July 2017 - New Members
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- Moderator
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Welcome to tulegoose
9 July 2017
Welcome to:
tulegoose - who has had RLS and insomnia for many years. In the past two months RLS has become chronic (almost every night) and tulegoose is searching for answers and solutionsfor relief. Lucky I get anywhere from two to five hours sleep a night and sometimes no sleep at all.
Most of us feel like this or have felt like this. If you look in this Just Joined Forum at the 'Good Place to Start' you will find a lot of good information. Please ask questions. When you are ready if you start a thread or join a thread, tell us a bit about your symptoms and what you have already tried.
Welcome to:
tulegoose - who has had RLS and insomnia for many years. In the past two months RLS has become chronic (almost every night) and tulegoose is searching for answers and solutionsfor relief. Lucky I get anywhere from two to five hours sleep a night and sometimes no sleep at all.
Most of us feel like this or have felt like this. If you look in this Just Joined Forum at the 'Good Place to Start' you will find a lot of good information. Please ask questions. When you are ready if you start a thread or join a thread, tell us a bit about your symptoms and what you have already tried.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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- Posts: 16599
- Joined: Thu Oct 28, 2004 6:37 am
- Location: Los Angeles
Welcome, Karrierac
Hi, Karrierac. Sounds as if this is a very rough time - 9 months pregnant and with horrible RLS. Please let us know - in a new topic - what you are doing and how it is going. We may have some ideas. Several of us have gone through pregnancy and know how hard it is.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 8849
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
Welcome to mjcjjd
Monday 10 July 2017
Welcome to:
mjcjjd - who has horrible restless leg/arm syndrome. Has been on all the meds read in the forum with no refief and currently recovering from spinal surgery which makes it very hard to move about. mjcjjd feels to be going crazy.
Please do start a thread on the Just Joined Forum, tell us what meds you have tried. We are all sufferers here and want to help.
Welcome to:
mjcjjd - who has horrible restless leg/arm syndrome. Has been on all the meds read in the forum with no refief and currently recovering from spinal surgery which makes it very hard to move about. mjcjjd feels to be going crazy.
Please do start a thread on the Just Joined Forum, tell us what meds you have tried. We are all sufferers here and want to help.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Aurelius
Tuesday, July 11
Welcome to
Aurelius, for whom RLS has been a major detriment to the quality of every aspect of life, personally, socially and professionally. Personally he lost sleep, is unable to complete a meal, drive a car (100% dependent on his wife to drive him) and socially because he routinely turns down invitations for dinner with friends, vacations or anything longer than 30 minutes.
Please take a look around and then post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Welcome to
Aurelius, for whom RLS has been a major detriment to the quality of every aspect of life, personally, socially and professionally. Personally he lost sleep, is unable to complete a meal, drive a car (100% dependent on his wife to drive him) and socially because he routinely turns down invitations for dinner with friends, vacations or anything longer than 30 minutes.
Please take a look around and then post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to MichelleRenee'
Thursday, July 13
Welcome to
MichelleRenee', who has suffered with RLS for a few years and feels like it is becoming much worse the last month or so. She feels she has tried so many different ways to manage her RLS and her normal dosage of meds isn't working . So, she is hoping to get some insight on what dosage others take.
Please post a note telling us a bit about what you are taking and the dose so that we can offer you some suggestions and comments about what some of us take. And feel free to ask any questions that you have.
Welcome to
MichelleRenee', who has suffered with RLS for a few years and feels like it is becoming much worse the last month or so. She feels she has tried so many different ways to manage her RLS and her normal dosage of meds isn't working . So, she is hoping to get some insight on what dosage others take.
Please post a note telling us a bit about what you are taking and the dose so that we can offer you some suggestions and comments about what some of us take. And feel free to ask any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to dixielee
Thursday, July 13
Welcome to
dixielee, who is a 56 year old who has struggled with RLS for many years. She resisted medication and tried over the counter health supplements, but now takes Mirepex and it has helped. But some nights she still has to get up and walk. She has never talked to another person who struggles with this disorder and looks forward to the discussion boards.
Please take a look around and then post a note with any questions or rants that you have. We are always glad to do whatever we can to help and share.
Welcome to
dixielee, who is a 56 year old who has struggled with RLS for many years. She resisted medication and tried over the counter health supplements, but now takes Mirepex and it has helped. But some nights she still has to get up and walk. She has never talked to another person who struggles with this disorder and looks forward to the discussion boards.
Please take a look around and then post a note with any questions or rants that you have. We are always glad to do whatever we can to help and share.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Martann
Thursday, July 13
Welcome to
Martann, who started having restless legs when in her 40's. Her mother also had it so there is a strong genetic component to the problem. She uses Clonazepam at bedtime and that has worked for many years.
Please take a look around and feel free to post a note with any questions that you have or to simply join in on one of the ongoing discussions.
Welcome to
Martann, who started having restless legs when in her 40's. Her mother also had it so there is a strong genetic component to the problem. She uses Clonazepam at bedtime and that has worked for many years.
Please take a look around and feel free to post a note with any questions that you have or to simply join in on one of the ongoing discussions.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to docdollar
Thursday, July 13
Welcome to
docdollar, who has suffered from WED for several years and recently it has affected, not only docdollar's ability to sleep, but also the waking hours. It has made life miserable and painful.
Please take a look around and then post a note telling us what you are doing to manage your WED and asking any questions that you have.
Welcome to
docdollar, who has suffered from WED for several years and recently it has affected, not only docdollar's ability to sleep, but also the waking hours. It has made life miserable and painful.
Please take a look around and then post a note telling us what you are doing to manage your WED and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Timfitzgerald96
Thursday, July 13
Welcome to
Timfitzgerald96, who is a combat veteran with major injuries to the lower spine. As a result he has dealt with RSL for some time. He was on masssive amounts of pills thanks to Army but since being retired is down to two. He is looking for natural relief.
Take a look at our forums on Physical Treatments and Non-prescription medications to get an idea of what can work and just as importantly, what doesn't. And please post a note telling us about the 2 meds you are on and asking any remaining questions that you have. We would love to be able to help.
Welcome to
Timfitzgerald96, who is a combat veteran with major injuries to the lower spine. As a result he has dealt with RSL for some time. He was on masssive amounts of pills thanks to Army but since being retired is down to two. He is looking for natural relief.
Take a look at our forums on Physical Treatments and Non-prescription medications to get an idea of what can work and just as importantly, what doesn't. And please post a note telling us about the 2 meds you are on and asking any remaining questions that you have. We would love to be able to help.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Kathycoexists
Friday, July 14
Welcome to
Kathycoexists, who can't sleep through the night, is very uncomfortable and always tired.
After you have a chance to look around, please post a note telling us what you do to manage your RLS and asking any questions that remain.
Welcome to
Kathycoexists, who can't sleep through the night, is very uncomfortable and always tired.
After you have a chance to look around, please post a note telling us what you do to manage your RLS and asking any questions that remain.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to KG_DFW
Saturday, July 15
Welcome to
KG_DFW, who is the 3rd generation affected. She often kicks violently into the air every 20 seconds if laying down, is on medication and It affects her energy level.
After looking around, please post a note telling us about your treatment and asking any questions tat you have.
Welcome to
KG_DFW, who is the 3rd generation affected. She often kicks violently into the air every 20 seconds if laying down, is on medication and It affects her energy level.
After looking around, please post a note telling us about your treatment and asking any questions tat you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to dlafalce
Sunday, July 16
Welcome to
dlafalce, who has had RLS for the past 10 years and it has recently gotten worse. dlafalce has augmentation and can't seem to get consistent relief. dlafalce is hoping to get some answers from others who have the same issues and perhaps get a recommendation for a Dr in New Jersey.
Please post a note telling us a bit about your current treatment that has lead to your augmentation and also repeat your request for help finding a doctor in New Jersey. In the meantime, please take a look at the list of doctors on the RLS Foundation's website (www.rls.org) to see if there is one who is close to you.
Welcome to
dlafalce, who has had RLS for the past 10 years and it has recently gotten worse. dlafalce has augmentation and can't seem to get consistent relief. dlafalce is hoping to get some answers from others who have the same issues and perhaps get a recommendation for a Dr in New Jersey.
Please post a note telling us a bit about your current treatment that has lead to your augmentation and also repeat your request for help finding a doctor in New Jersey. In the meantime, please take a look at the list of doctors on the RLS Foundation's website (www.rls.org) to see if there is one who is close to you.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Deedle
Monday, July 17
Welcome to
Deedle, who goes to bed every night hoping that medication holds and that Deedle is not awakened with legs and body moving uncontrollably. Deedle has always been athletic and hates having to take medication but also doesn't want to deteriorate because of lack of sleep and rest.
After you have a chance to take a look around, please post a note telling us a bit about your current scheme for managing your RLS and asking any questions that you have. Several of us here are also athletes, so we can relate.
Welcome to
Deedle, who goes to bed every night hoping that medication holds and that Deedle is not awakened with legs and body moving uncontrollably. Deedle has always been athletic and hates having to take medication but also doesn't want to deteriorate because of lack of sleep and rest.
After you have a chance to take a look around, please post a note telling us a bit about your current scheme for managing your RLS and asking any questions that you have. Several of us here are also athletes, so we can relate.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6541
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Obriensk
Tuesday, July 18
Welcome to
Obriensk, who has been on mirapex for 9 years taking it four times a day. She experienced horrible augmentation and yesterday started Horizant. Am in horrible pain with stopping mirapex and waiting for horizant to hopefully work and for the augmentation symptoms to subside. She is a nurse practitioner and still would love to be involved with real people who are struggling with RLS.
Please take a look through the forum on Augmentation, especially the discussions about getting off of pramipexole. You will find that Horizant is not strong enough to overcome the withdrawal issues of pramipexole. You either have a week of very little sleep ahead or else you need to get your doctor to provide you with an opioid to help you get off the pramipexole. Horizant will not do it. And please post a note telling us where you plan to go from here and asking any questions that you have. We would love to be able to help you through the very difficult time that you have in front of you.
Welcome to
Obriensk, who has been on mirapex for 9 years taking it four times a day. She experienced horrible augmentation and yesterday started Horizant. Am in horrible pain with stopping mirapex and waiting for horizant to hopefully work and for the augmentation symptoms to subside. She is a nurse practitioner and still would love to be involved with real people who are struggling with RLS.
Please take a look through the forum on Augmentation, especially the discussions about getting off of pramipexole. You will find that Horizant is not strong enough to overcome the withdrawal issues of pramipexole. You either have a week of very little sleep ahead or else you need to get your doctor to provide you with an opioid to help you get off the pramipexole. Horizant will not do it. And please post a note telling us where you plan to go from here and asking any questions that you have. We would love to be able to help you through the very difficult time that you have in front of you.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 8849
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
Welcome to Vichic
Thursday 20th July 2017
Welcome today to
Vichic - who has had RLS on & off since Puberty. It has ruined her life. It is in her family. Vichic also has chronic Insomnia which is only made much worse by RLS. She has tried every possible remedy & medication.
Please do read the 'Good Place to Start' at the top here in this Just Joined section. If you start a thread ad tell us some of your experience with medicaions we will try to help.
Welcome today to
Vichic - who has had RLS on & off since Puberty. It has ruined her life. It is in her family. Vichic also has chronic Insomnia which is only made much worse by RLS. She has tried every possible remedy & medication.
Please do read the 'Good Place to Start' at the top here in this Just Joined section. If you start a thread ad tell us some of your experience with medicaions we will try to help.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation