Attempting to get off Ropinirole - again

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stjohnh
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Location: Palo Alto, California

Re: Attempting to get off Ropinirole - again

Postby stjohnh » Thu Sep 05, 2019 2:05 pm

Polar Bear wrote:...
It appears to work well though not so much for sleep...


That is my experience w kratom as well, good for urge to move, not so much for sleep. THC (cannabis) seems to be the best for sleep.
Blessings,
Holland

Polar Bear
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Location: N. Ireland

Re: Attempting to get off Ropinirole - again

Postby Polar Bear » Wed Sep 11, 2019 9:15 am

Ok.... I've been on .75mg ropinerole for quite a few days having dropped the 3am dose. Been using the kratom to replace this dose by taking half teaspoon about 12.30am and another half teaspoon at 3am. Total 2 grams. This doesn't seem to be enough as on occasion I've had to take some codeine to sort out middle of the night RLS symptoms.

I might just combine it in one dose of 2 grams. Or I might increase each dose to 1.5g each and total 3 grams.

It's all trial and error.

Whatever I do, the kratom will need to be replaced by increased codeine for a week during mid October holiday.

Today I have 2.5yrs grandson for childcare and he is as bright and fresh as a new shiny button. Needless to say I am counting the minutes until he naps and I will rapidly jump into bed with a book and see if I can nod off :)
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

oceanwalker
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Joined: Fri Aug 23, 2013 12:02 pm
Location: Canada

Re: Attempting to get off Ropinirole - again

Postby oceanwalker » Thu Sep 12, 2019 7:57 pm

Well I went to my GP this and and I was shocked ! She knows I have been trying to reduce my Ropinirole
Anyways I took with me more information about augmentation plus the latest edition of Nightwalker
She then advised me that I needed to be on the highest dosage of Ropinirole before anyone could prescribe Opiates? I had been on the highest for a long long time and I am now down to 4 or 5 per day
In any event I am shocked This is all becoming even more frusterating :( I am not in the market for increasing my agonists NO ! Took a long time for me (this time) to reduce
So It is as it is and NO I cannot change GP's It is just not allowed here ...not so readily anyways Ah well
Thanks for reading
Sincerely,
Oceanwalker

stjohnh
Posts: 911
Joined: Sun Feb 14, 2016 3:13 pm
Location: Palo Alto, California

Re: Attempting to get off Ropinirole - again

Postby stjohnh » Thu Sep 12, 2019 8:45 pm

oceanwalker wrote:She then advised me that I needed to be on the highest dosage of Ropinirole before anyone could prescribe Opiates? I had been on the highest for a long long time and I am now down to 4 or 5 per day
In any event I am shocked This is all becoming even more frusterating :( I am not in the market for increasing my agonists NO ! Took a long time for me (this time) to reduce
So It is as it is and NO I cannot change GP's It is just not allowed here ...not so readily anyways Ah well
Thanks for reading
Sincerely,
Oceanwalker


I'm sorry you are having such problems. One solution, though expensive, is to see a US doc. Another is to try kratom. Another, if there is no other option, is to keep your ropinirole dose the same, but go back to your doc and tell the doc you increased the dose and your symptoms are getting worse. I know it is shocking, but patients lie to their doctors frequently.
Blessings,
Holland

ViewsAskew
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Re: Attempting to get off Ropinirole - again

Postby ViewsAskew » Fri Sep 13, 2019 1:36 am

stjohnh wrote:
oceanwalker wrote:She then advised me that I needed to be on the highest dosage of Ropinirole before anyone could prescribe Opiates? I had been on the highest for a long long time and I am now down to 4 or 5 per day
In any event I am shocked This is all becoming even more frusterating :( I am not in the market for increasing my agonists NO ! Took a long time for me (this time) to reduce
So It is as it is and NO I cannot change GP's It is just not allowed here ...not so readily anyways Ah well
Thanks for reading
Sincerely,
Oceanwalker


I'm sorry you are having such problems. One solution, though expensive, is to see a US doc. Another is to try kratom. Another, if there is no other option, is to keep your ropinirole dose the same, but go back to your doc and tell the doc you increased the dose and your symptoms are getting worse. I know it is shocking, but patients lie to their doctors frequently.


I am not usually one to say to lie to a doctor...but in this case? You are taking MUCH more than is recommended, so in a way, you already HAVE taking the highest dose. I say do what Holland said...
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

Polar Bear
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Location: N. Ireland

Re: Attempting to get off Ropinirole - again

Postby Polar Bear » Fri Sep 13, 2019 10:02 pm

I am reducing ropinerole and it appalls me that your GP has said this. I am speechless!! To have reduced and then be told this.

Also, where I live we cannot readily change our GP so I truly understand your frustration.

To lie to a doctor goes against the grain but i'm with Holland and Ann on this. Whatever it takes.....
Betty
http://www.willis-ekbom.org/about-rls-wed/publications
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation

Rustsmith
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Location: Pueblo, Colorado

Re: Attempting to get off Ropinirole - again

Postby Rustsmith » Fri Sep 13, 2019 10:49 pm

I have to agree with all of the comments above. Obviously it isn't good practice to lie or withhold information from your physician. However, if your doctor is so obviously ignorant and you cannot change, then what he doesn't know won't hurt you. Obviously he has no idea of what you have been going through nor the dangers of stopping from the high dose that he seems to think is appropriate.
Steve

Augmentation Evaluation http://bb.rls.org/viewtopic.php?f=4&t=9005

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

oceanwalker
Posts: 119
Joined: Fri Aug 23, 2013 12:02 pm
Location: Canada

Re: Attempting to get off Ropinirole - again

Postby oceanwalker » Sat Sep 14, 2019 4:17 am

Thanking everypne for their replies and kindness
Could someone please explain to me about Kratom? I am ignorant about it
Many thanks and Blessings to all

Sincerely Oceanwalker (Marie)

badnights
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Location: Northwest Territories, Canada

Re: Attempting to get off Ropinirole - again

Postby badnights » Sat Sep 14, 2019 7:30 am

kratom is a plant with opioid-like properties. you can order it online. Board members have used the following places and verified them as good suppliers (as of last year I think):
So Cal: https://www.socalherbalremedies.com (search for speciosa, a tea)
Velvet Soul Naturals: https://www.velvetsoulnaturals.com/ (search for Mitragyna. Always finely ground and fresh)
Kat's Botanicals: https://katsbotanicals.com/
Valkyrie Botanicals: https://www.valkyriebotanicals.com/
Tea Time Botanicals: https://www.teatimebotanical.com/
Mystical Island: http://www.mysticislandkratoms.com/ (no one on the board has tried it but a number of people have heard on Reddit that it’s good)
For pouch discs to put it in, http://a.co/dJpaBJV

There are different strains of kratom which have different effects. The red strains are said to be good for WED, for pain, and for sleep, particularly Red vein Borneo. Also Horned Red has been mentioned as being effective plus being a potent sedative. An exception might be Thai red vein, some people have said it has an alerting effect. Other strains that have an alerting effect and are good for daytime WED are Maeng Da, Yellow Borneo, the green strains, and the white strains.

Treat kratom as you would an opioid medication. You';; have to experiment to get the right dose; do so cautiously. You can search the board here for "kratom" and read of other people's experiences with doses and methods of ingestion. I think most people are mixing the dried leaf (powder) with an acidic juice.
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.


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