JANUARY 2018 - NEW MEMEBERS
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- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Myrt86
Friday, January 26
Welcome to
Myrt86, whose mom experienced "aching legs" at night intermittently and then she began to demonstrate symptoms in her 60s. She now takes a minor dosage of Ropinirole but her doctor is prescribing more for her symptoms. She wants to be a better informed patient and maximize her ability to remain active in retirement.
Please post a note telling us about your dose of ropinirole since there is a chance that you are experiencing augmentation, which is an issue with dopamine meds like ropinirole that many doctors are not aware of. And also feel free to ask any questions that you have.
Welcome to
Myrt86, whose mom experienced "aching legs" at night intermittently and then she began to demonstrate symptoms in her 60s. She now takes a minor dosage of Ropinirole but her doctor is prescribing more for her symptoms. She wants to be a better informed patient and maximize her ability to remain active in retirement.
Please post a note telling us about your dose of ropinirole since there is a chance that you are experiencing augmentation, which is an issue with dopamine meds like ropinirole that many doctors are not aware of. And also feel free to ask any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Kathyatwell
Friday, January 26
Welcome to
Kathyatwell, who is living an absolute nightmare. She has had RLS for 41 years and it is out of control. Her sleep doctor had her on 7 meds for it.
Please post a note telling us about your meds and what you are doing to manage your RLS now. We would love to be able to offer you some suggestions to consider.
Welcome to
Kathyatwell, who is living an absolute nightmare. She has had RLS for 41 years and it is out of control. Her sleep doctor had her on 7 meds for it.
Please post a note telling us about your meds and what you are doing to manage your RLS now. We would love to be able to offer you some suggestions to consider.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to zebra2
Saturday, January 27
Welcome to
zebra2, who has had RLS for her entire life, but was diagnosed in her 50s. Weirdest symptoms ever to describe. She recently ran out of meds for a week and could find nothing that worked as an alternative treatment. Being able to sleep even as a child would have probably helped her immensely. One of her passions is awareness as she has Ehlers-Danlos Syndrome too.
Please take a look around and then post a note telling us about your meds. And since your passions include awareness, please take a look at the advocacy tab on the Foundation's website (http://www.rls.org).
Welcome to
zebra2, who has had RLS for her entire life, but was diagnosed in her 50s. Weirdest symptoms ever to describe. She recently ran out of meds for a week and could find nothing that worked as an alternative treatment. Being able to sleep even as a child would have probably helped her immensely. One of her passions is awareness as she has Ehlers-Danlos Syndrome too.
Please take a look around and then post a note telling us about your meds. And since your passions include awareness, please take a look at the advocacy tab on the Foundation's website (http://www.rls.org).
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 8839
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
Welcome to Enigmaman
27th January 2018
Welcome to:
Enigmaman - who has had RLS and sleep apnoea for many years and is desperate to get better.
Please do read the Just Joined Forum and then it would be great if you would post telling us of your experience with RLS. What medications you have tried (or not). How you are coping. We are here to try and help.
Welcome to:
Enigmaman - who has had RLS and sleep apnoea for many years and is desperate to get better.
Please do read the Just Joined Forum and then it would be great if you would post telling us of your experience with RLS. What medications you have tried (or not). How you are coping. We are here to try and help.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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- Moderator
- Posts: 8839
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
Welcome to Claudiacrone
28 January 2018
Welcome today to:
Claudiacrone = who has suffered from rls off and on since 1980 and is usually unable to sit through a movie or concert without discomfort.
We all understand exactly how you feel. Please post and tell us of your treatment regime. There is always something else to suggest.
Welcome today to:
Claudiacrone = who has suffered from rls off and on since 1980 and is usually unable to sit through a movie or concert without discomfort.
We all understand exactly how you feel. Please post and tell us of your treatment regime. There is always something else to suggest.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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- Moderator
- Posts: 8839
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
Welcome to - XWelcome
28 January 2018
Welcome today to:
XWelcome - Whose sleep is suffering greatly because of RLS Symptoms. While taking oxycodone briefly for another condition XWelcome discovered that it helped the RLS although no doctor has ever suggested oxycodone for the RLS. Currently on neuro patch and gabapentin. Feels that neuropatch now at 4mgs is not working so well.
Please post in the Just Joined section and tell us how you cope, what you have tried already.
Welcome today to:
XWelcome - Whose sleep is suffering greatly because of RLS Symptoms. While taking oxycodone briefly for another condition XWelcome discovered that it helped the RLS although no doctor has ever suggested oxycodone for the RLS. Currently on neuro patch and gabapentin. Feels that neuropatch now at 4mgs is not working so well.
Please post in the Just Joined section and tell us how you cope, what you have tried already.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to 2restless
Sunday, January 28
Welcome to
2restless, whose husband has had RLS for 40 years, and they just returned from an appointment with a specialist at Mayo Clinic, as his symptoms are now so severe he cannot go on like this. He is on a large dose of Pramipexole (3 MG) and his augmentation is severe. They gave options for other treatment, which we are trying, but the withdrawal symptoms have made everything even worse, with symptoms 24 hours/day. They need help. She has been reading the discussion boards and they are wonderful.
Please post a note telling us about the options that they gave you and what he is currently doing for the transition. We would love to offer you some specific comments.
Welcome to
2restless, whose husband has had RLS for 40 years, and they just returned from an appointment with a specialist at Mayo Clinic, as his symptoms are now so severe he cannot go on like this. He is on a large dose of Pramipexole (3 MG) and his augmentation is severe. They gave options for other treatment, which we are trying, but the withdrawal symptoms have made everything even worse, with symptoms 24 hours/day. They need help. She has been reading the discussion boards and they are wonderful.
Please post a note telling us about the options that they gave you and what he is currently doing for the transition. We would love to offer you some specific comments.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Billdel
Sunday, January 28
Welcome to
Billdell, who is a long term sufferer of RLS and very interested in sharing his experience and learning others experience as well as staying up to date on the latest RLS medical treatments, studies and results.
Please post a note telling us a bit about your symptoms, what you are currently doing to manage them and asking any questions that you have.
Welcome to
Billdell, who is a long term sufferer of RLS and very interested in sharing his experience and learning others experience as well as staying up to date on the latest RLS medical treatments, studies and results.
Please post a note telling us a bit about your symptoms, what you are currently doing to manage them and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to bmcarthur
Monday, January 29
Welcome to
bmcarthur, who has had RLS for many years and have had intermittent relief until now. Now bmcarthur is unable to sleep, is irritated and walking the floor at night. bmcarthur also had a severe reaction to Parkinson drugs as well as gabapentin and is using various modalities with short term relief.
Please post a note telling us something about these other modalities you are using to get short term relief. And feel free to ask any questions that you have.
Welcome to
bmcarthur, who has had RLS for many years and have had intermittent relief until now. Now bmcarthur is unable to sleep, is irritated and walking the floor at night. bmcarthur also had a severe reaction to Parkinson drugs as well as gabapentin and is using various modalities with short term relief.
Please post a note telling us something about these other modalities you are using to get short term relief. And feel free to ask any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to sleeplesssinohio
Tuesday, January 30
Welcome to
sleeplessinohio, who RLS is preventing sleepless from sleeping at night.
Please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Welcome to
sleeplessinohio, who RLS is preventing sleepless from sleeping at night.
Please post a note telling us what you are doing to manage your RLS and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to erinmaryuhoh
Wednesday, January 31
Welcome to
erinmaryuhoh, whose mom is a longtime RLS sufferer and she is hoping to look through the boards to help her find ideas!
Please post a note telling us a bit about her symptoms and what she is currently doing to manage them. And feel free to ask any questions that you have. We would love to be able to help her out.
Welcome to
erinmaryuhoh, whose mom is a longtime RLS sufferer and she is hoping to look through the boards to help her find ideas!
Please post a note telling us a bit about her symptoms and what she is currently doing to manage them. And feel free to ask any questions that you have. We would love to be able to help her out.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Coaches01
Wednesday, January 31
Welcome to
Coaches01, who is an RLS Member. For the past 20 years RLS has consumed every night. RLS drugs offer only partial relief.
Please post a note telling us a bit more about your symptoms and what you are doing to manage them. And feel free to ask any questions that you have.
Welcome to
Coaches01, who is an RLS Member. For the past 20 years RLS has consumed every night. RLS drugs offer only partial relief.
Please post a note telling us a bit more about your symptoms and what you are doing to manage them. And feel free to ask any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to chuckletner
Wednesday, January 31
Welcome to
chuckletner, who has suffered for several years... and is looking for resources to help
Please post a note telling us about your RLS and what you are doing to manage it. We would love to offer you some suggestions to consider.
Welcome to
chuckletner, who has suffered for several years... and is looking for resources to help
Please post a note telling us about your RLS and what you are doing to manage it. We would love to offer you some suggestions to consider.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to MSusan
Wednesday, January 31
Welcome to
MSusan, who suspects she may have RLS and is looking for additional information.
Take a look through "A Good Place to Start" at the top of this forum. You might also want to check the International RLS Support Group's diagnostic criteria web page to get an idea of how RLS is diagnosed. And feel free to post a note with any questions that you have.
Welcome to
MSusan, who suspects she may have RLS and is looking for additional information.
Take a look through "A Good Place to Start" at the top of this forum. You might also want to check the International RLS Support Group's diagnostic criteria web page to get an idea of how RLS is diagnosed. And feel free to post a note with any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6533
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to browland
Wednesday, January 31
Welcome to
browland, whose RLS has made life miserable. It has lead to depression and is threatening browland's marriage.
First, please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions. Second, please take a look through our forum on Help for Relationships. Depression is a common side effect of RLS and the depression along with the sleep issues can take their toll on a marriage. If you provide us with some of your current issues, we can also offer suggestions in that area since many of us have been there.
Welcome to
browland, whose RLS has made life miserable. It has lead to depression and is threatening browland's marriage.
First, please post a note telling us what you are doing to manage your RLS so that we can offer some suggestions. Second, please take a look through our forum on Help for Relationships. Depression is a common side effect of RLS and the depression along with the sleep issues can take their toll on a marriage. If you provide us with some of your current issues, we can also offer suggestions in that area since many of us have been there.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.