I've searched this board so often regarding burning feet but I thought I would start a new topic to get any current advice.
After being on a high dose of Sinemet for 18 months, I switched over to Suboxone. Three weeks after starting Suboxone, I wrote in my symptom diary that I was experiencing some discomfort in my legs and feet, like little electrical bites. Every month since, I've noted this sensation. I would now say that my feet (including the tops of them) and my calves burn throughout the day. It's extremely uncomfortable and I'm so worried that it will continue to increase in intensity. I had a Electromyography (EMG) and Nerve Conduction Study and they came back negative for Peripheral Neuropathy. I could still have a different type of neuropathy, such as Small Fiber Neuropathy.
I am on 900 mg of gabapentin in addition to my Suboxone. I can't say the gabapentin is helping much with the burning. My RLS doc, Dr. Buchfuhrer, suggested I substitute out gabapentin and try pregabalin instead. He started me on 75mg to be taken twice in the evening. It made me so groggy in the morning that I asked to go back to gabapentin. I only tried the pregabalin for 5 nights.
I know many people on this board suffer from neuropathy.
I would love to hear from anyone who has successfully treated this or has any advice for dealing with the burning.
Another post about burning feet and legs
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Re: Another post about burning feet and legs
Goodness, that sounds awful. I don't have advice to help you; I hope someone does.
"pain or swelling in the arms or legs" is listed as a possible side effect of gabapentin. Not very useful. I wonder if it could be the suboxone? "feeling of warmth or heat" is listed as a possible side effect. Your issue started after about 3 weeks as little electrical bites; how much longer did it take to progress to a full-on burning sensation of the feet and calves?
"pain or swelling in the arms or legs" is listed as a possible side effect of gabapentin. Not very useful. I wonder if it could be the suboxone? "feeling of warmth or heat" is listed as a possible side effect. Your issue started after about 3 weeks as little electrical bites; how much longer did it take to progress to a full-on burning sensation of the feet and calves?
Beth - Wishing you a restful sleep tonight
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Re: Another post about burning feet and legs
Yikes, Becky. That sound miserable. I hope someone has some ideas for you. I guess the only way to know if the suboxone is causing it would be to stop it, and that would likely be very difficult to do.beckycolorado wrote: Wed Feb 19, 2025 5:25 pm I've searched this board so often regarding burning feet but I thought I would start a new topic to get any current advice.
After being on a high dose of Sinemet for 18 months, I switched over to Suboxone. Three weeks after starting Suboxone, I wrote in my symptom diary that I was experiencing some discomfort in my legs and feet, like little electrical bites. Every month since, I've noted this sensation. I would now say that my feet (including the tops of them) and my calves burn throughout the day. It's extremely uncomfortable and I'm so worried that it will continue to increase in intensity. I had a Electromyography (EMG) and Nerve Conduction Study and they came back negative for Peripheral Neuropathy. I could still have a different type of neuropathy, such as Small Fiber Neuropathy.
I am on 900 mg of gabapentin in addition to my Suboxone. I can't say the gabapentin is helping much with the burning. My RLS doc, Dr. Buchfuhrer, suggested I substitute out gabapentin and try pregabalin instead. He started me on 75mg to be taken twice in the evening. It made me so groggy in the morning that I asked to go back to gabapentin. I only tried the pregabalin for 5 nights.
I know many people on this board suffer from neuropathy.
I would love to hear from anyone who has successfully treated this or has any advice for dealing with the burning.
Ann - Take what you need, leave the rest
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Managing Your RLS
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.