APRIL 2018 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to artl3

Postby Rustsmith » Wed Apr 18, 2018 9:48 pm

Wednesday, April 18

Welcome to

artl3, who was diagnosed with RLS 12 months ago during a sleep test. He started using a cpap device with only slight improvement and so decided to research this blog to determine other options.

Please post a note telling us a bit about your symptoms so that we can offer you some specific suggestions to consider.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to amandasm

Postby Rustsmith » Thu Apr 19, 2018 1:59 am

Wednesday, April 18

Welcome to

amandasm, who would like to find a community that understands what she is going through with RLS. This has not been an easy journey for her.

You have found a community who all understand. Please post a note telling your story and what you are currently doing to manage your RLS. We can probably offer some suggestions to you since we have all been there.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to AmandaB

Postby Rustsmith » Sat Apr 21, 2018 1:06 pm

Saturday, April 21

Welcome to

AmandaB, whose are coming earlier in the day, it is increasingly harder to relax in the evening or sleep at night, and her husband is getting more and more frustrated with her RLS. She is hoping to connect with others with this condition for support and also practical advise on how to get relief and ultimately effective treatment.

Please post a summary of your situation and your current treatment(s) so that we can offer you some specific suggestions for improving management of your RLS.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to JanMarie

Postby Rustsmith » Mon Apr 23, 2018 1:49 pm

Monday, April 23

Welcome to

JanMarie, who has had RLS for more than 20 years and it is severe now. She is dependent on medication that has serious side effects for her personally. So she is curious about the experiences of others.

Please post a note telling us about your medication and its side effects so that you can hear from others with similar experiences.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to CatherineWheale

Postby Rustsmith » Mon Apr 23, 2018 8:42 pm

Monday, April 23

Welcome to

CatherineWheale, who has had RLS all her adult life and now she is 70. She takes a lot of medication and has experienced augmentation.
Her family also has a pronounced predisposition for RLS.

Please post a note telling us a bit about your current medication and the status of your augmentation. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Hatsy

Postby Rustsmith » Tue Apr 24, 2018 2:11 pm

Tuesday, April 24

Welcome to

Hatsy, who has had restless legs for about 30 years and has a few questions to ask other with the condition.

Please post a note telling us a bit about your current treatment and asking those questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Kwren214

Postby Rustsmith » Thu Apr 26, 2018 1:56 am

Wednesday, April 25

Welcome to

Kwren214, whose RLS has affected many parts of her life from approximately the age of 18. She must be conscious of where I sits when traveling or going to the movies/ the theatre, sitting too long at a dinner party or in a restaurant with friends. As she has gotten older the RLS has increased until she discovered that increasing her water intake and decreasing sodium have made her RLS much more manageable.

Please post a note telling us a bit more about your management technique as well as any details of medications that you use.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to barbeegee

Postby Rustsmith » Thu Apr 26, 2018 1:59 am

Wednesday, April 25

Welcome to

barbeegee, who is looking for help with RLS and also to contribute her experiences with it. She has suffered for many years and now it's worse than ever. Her doc put her on strong meds and they caused nausea so bad she had to stop taking them. Her RLS worsens with any medicines.

Please post a note giving us the details of the medications that have been causing you problems so that we might be able to suggest some alternatives.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Topshelf

Postby Rustsmith » Thu Apr 26, 2018 8:58 pm

Thursday, April 26

Welcome to

Topshelf, who has RLS/WED and finds the website to be a valuable resource for research.

Welcome to the group. Please post a note telling us a bit about your RLS, what you do to manage it and asking any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to obviouslyjim

Postby Rustsmith » Fri Apr 27, 2018 7:04 pm

Friday, April 27

Welcome to

obviouslyjim, who has been taking RLS meds (pramipexole) for ~10 years, originally because his leg twitching was waking up his wife thru the night. Over the years, he has needed to gradually increase the dosage, and is now having more significant side effects (extreme tiredness ~1.5 hrs after taking meds). Looking for options.

Please post a note with the specifics of your dose and also telling us about how well (and long) you are sleeping. We can probably provide some suggestions for you to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to janislaraine

Postby Rustsmith » Sat Apr 28, 2018 12:57 pm

Saturday, April 28

Welcome to

janislaraine, whose RLS in the last year has gone from moderate and intermittent to severe and nightly. She is getting very little sleep and the sleep she gets is fragmented. Her quality of life has been greatly diminished.

Please post a note telling us what you are doing to manage your RLS. We would love to be able to suggest ways to improve.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to gregdragon

Postby Rustsmith » Sat Apr 28, 2018 1:01 pm

Saturday, April 28

Welcome to

gregdragon, has had RLS for most of his adult life. He has been using Mirapex for years for treatment, but augmentation has set in and so he is searching for new alternative treatments. It has been years since he has felt well rested on a regular basis.

Please take a look through our forum on augmentation and then post a note telling us about your Mirapex dose so that we can offer some suggestions about how to get off of Mirapex and what your alternative treatments are.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to 1026bross

Postby Rustsmith » Sat Apr 28, 2018 3:23 pm

Saturday, April 28

Welcome to

1026bross, who is getting 4-5 hrs sleep a night/ Augmentation hovering and she is at 4mg ER of Ropinirole. She had Rotator Cuff surgery 3 wks ago and symptoms have increased.

That is a large dose of ropinirole, so it isn't surprising that you are having problems. Take a look through the Augmentation forum to get ideas about how to proceed from your current situation and then post a note telling us a bit more so that we can offer some specific suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3434
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to J9J

Postby Rustsmith » Mon Apr 30, 2018 1:18 pm

Monday, April 29

Welcome to

J9J, who has had RLS for over 30 years, is on increasingly higher dosages of medications which seem to be losing their efficacy. J9J is intensely interested in new treatments, findings, and methods of coping with this very uncomfortable malady.

Please post a note with the specifics of your medications so that we can offer you some suggestions to discuss with your doctor. There are was to get your RLS under control.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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