June 2017 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Sclord2

Postby Rustsmith » Sat Jun 24, 2017 5:35 pm

Saturday, June 23

Welcome to

Sclord2, who has had bad RLS for years.

Please take a look around and then post a note telling us what you are doing to manage your RLS and asking any remaining questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to cpancotti

Postby Rustsmith » Sun Jun 25, 2017 12:40 pm

Sunday, June 25

Welcome to

cpancotti, who has moderate-severe RLS and wants to see what others are doing for theirs.

Take a look around to get an idea of the range of treatments we use, and then please post a note telling us what you do and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Marylamere

Postby Rustsmith » Sun Jun 25, 2017 11:16 pm

Sunday, June 25

Welcome to

Marylamere, who can't sleep and is getting depressed. Her husband is also irritated.

Please take a look around and then post a note telling us what you are doing to manage your RLS and asking any questions that you have. RLS is not only very difficult on those of us who have it, but is also a hardship on our families when the do not completely understand what we are experiencing.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Mtalien

Postby Rustsmith » Sun Jun 25, 2017 11:19 pm

Sunday, June 25

Welcome to

Mtalien, who has suffered with RLS for the past 40 years and is having difficulty doing at work due to lack of sleep.

Sleep deprivation is a major problem for us. Please post a note telling us what you are doing for your RLS and asking any questions that you have. Many of us have been in exactly your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to lsjoseph

Postby Rustsmith » Tue Jun 27, 2017 11:55 am

Tuesday, June 27

Welcome to

lsjospeh, whose RLS is limited in what can be done such as traveling or sitting in a movie theater. lsjoseph is averaging 3 to 4 hrs sleep per night and was just diagnosed with heart issues due to sleep deprivation. To make matters worse, lsjospeh't neurologist of 17 years just retired.

Please post a note telling us about your RLS, what you care currently doing to manage it and then asking any questions that you have. If we know a bit more, we should be able to make some specific suggestions for you to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7256
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to reliefis#1

Postby Polar Bear » Wed Jun 28, 2017 6:04 pm

Wednesday 28 June 2017

Welcome today to

reliefis#1 - who has had RLS for over 15 years. Has been on clonazepam 1 mg. which stopped working. RLS was stronger - suffering from memory loss. Decided to go off med and withdrawal symtoms have been terrible. relief#1 is now looking for more info on RLS and how to manage RLS without taking these drugs. Now on Requip and suffering from its side effects.

We are glad that you have found us, please look at 'a good place to start - managing RLS' in this Just Joined Forum. Lots of good information there. When you feel ready please post and tell us a little about yourself and how you are coping with your symptoms, we are all sufferers and want to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to 1962zebra

Postby Rustsmith » Wed Jun 28, 2017 7:37 pm

Wednesday, June 28

Welcome to

1962zebra, who has severe RLS, which continues to rob sleep, deplete energy and impact in other ways. 1962zebra continues to try different medications, and is now trying to switch off pramipexole, which has led to augmentation and probably issues such as compulsive behavour (shopping).

Please take a look through our forum on augmentation and then post a note telling us about your RLS and what you hope to try once of pramipexole. Many of us have been through what you are experiencing, so we should be able to offer some suggestions that will make things better.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to jb1487

Postby Rustsmith » Wed Jun 28, 2017 10:25 pm

Wednesday, June 28

Welcome to

jb1487, who just started having the symptoms within the last few months and wants to try to heal naturally before going to a doctor.

Please take a look through out forum on "Non-prescription meds, Supplements and Diet" to get an idea of what works and more important, what does not work. And please post a note telling us a bit about your symptoms. In the event that you do visit a doctor, we can also tell you want to ask since many physicians to not know a lot about how to diagnose or treat RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

badnights
Moderator
Posts: 4955
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Welcome to Amir

Postby badnights » Thu Jun 29, 2017 9:02 am

Welcome to Amir, our newest member, who has WED/RLS and is looking for information.

Amir, there is a lot of info on this board. In this forum, there is a sticky topic called A Good Place To Start, which has a lot of basic information and pointers to other information. You can also start a new topic to tell the others a bit about yourself and your RLS/WED, and ask questions. I'm sorry you have this disease, but I am glad you joined us - this place is a community of people who know what it's like, in a world where it seems not many do.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to JayGee

Postby Rustsmith » Thu Jun 29, 2017 6:09 pm

Thursday, June 29

Welcome to

JayGee, who says that this is the third time she has had a serious bout of RLS that has completely incapacitated him. It begins in the morning (not augmentation) and continues until he falls asleep. She needs to continually move and stretch, but standing and walking is painful. Her PCP and neurologist have prescribed several medications that cause bad side effects at therapeutic doses.

After you have a chance to look around, please post a note telling us more about your RLS and the meds that you have tried. Your case sounds a bit unusual, but certainly not out of question since some of your complaints mirror some of my own.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Pattycake 4618

Postby Rustsmith » Fri Jun 30, 2017 2:21 am

Thursday, June 29

Welcome to

Pattycake4618, who says that RLS has disrupted her life for 20 years.

Please take a look around and then post a note telling us a bit about your RLS symptoms and what you have been doing to manage it. Also feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Ftoler

Postby Rustsmith » Fri Jun 30, 2017 2:24 am

Thursday, June 29

Welcome to

Ftoler, who has had RLS for her whole life. At times it has bothered her terribly but now the effect is moderate. But she fears what it will be like with age.

Although we never know what the future holds for us, many of us do experience an increase in the severity of our symptoms. Please post a note telling us a bit about where you currently stand and asking any questions that you have about RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3432
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to WideAwake

Postby Rustsmith » Fri Jun 30, 2017 8:51 pm

Friday, June 30

Welcome to

WideAwake, who needs the feedback from others on her journey!

After taking a look around, please post a note telling us about your RLS, what you are doing to manage it and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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