June 2017 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to unassuming

Postby Rustsmith » Thu Jun 15, 2017 1:07 pm

Thursday, June 15

Welcome to

unassuming, who has had RLS for many years. It is not debilitating, but was a nightly occurrence years ago. unassuming still has attacks although more random now. unassuming hasn't researched the condition in years and would like to know of any advances in its treatment.

Take a look around to get an idea of what has been done. There is a discussion at the top of General Topics that might be helpful. And then please post a note with any further questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Robyn

Postby Rustsmith » Sat Jun 17, 2017 12:40 am

Friday, June 16

Welcome to

Robyn, who has had RLS 30+ years.

Please take a look around and then post a note with any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to hjwiest

Postby Rustsmith » Sat Jun 17, 2017 11:55 am

Saturday, June 17

Welcome to

hjweist, who has lived with the miséry and unpredictability of RLS for 40 years.

Please take a look around and then post a note telling us about what you are currently doing to manage your RLS and asking any questions that remain.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Gary CRT

Postby Rustsmith » Sat Jun 17, 2017 10:49 pm

Saturday, June 17

Welcome to

Gary CRT, who is on the Steering Committee of a support group. He has very minimal symptoms and requires no medical treatment

Welcome to the discussion board, the virtual RLS support group. Take a look around and let us know what we can do to help.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Lucy J

Postby Rustsmith » Sun Jun 18, 2017 12:10 am

Saturday, June 17

Welcome to

Lucy J, whose RLS had made life a living hell. Scheduling activities is near impossible as she never knows how she will feel.

After you have had a chance to look around, please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jdodsont

Postby Rustsmith » Mon Jun 19, 2017 2:03 am

Sunday, June 18

Welcome to

Jdodsont, who can't rest read books, watch movies or concentrate due to the pain. Jdodsont has been taking mirapex for 25 years and tried to cut down only to be wakened by a vibration in Jdodsont's feet like an electrical malfunction and sometimes it's in my arms too.

Please take a look through the section on Augmentation since after 25 yrs of Mirapex, your symptoms sound pretty classic. And then please post a note telling us about how much you are taking and something about your relationship with your doctor. And feel free to ask any questions that you have. Most of us have been exactly where you are - and there is hope, no cure, but things can get better.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to My Lad

Postby Rustsmith » Tue Jun 20, 2017 2:03 am

Monday, June 19

Welcome to

My Lad, who has an extremely severe case which began in the late 40s and it is in the whole body. My Lad is now 71. My Lad's mother and son also have it.

You are in good company here as that description describes many of us. Please post a note telling us what you are currently doing to manage your RLS and feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4370
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to dliang

Postby badnights » Tue Jun 20, 2017 7:19 am

Dliang, who joined us today, has been having trouble concentrating during the day because of the effects of RLS/WED on sleep.

dliang, you're not alone with that problem. The biggest issue we WED/RLS patients face is getting enough sleep. If you would like, you can start a new Topic in one of the Forums and tell us a bit more about yourself. Are you taking any medications? How long have you had RLS/WED? etc. Or you can make a comment (post a reply) in any Topic. We look forward to chatting with you.
Beth - Wishing you all restful sleep tonight
WED/RLS AUGMENTATION:
viewtopic.php?f=5&t=6532&p=61601#p61601
Discussion Board Moderator's posts don't reflect the RLS Foundation's opinion & are not medical advice

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Tommybeams

Postby Rustsmith » Tue Jun 20, 2017 5:13 pm

Tuesday, June 20

Welcome to

Tommybeams, for whom RLS has been a constant nighttime companion for several decades. He has tried numerous prescription and non-prescription treatments with mostly temporary or sporadic success.

After you have a chance to look around, please post a note telling us about what treatments you have tried, what you are currently doing and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Soleya_12

Postby Rustsmith » Tue Jun 20, 2017 6:35 pm

Tuesday, June 20

Welcome to

Soleya_12, who has RLS and is therefore interested in how to deal with it.

Please take a look around, especially at the discussion thread "A good place to start" at the top of this forum. And then please post a note telling us a bit about yourself, your symptoms and what you are doing to manage them. And please feel free to ask any questions that you have, that is why we are here.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Bensenten

Postby Rustsmith » Tue Jun 20, 2017 10:48 pm

Tuesday, June 20

Welcome to

Bensenten, who is looking for solutions that have worked for others.

Take a look around to get an idea of what others are doing and then please post a note telling us a bit of what you are currently doing to manage your own RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to suzanochka

Postby Rustsmith » Tue Jun 20, 2017 11:00 pm

Tuesday, June 20

Welcome to

suzanochka, who is interested in providing information on her experience that will help RLS research.

Please take a look around and then post a note telling us a bit about yourself and the experience that you think would help RLS research.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 6702
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to EwashH and Walley

Postby Polar Bear » Wed Jun 21, 2017 8:58 am

Wednesday 21 June

Welcme today to:

EwashH - who has been noticing more intense and frequent symptoms of Restless Legs Syndrome and I would appreciate to hear other people's stories, suggestions, and advice.

Walley - who is in top physical condition. No physical problems except for crazy making RLS. Takes half an Ambien to aid sleep at night. No other meds and does not need sleeping aid, but for the RLS. Any info would be greatly appreciated.

You will both find lots of advice in the Just Joined Forum. When you are ready feel free to post about your symptoms and treatment, we are here to try and help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to PaulaB

Postby Rustsmith » Thu Jun 22, 2017 3:08 pm

Thursday, June 22

Welcome to

PaulaB, who suffers from RLS and Wwuld like all the info she can get!

Start with the thread "A good place to start" at the top of the Just Joined forum and then take a look through items such as "Published Research" in the General WED forum. And please post a note telling us what you are currently doing to manage your RLS and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 2457
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to canton

Postby Rustsmith » Sat Jun 24, 2017 2:22 am

Friday, June 23

Welcome to

canton, who has RLS and PLMD and both are getting more frequent lately in spite of meds. canton would like to see how others handle this nasty condition and would like to hear if there are ways to moderate the episodes. How do others travel for instance with these conditions?

Take a look around using the search function to try to find the info that you seek. And then please post a note telling us how you are currently managing your RLS and asking any questions that remain.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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