FEBRUARY 2019 - New Members

Whether new to RLS/WED or new to the site, we welcome you and invite you to share your history and experiences with RLS/WED, introduce yourself, and ask questions. Successful treatment starts with a solid understanding of this disease.
ViewsAskew
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Posts: 15489
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Welcome to He1ena

Postby ViewsAskew » Thu Feb 07, 2019 8:17 am

Thursday, Feb 7th, our newest member is He1ena. He1ena has been in a very rough patch for a few months; no sleep at all in the last 48 hours!

So sorry you are having such a difficult time, He1ena! Hope that you can find some help here. Please do start a new post and let us know about your situation and what you have tried (if anything).
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

ViewsAskew
Moderator
Posts: 15489
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Welcome to BookmanJoe

Postby ViewsAskew » Thu Feb 07, 2019 8:22 am

Thursday, Feb 7th, we also welcome BookmanJoe. BookmanJoe has always had RLS, but it's gotten worse the last few years.

It often does get worse as we age. But, other things can cause that and should be looked into. Poke around if you like, or post a new topic in one of the forums and let us know about what is going on in your RLS life as well as ask any questions you have.
Ann - Take what you need, leave the rest



Managing Your RLS



Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Shermccormick

Postby Rustsmith » Fri Feb 08, 2019 3:50 am

Thursday, February 7

Welcome to

Shermccormick, whose RLS has been a source of many sleepless, awful nights. It’s frustrating to find a health provider that understands. And once she did, the government has decided they know best about her disease. Very frustrating right now.

Please post a note telling us what you are currently doing to manage your RLS and how the government has intruded on the doctor-patient relationship. We may be able to give you some suggestions if we know more.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to creepycrawly

Postby Rustsmith » Fri Feb 08, 2019 3:52 am

Thursday, February 7

Welcome to

creepycrawly, who RLS is awful and runs life. creepycrawly wants to find tips, share learnings and recently got off Ropinirole.

If you will post a note telling us a bit about what you are doing to manage, we would be happy to start sharing with you.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Knowmore

Postby Rustsmith » Sun Feb 10, 2019 2:54 pm

Sunday, February 10

Welcome to

Knowmore, who is here to learn for family friend.

Please post a note asking whatever questions that you have so that we can hopefully provide the answers that you seek.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to MarianneK

Postby Rustsmith » Mon Feb 11, 2019 3:55 am

Sunday, February 10

Welcome to

MarianneK, whose RLS has been a difficulty for years but lately it’s been unbearable. She needs some relief and hopefully will find information here.

You have come to the right place for information on RLS. If you will post a note telling us what you have been doing to manage and asking any questions that you have, we will do our best to help you out.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to BruceWiebe47

Postby Rustsmith » Mon Feb 11, 2019 2:48 pm

Monday, February 11

Welcome to

BruceWiebe47, who has RLS and wants to know about meds he is taking. And he can't sleep well.

If you will post a note telling us about the meds and asking any other questions that you have, we should be able to answer your questions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Didjit

Postby Rustsmith » Tue Feb 12, 2019 2:31 pm

Tuesday, February 11

Welcome to

Didjit, who has had RLS since adolescence, 40+ years along with PLMD and REMD. Very little medication has any effect and then only partially treats it part of the time. The difficulty with sleep has ruined memory, limits energy, and as a result it undermines Didjit's reputation. It's soul draining. And that's just the lack of sleep part. Then there's the discomfort, anxiety as bedtime approaches and anxiety about flying.

Please post a note telling us about the medications that you have tried. We may be able to offer suggestions to help out out and to get better sleep.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to goberland

Postby Rustsmith » Tue Feb 12, 2019 10:04 pm

Tuesday, February 11

Welcome to

goberland, who had struggled with RLS for most of goberland's adult life. goberland is currently in the process of switching from one dopamine agonist medication to another. It is not going well and therefore is eager to get input from other RLS sufferers.

Please post a note telling us which dopamine agonists that you have/are using and whether the reason to switch was due to augmentation on the old one. That way we can offer you some specific guidance and suggestions about how to proceed from here.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Posts: 7407
Joined: Tue Dec 26, 2006 4:34 pm
Location: N. Ireland

Wlcome to - Csherkel

Postby Polar Bear » Wed Feb 13, 2019 2:46 pm

13 February 2019

Welcome to:

Csherkel - sho says that controls his/her life. Csherkel works full time, exercises almost daily don’t do drugs. Health is good but rls ruins so many activities and most sleep every single day.

Please post and tell us how you have been coping with your rls symptoms, are you taking medications, what are you taking. Give us some rls history and we will try to help.
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to redshoes

Postby Rustsmith » Thu Feb 14, 2019 3:02 am

Wednesday, February 13

Welcome to

redshoes, has had RLS for decades and has been on 2.5 ropinirole for over 15 yrs. Before medication, she would wake her husband by kicking. Terrible sleep. Even with medication, she avoids all evening activity, concerts, theater, performances, because of needing to kick the seat in front of her if unmedicated, and instant sleep if medicated. Air travel is extremely restricted. She is now experiencing augmentation and is trying to switch to Neupro.

If you will post a note telling us about your augmentation and the Neupro dose you are moving to, we can probably offer you comments on our experience when in similar situations.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to helvio34

Postby Rustsmith » Thu Feb 14, 2019 8:29 pm

Thursday, February 14

Welcome to

helvio34, who has been suffering with RLS for a long time, in fact a lifetime, and has been using a lot of medical treatments.

If you will post a note telling us about your symptoms and your current treatments, we may be able to provide some suggestions for improvement. And feel free to ask any questions that you have.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to Carmax17

Postby Rustsmith » Thu Feb 14, 2019 11:48 pm

Thursday, February 14

Welcome to

Carmax17, whose chronic RLS has made life miserable. It has resulted in major depression along with other factors.

Please post a note telling us what you are currently doing to manage your RLS and depression so that we can offer some suggestions for improving your situation.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to dickandjane

Postby Rustsmith » Fri Feb 15, 2019 3:11 pm

Friday, February 15

Welcome to

dickandjane, who can't sit through theatre, fly on planes, or even relax at home for more than an hour without constantly moving legs. dickandjane doesn't have problems at night, but in experiencing the above, drives everyone me nuts with all the squirming.

Please post a note telling us if you are taking anything for your RLS so that we can offer you some suggestions that may help you reduce the motions.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Rustsmith
Moderator
Posts: 3756
Joined: Sat Sep 28, 2013 9:31 pm
Location: Pueblo, Colorado

Welcome to beachGolfer

Postby Rustsmith » Fri Feb 15, 2019 3:14 pm

Friday, February 15

Welcome to

BeachGolfer, who feels that RLS has taken over her life though, thankfully, she only has symptoms at night. She is currently weaning from Mirapex with the use of Percocet. Fortunately, she has a very supportive neurologist and husband.

You are very lucky to have the support and the Percocet during this phase of your RLS. Please post a note telling us about your neurologist's plans for what you are going to do to manage your RLS once you have transitioned off of Mirapex.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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