JUNE 2018 - NEW MEMBERS
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- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Alladin Sane
Tuesday, June 19
Welcome to
Alladin Sane, who is a long time sufferer of RLS who is wanting to know more.
Please post a note telling us about your symptoms, what you are currently doing to manage and asking any questions that you have so that we can add to what you know about RLS.
Welcome to
Alladin Sane, who is a long time sufferer of RLS who is wanting to know more.
Please post a note telling us about your symptoms, what you are currently doing to manage and asking any questions that you have so that we can add to what you know about RLS.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Billj
Tuesday, June 19
Welcome to
Billj, who suffers from RLS every evening and hasn’t slept more than 5 hours a night for the last three months.
Please post a note telling us what you are currently doing to treat your RLS so that we can offer some suggestions to discuss with your doctor.
Welcome to
Billj, who suffers from RLS every evening and hasn’t slept more than 5 hours a night for the last three months.
Please post a note telling us what you are currently doing to treat your RLS so that we can offer some suggestions to discuss with your doctor.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 8847
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
Welcome to MBB1921
Tuesday 19th June 2018
Welcome to:
MBB1921 - who has signed up for my 97-year-old mother as mother's RLS is now extremely debilitating. Mother used to be able to overcome her RLS by walking or lying down, plus traditional meds for RLS. Now she is having it for hours with no relief and it is keeping her up for hours at night.
Thankyou for signing up on behalf of your mother and we will try to help. It will help us if you let us know what medications your mother is taking at present and if possible, what she has already tried. It sounds like it might possibly be Augmentation and you can read about this in the Augmentation Forum. Please start a thread in the Just Joined Forum and tell us what is happening so that we can help.
Thank you for joining on behalf of your mother, some people don't understand RLS and your mother will appreciate your support.
Welcome to:
MBB1921 - who has signed up for my 97-year-old mother as mother's RLS is now extremely debilitating. Mother used to be able to overcome her RLS by walking or lying down, plus traditional meds for RLS. Now she is having it for hours with no relief and it is keeping her up for hours at night.
Thankyou for signing up on behalf of your mother and we will try to help. It will help us if you let us know what medications your mother is taking at present and if possible, what she has already tried. It sounds like it might possibly be Augmentation and you can read about this in the Augmentation Forum. Please start a thread in the Just Joined Forum and tell us what is happening so that we can help.
Thank you for joining on behalf of your mother, some people don't understand RLS and your mother will appreciate your support.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Loonlady
Wednesday, June 20
Welcome to
Loonlady, who has had Rls for several years & it is getting much worse & harder to manage, so she needs correct & current drug management.
Please post a note telling us about your current medications so that we can offer you some specific suggestions to discuss with your doctor.
Welcome to
Loonlady, who has had Rls for several years & it is getting much worse & harder to manage, so she needs correct & current drug management.
Please post a note telling us about your current medications so that we can offer you some specific suggestions to discuss with your doctor.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to David Markle
Thursday, June 21
Welcome to
David Markle, whose RLS was treated successfully for 10 years with Mirapex. Then came augmentation with severe symptoms leading to severe sleep deprivation.
Please post a note telling us what you are currently doing to treat your RLS and asking any questions that you have.
Welcome to
David Markle, whose RLS was treated successfully for 10 years with Mirapex. Then came augmentation with severe symptoms leading to severe sleep deprivation.
Please post a note telling us what you are currently doing to treat your RLS and asking any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Janet Sinsel
Thursday, June 21
Welcome to
Janet Sinsel, who has had RLS for 42 years and treatment with Vicodin has been the most successful. Both Requip and Mirapex have made her ill. Her doctor is having to stop prescribing opiates, and she doesn't think he is very knowledgeable about RLS. So, she wants information about alternate treatments so that she can discuss them during her next appointment.
Please post a note summarizing your past treatments and asking any questions that you have so that we can provide you with the information that you need for that next appointment.
Welcome to
Janet Sinsel, who has had RLS for 42 years and treatment with Vicodin has been the most successful. Both Requip and Mirapex have made her ill. Her doctor is having to stop prescribing opiates, and she doesn't think he is very knowledgeable about RLS. So, she wants information about alternate treatments so that she can discuss them during her next appointment.
Please post a note summarizing your past treatments and asking any questions that you have so that we can provide you with the information that you need for that next appointment.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 8847
- Joined: Tue Dec 26, 2006 4:34 pm
- Location: United Kingdom
Welcome to MarkOttenberg
22 June 2018
Welcome today to
MarkOttenberg - whose RLS is worsening and current sleep doctor is clueless how to deal with the condition. For health reasons It seems impossible to ingest sufficient iron and a series of 4 iron infusions, while momentarilly effective, did not hold and kicked the red blood cell production even higher.
MO spends around 12 hours a day trying to get sufficient rest and this is keeping MO from being holding a job, and otherwise being fully functional.
You have come to the right place. Please make a post telling us how you have managed in the past and about your current treatment. It is an awful condition to be trying to manage and we do try to help and discuss alternative options.
Welcome today to
MarkOttenberg - whose RLS is worsening and current sleep doctor is clueless how to deal with the condition. For health reasons It seems impossible to ingest sufficient iron and a series of 4 iron infusions, while momentarilly effective, did not hold and kicked the red blood cell production even higher.
MO spends around 12 hours a day trying to get sufficient rest and this is keeping MO from being holding a job, and otherwise being fully functional.
You have come to the right place. Please make a post telling us how you have managed in the past and about your current treatment. It is an awful condition to be trying to manage and we do try to help and discuss alternative options.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Bridgercan
Saturday, June 23
Welcome to
Bridgercan, for whom because of its severity, RLS has become an unchosen full-time vocation with large parts of the day and night spent managing symptoms. Bridgercan's symptoms in the last two months went from well-managed on pramixepole to completely unmanaged, resulting in severe symptoms and severe lack of sleep. It has had an enormously negative impact on life, affecting work, enjoyment of life, and Bridgercan's marriage, and that is the one thing that saddens the most is the strain it puts on both spouse and relationship.
Please take a look at our forum on Augmentation since you sound like an excellent candidate. And please post a note telling us about the dose of pramipexole that you are (or have been) taking so that we can offer some suggestions to discuss with your doctor.
Welcome to
Bridgercan, for whom because of its severity, RLS has become an unchosen full-time vocation with large parts of the day and night spent managing symptoms. Bridgercan's symptoms in the last two months went from well-managed on pramixepole to completely unmanaged, resulting in severe symptoms and severe lack of sleep. It has had an enormously negative impact on life, affecting work, enjoyment of life, and Bridgercan's marriage, and that is the one thing that saddens the most is the strain it puts on both spouse and relationship.
Please take a look at our forum on Augmentation since you sound like an excellent candidate. And please post a note telling us about the dose of pramipexole that you are (or have been) taking so that we can offer some suggestions to discuss with your doctor.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to nancobb22
Saturday, June 23
Welcome to
nancobb22, who has lived and coped with RLS from the time she was in her early 20's to her present age of 80. She is constantly striving to improve and understand this condition that worsens with age. Fortunately some medications and life style ideas have come with the passing of time, but there is always new information and hope.
Please post a note to give us an idea of what you are currently doing to manage your symptoms. And feel free to ask any questions that you have.
Welcome to
nancobb22, who has lived and coped with RLS from the time she was in her early 20's to her present age of 80. She is constantly striving to improve and understand this condition that worsens with age. Fortunately some medications and life style ideas have come with the passing of time, but there is always new information and hope.
Please post a note to give us an idea of what you are currently doing to manage your symptoms. And feel free to ask any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to jcsherwin
Saturday, June 23
Welcome to
jcsherwin, who after going through 2 episodes of 4 nights of sleeplessness and wondering if she would lose her mind decided to look at the internet. She found RLS.org and through them a contact for a support group. Through the support group contact, the RLS website and this discussion board she hopes to learn a lot more about this disease and how to get some relief from it.
We are glad that you found us. Please post a note telling us about your symptoms and whether you are currently doing anything to manage them. We would love to be able to offer some suggestions for improving your situation and to answer any questions that you have.
Welcome to
jcsherwin, who after going through 2 episodes of 4 nights of sleeplessness and wondering if she would lose her mind decided to look at the internet. She found RLS.org and through them a contact for a support group. Through the support group contact, the RLS website and this discussion board she hopes to learn a lot more about this disease and how to get some relief from it.
We are glad that you found us. Please post a note telling us about your symptoms and whether you are currently doing anything to manage them. We would love to be able to offer some suggestions for improving your situation and to answer any questions that you have.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Institches
Wednesday, June 27
Welcome to
Institches, who has had RLS since her 20’s in pregnancy. Now she is in her 50’s & after many sleepless nights & has been on pramipexole for quite a few years. The RLS is getting worse again & it’s time to come off the pramipexole. Any help is welcome.
Take a look through our forum on augmentation to find out about your options for getting off of pramipexole. And please post a note telling us about your current symptoms and pramipexole dose so that we can offer you some specific comments.
Welcome to
Institches, who has had RLS since her 20’s in pregnancy. Now she is in her 50’s & after many sleepless nights & has been on pramipexole for quite a few years. The RLS is getting worse again & it’s time to come off the pramipexole. Any help is welcome.
Take a look through our forum on augmentation to find out about your options for getting off of pramipexole. And please post a note telling us about your current symptoms and pramipexole dose so that we can offer you some specific comments.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to PS HANSEN
Wednesday, June 27
Welcome to
PS HANSEN, who has severe insomnia, is up walking at night often 5-6 hours and is therefore exhausted
Please post a note telling us what you are doing to manage your RLS (other than walking at night). We may be able to offer some suggestions for improvement.
Welcome to
PS HANSEN, who has severe insomnia, is up walking at night often 5-6 hours and is therefore exhausted
Please post a note telling us what you are doing to manage your RLS (other than walking at night). We may be able to offer some suggestions for improvement.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to walkerbyrd
Wednesday, June 27
Welcome to
walkerbyrd, who needs help/suggestions from other RLS sufferers in how they cope with RLS. walker now has to carefully select daily activities to attend and be part of and it has lessened walker's quality of life.
Please post a note telling us what your current RLS management (especially meds) looks like so that we can offer you some suggestions to improve the quality of your life.
Welcome to
walkerbyrd, who needs help/suggestions from other RLS sufferers in how they cope with RLS. walker now has to carefully select daily activities to attend and be part of and it has lessened walker's quality of life.
Please post a note telling us what your current RLS management (especially meds) looks like so that we can offer you some suggestions to improve the quality of your life.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Sequoiah66
Wednesday, June 27
Welcome to
Sequoiah66, who has unusual RLS. Sequoiah has low Iron, but high red blood cell count. The latter is possibly due to larger than usual erithropoetin coming from kidney mass (Polycystic Kidney Disease PLUS transplanted kidney). Adding iron causes more RBC. Which is already TOO HIGH and makes for a fun catch 22.
For some of us, increasing ferritin doesn't help with our RLS, so it doesn't always improve things. Please post a note telling us what you are currently taking to manage your RLS, we may be able to offer some suggestions to improve the situation with your RLS.
Welcome to
Sequoiah66, who has unusual RLS. Sequoiah has low Iron, but high red blood cell count. The latter is possibly due to larger than usual erithropoetin coming from kidney mass (Polycystic Kidney Disease PLUS transplanted kidney). Adding iron causes more RBC. Which is already TOO HIGH and makes for a fun catch 22.
For some of us, increasing ferritin doesn't help with our RLS, so it doesn't always improve things. Please post a note telling us what you are currently taking to manage your RLS, we may be able to offer some suggestions to improve the situation with your RLS.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6540
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to murb1
Thursday, June 28
Welcome to
murb1, whose RLS is such that he can’t sleep with his wife and has to sleep in another room.
Please post a note telling us what you are currently doing to manage your RLS. Many of us have been in your situation and there are things that can be done so that you can sleep together.
Welcome to
murb1, whose RLS is such that he can’t sleep with his wife and has to sleep in another room.
Please post a note telling us what you are currently doing to manage your RLS. Many of us have been in your situation and there are things that can be done so that you can sleep together.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.