JUNE 2018 - NEW MEMBERS

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to justme

Postby Rustsmith » Tue Jun 12, 2018 7:09 pm

Tuesday, June 12

Welcome to

justme, whose RLS is keeping her up at night and adding anxiety to her life. And so is searching for some natural help in resolving condition.

Take a look in our Non-Prescription Meds, Supplements and Diet forum to get some ideas. Your best bet would be to talk to your doctor to find your ferritin levels and then use an oral iron supplement if it is less than 75 to 100.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to kelleydaniel

Postby Rustsmith » Tue Jun 12, 2018 10:53 pm

Tuesday, June 12

Welcome to

kelleydaniel, whose dad has RLS and his symptoms are very severe. In addition to RLS, he was diagnosed with multiple myeloma in February. He has been undergoing chemo for the past several months, and is now scheduled for a stem cell transplant on July 25. She would like to use the discussion board to see if anyone has undergone a stem cell transplant with severe RLS because it would be extremely helpful to visit with someone who has been in a similar situation.

Please post a note telling us a bit more, especially about what he has been doing for his RLS so that if someone has this experience, they can respond to you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Coalblooded

Postby Rustsmith » Wed Jun 13, 2018 9:09 pm

Wednesday, June 13

Welcome to

Coalblooded, whose RLS hass seriously has impacted every aspect of his life. From being in a car for too long, or being kept awake night after night and crying in such discomfort. The worst part is being told to ignore it that's it's in your head.

There is a special place for doctors that cannot admit that they don't know something, so they pass it off as something in the patient's head. You are not alone with this because many of us have had all of those experiences. Please post a note telling us what you are doing to manage so that we can offer some suggestions, including how to find a doctor who understands and will try to provide you with some relief.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to creepyLegs

Postby Rustsmith » Wed Jun 13, 2018 11:26 pm

Wednesday, June 13

Welcome to

creepyLegs, whose RLS has been driving creepyLegs crazy for years and lately the problem is worsening. creepyLegs is currently taking medication which was working fine in the past, but now works off and on.

Please post a note telling us about your medication (including dose). We may be able to offer some suggestions to discuss with your doctor to improve your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to bydon.j

Postby Rustsmith » Thu Jun 14, 2018 12:34 am

Wednesday, June 13

Welcome to

brydon.j, whose partner's mother has restless legs, so he wants to learn more about RLS, so he can understand it better and support her.

Please feel free to join in any of our ongoing discussions or post a note with any questions that you have so that we can help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Schrag

Postby Rustsmith » Thu Jun 14, 2018 10:16 am

Thursday, June 14

Welcome to

Schrag, who asked to join while writing at a standing desk at 3:43am, legs tingling and no sleep in sight. Every month or so his symptoms worsen and he can't sleep at all for 2-3 nights. He has a good sleep expert, a neurologist, and a psychiatrist helping him figure things out, but he wants to talk with others who understand this.

Please post a note telling us what your doctors are doing to help you out or simply join in one of our ongoing discussions. Perhaps we can offer some new insights to you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7258
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to MezaJarJarBinks

Postby Polar Bear » Thu Jun 14, 2018 4:55 pm

14 June 2018

Welcome today to:

MezaJarJarBinks - RLS has led to the need for MezaJarJarBinks and his wife to sleep in different bedrooms.

We are glad that you have found us. is it yourself, or your wife, or perhaps both of you who are suffering from RLS. Please post and tell us of your situation and how you have been coping with the symptoms so far. Many of us have had to adapt our sleeping habits and have found ways around the need for separate rooms. We want to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

badnights
Moderator
Posts: 4956
Joined: Tue Mar 10, 2009 4:20 pm
Location: Northwest Territories, Canada

Re: JUNE 2018 - NEW MEMBERS

Postby badnights » Fri Jun 15, 2018 3:22 am

welcome to warren1333, who has had RLS since his teens, and is now in his 50's. It has disrupted his sleep for years and made sitting in a theatre or on a plane unbearable.

warren1333, you're in the right place because we all know how you feel. STart a thread to tell us more about yourself or to ask questions or give advice, or feel free to comment on other people's posts.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

Polar Bear
Moderator
Posts: 7258
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome Jacquie

Postby Polar Bear » Fri Jun 15, 2018 6:13 pm

15 June 2018

Welcome today to

Jacquie - whose symptoms are becoming worse and has to take more meds. Jacquie wakes in the middle of the night every night to medicate. When waking in the morning has symptoms until out of bed.

You are among friends here who totally understand your difficulties. I also have to medicate in the middle of the night. Please start a thread, or join a suitable thread, and tell us how you have been coping, what has worked or not worked for you. We want to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Jberube

Postby Rustsmith » Sat Jun 16, 2018 2:21 pm

Saturday, June 16

Welcome to

Jberube, who has spent the last 8 days, 7nights in a severe RLS attack. 24/7 no sleep, constant craziness. She prays for help, information and peace of knowing she is Not Alone.

You are absolutely not alone with this. Please post a note telling us what you have been taking to manage your RLS and the things that you have tried to manage this attack so that we can offer some suggestions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to JulHer1968

Postby Rustsmith » Mon Jun 18, 2018 1:06 pm

Monday, June 18

Welcome to

JulHer1968, whose RLS seems to be dominating her life at present. She is 68 and in retrospect has probably had it all her life. Currently she is on opiates and pramipexole and is chronically sleep deprived. Only her husband and son understand she is in need of support. She is very grateful to have found the RLS Foundation.

Please feel free to join in any of our discussions or post a note asking any questions that you have. We would love to join in providing you with support.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to mnfmn

Postby Rustsmith » Mon Jun 18, 2018 1:10 pm

Monday, June 18

Welcome to

mnfmn, who cannot sleep till 4 or 5 am then needs too rise at 8am for each day's journey. mnfmn feels tired and cranky cannot produce at work.

Please post a note telling us what you are doing to manage your RLS. We would love to offer you some suggestions for improvement.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dmmmt

Postby Rustsmith » Mon Jun 18, 2018 6:30 pm

Monday, June 18

Welcome to

dmmmt, who has severe RLS starting every night from 2-3am until about noon next day.

Please post a note telling us a bit about what you are currently doing to manage your RLS and asking any questions that you have so that we can suggest some things to discuss with your doctor.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3439
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to WalkingDead

Postby Rustsmith » Tue Jun 19, 2018 3:46 am

Monday, June 18

Welcome to

WalkingDead, who has been afflicted with RLS for almost 30 years.

Please post a note telling us a bit about your symptoms, about how you manage them and asking any questions where we might be able to offer some suggestions for improvements.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
Moderator
Posts: 7258
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Welcome to SY6XX

Postby Polar Bear » Tue Jun 19, 2018 9:19 am

Tuesday 19 Jue 2018

Welcome to

SY6XX - who finds It was impossible to relax. The pills take way to long to work if they worked. It was absolutely miserable.

We are glad that you have found us. Please tell us a little about yourself using the Just Joined Forum. We want to help. Something to bear in mind is that the DA medications such as Requip and Mirapex can take about 90 minutes to take effect. Also it is best to be proactive i.e. take them before the usual time that your symptoms would start. We look forward to reading your post.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation


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