Anyone have experience with mirapex in children? My 8yo is supposed to start taking it in place of the "evil neurontin".
Any info would be great.
T-mom
Mirapex and children
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cmoore1958
- Posts: 232
- Joined: Wed Jan 23, 2008 11:47 pm
- Location: Texas
Hi T-mom,
I'm so sorry to hear about your daughter. That is so young to be dealing with this horrible disorder.
I don't have any experience with Mirapex and children, but I take Mirapex. I, unlike others, have not had any bad side effects for the first 1-1/2 of taking it. The only advice I would give is to give her the lowest dose possible for her to get relief. How many mg did the doctor prescribe for her to take?
Mirapex can and will make her tired, so taking it 90 minutes before bedtime is best. It takes an average of 90 minutes for it to work and you don't want her to lay down and relax to sleep too soon.
I wish you all the luck with your daughter. I will keep her in my prayers.
You have found a very good support family at this discussion board. Anything you ask there should be someone here to help and/or give you support and friendship.
We also have a chat room where we meet on Monday nites at 8 pm central time if you're interested in asking questions in real time.
Take care of yourself and your daughter.
Cyndi
I'm so sorry to hear about your daughter. That is so young to be dealing with this horrible disorder.
I don't have any experience with Mirapex and children, but I take Mirapex. I, unlike others, have not had any bad side effects for the first 1-1/2 of taking it. The only advice I would give is to give her the lowest dose possible for her to get relief. How many mg did the doctor prescribe for her to take?
Mirapex can and will make her tired, so taking it 90 minutes before bedtime is best. It takes an average of 90 minutes for it to work and you don't want her to lay down and relax to sleep too soon.
I wish you all the luck with your daughter. I will keep her in my prayers.
You have found a very good support family at this discussion board. Anything you ask there should be someone here to help and/or give you support and friendship.
We also have a chat room where we meet on Monday nites at 8 pm central time if you're interested in asking questions in real time.
Take care of yourself and your daughter.
Cyndi
Even when we are by ourselves, we are never truly alone.
My motto: It's MY pitty-party and I'll vent if I want to.
My motto: It's MY pitty-party and I'll vent if I want to.
Hi T-mom and welcome to this group. Cyndi gave you some excellent advise. Also you can look on the different forums as there are some info about children having rls.
I also do not have any children but do take Mirapex and take the lowest dose which is .125mg. I would check with your dr first before doing anything.
We do have a chat room on Monday nights which starts at 7pm mountain and it would be either 8 or 9pm your time depends on where u live.
Please keep us posted on how you are doing. Like Cyndi said it is a wonderful support group and we are here for you.
I also do not have any children but do take Mirapex and take the lowest dose which is .125mg. I would check with your dr first before doing anything.
We do have a chat room on Monday nights which starts at 7pm mountain and it would be either 8 or 9pm your time depends on where u live.
Please keep us posted on how you are doing. Like Cyndi said it is a wonderful support group and we are here for you.
Charlene
Taking one day at a time
Taking one day at a time
She is going to be on .125mg/night. I think that is as low as it can go.
She is being treated by a pedi neuro as well as a pedi pulmo/sleep. I just took her for a second opinon last week (before we knew increased doses of Neurontin were a disaster). The other neuro (who has no experience with kids on domapine agonists) said to be sure and take it slow.
We are waiting a few days for her to get all the Neurontin out of her system to see how bad things actually are for her now (1 1/2 yr post dx) before starting the Mirapex. I want to truly be sure she needs this med before giving it to her because "the doc said so".
T-mom
She is being treated by a pedi neuro as well as a pedi pulmo/sleep. I just took her for a second opinon last week (before we knew increased doses of Neurontin were a disaster). The other neuro (who has no experience with kids on domapine agonists) said to be sure and take it slow.
We are waiting a few days for her to get all the Neurontin out of her system to see how bad things actually are for her now (1 1/2 yr post dx) before starting the Mirapex. I want to truly be sure she needs this med before giving it to her because "the doc said so".
T-mom
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cmoore1958
- Posts: 232
- Joined: Wed Jan 23, 2008 11:47 pm
- Location: Texas
It sounds like you've got a plan going. I think it is important to get the Neurontin out of her system so you can get a clean read on the mirapex. Just watch her and see how she does. You are her mother and you will know how and when she reacts to anything.
I think it is also important that you have a doctor you can trust that understands and has very comprehensive knowledge of rls and the treatments. If you look at the sticky posts under New to RLS ?? there are a lot of web sites listed with information on treatments, symptoms, etc. of RLS. There is also a site for the Mayo Clinic Algorhythm which is a much read for all doctors and patients.
Good luck with your daughter's treatments. Please keep us posted on what is going on. We really do care.
Cyndi
I think it is also important that you have a doctor you can trust that understands and has very comprehensive knowledge of rls and the treatments. If you look at the sticky posts under New to RLS ?? there are a lot of web sites listed with information on treatments, symptoms, etc. of RLS. There is also a site for the Mayo Clinic Algorhythm which is a much read for all doctors and patients.
Good luck with your daughter's treatments. Please keep us posted on what is going on. We really do care.
Cyndi
Even when we are by ourselves, we are never truly alone.
My motto: It's MY pitty-party and I'll vent if I want to.
My motto: It's MY pitty-party and I'll vent if I want to.
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mackjergens
- Posts: 406
- Joined: Sat Jul 21, 2007 5:10 am
Mirapex and children
I typed in "children taking Mirapex" and several web sites came up, as scrolling thru afew I found this statement, and thought you should know this..
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Children—Studies on this medicine have been done only in adult patients, and there is no specific information comparing use of pramipexole in children with use in other age groups
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Sorry I forgot to get the web addy where this statement was found,but I am sure if you type in "children taking mirapex" in a search engine you will find the same we site.
I think I would be very concerned if this has not been studied in children. I would sure do alot of research if I were you. Just my opinion!!
_______________________________________________________
Children—Studies on this medicine have been done only in adult patients, and there is no specific information comparing use of pramipexole in children with use in other age groups
____________________________________________________________
Sorry I forgot to get the web addy where this statement was found,but I am sure if you type in "children taking mirapex" in a search engine you will find the same we site.
I think I would be very concerned if this has not been studied in children. I would sure do alot of research if I were you. Just my opinion!!
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mackjergens
- Posts: 406
- Joined: Sat Jul 21, 2007 5:10 am
Here is the web site I copied/pasted that info about Children and mirapex
http://www.drugs.com/cons/mirapex.html
http://www.drugs.com/cons/mirapex.html