramipexole 0.25 mg.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Post Reply