Infusion #3

Use this section to discuss your experiences with prescription drugs, iron injections, and other medical interventions that involve the introduction of a drug or medicine into the body. Discuss side effects, successes, failures, published research, information about drug trials, and information about new medications being developed.

Important: Posts and information in this section are based on personal experiences and recommendations; they should not be considered a substitute for the advice of a healthcare provider.
2restless
Posts: 25
Joined: Sun Jan 28, 2018 3:10 pm

Re: Infusion #3

Postby 2restless » Fri Jan 03, 2020 6:39 pm

We couldn't afford the Injectafer either and went with the LMW iron, which worked wonders. It was about $415 out of pocket for the infusion and the nursing care to give it. We got another type 1.5 years prior to this, and it did nothing. I think Injectafer and LMW are the only twp to try. I had to fight to get the LMW iron as the pharmacist was not familiar with it and was concerned about anaphylaxis and wanted to give it over 8 hours. Got the protocol that Stanford and Johns Hopkins uses and that took care of that problem. Good luck, I hope you feel better.

ViewsAskew
Moderator
Posts: 15958
Joined: Thu Oct 28, 2004 6:37 am
Location: Los Angeles

Re: Infusion #3

Postby ViewsAskew » Fri Jan 03, 2020 8:13 pm

2restless wrote:We couldn't afford the Injectafer either and went with the LMW iron, which worked wonders. It was about $415 out of pocket for the infusion and the nursing care to give it. We got another type 1.5 years prior to this, and it did nothing. I think Injectafer and LMW are the only twp to try. I had to fight to get the LMW iron as the pharmacist was not familiar with it and was concerned about anaphylaxis and wanted to give it over 8 hours. Got the protocol that Stanford and Johns Hopkins uses and that took care of that problem. Good luck, I hope you feel better.


Yeah, the cost out of pocket is CRAZY!!!!

I had to explain it to this doc - but he really was on board when I showed him the study. I had the pages marked on my phone, so I could go right to the salient points. He read them and said yes.

So glad it worked so well for your husband!
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.


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