Search found 15 matches

by Brenda B
Fri Jun 11, 2021 3:46 pm
Forum: Prescription Medications
Topic: marijuana please?
Replies: 14
Views: 212

Re: marijuana please?

Thank you again. I could go back to Silber but that's a 4-5 hour drive to Rochester, MN. We ranch for a living and own land and my husbandf and son-in-law work together. This is all we have and just cannot, would not think of moving. I've sent the info about opiods/RLS on to my newest neurologist. W...
by Brenda B
Thu Jun 10, 2021 5:45 pm
Forum: Prescription Medications
Topic: marijuana please?
Replies: 14
Views: 212

Re: marijuana please?

Thanks Ricky, I've found that MANY drugs make the RLS worse. Most anti-nausea. anti-dizziness drugs, lamisil, Jublia, many sleep aids, lots more I can't even remember. It makes treating other diseases/disorders really difficult. Lyrica made me sick and didn't help the RLS, carbemazepine made me wors...
by Brenda B
Wed Jun 09, 2021 10:51 pm
Forum: Prescription Medications
Topic: marijuana please?
Replies: 14
Views: 212

Re: marijuana please?

I'm sure you all are right. Thank you so much for the information and advice. I have found though, if I'm even 1 hour late in changing the Neupro patch, I will go though hell for 2-4 more hours. I'd have to find a doctor who would increase the methadone dosage considerably to get me through coming o...
by Brenda B
Wed Jun 09, 2021 7:44 pm
Forum: Prescription Medications
Topic: marijuana please?
Replies: 14
Views: 212

Re: marijuana please?

Thank you, I realize that it's probably augmentation. The Mayo neurologist who put me on the 4mg patch (started at 3 mg to get me off Mirapex along with methadone but it wasn't enough) told me that Neupro was a better alternative and would cause much less augmentation. Well that was 5 years ago. It ...
by Brenda B
Tue Jun 08, 2021 12:09 am
Forum: Prescription Medications
Topic: marijuana please?
Replies: 14
Views: 212

marijuana please?

Hi, it's been a long while since I posted but I'm kind of getting to the end of my rope and need advice. First I'll start out with: I've had RLS for 26 years, I've been on 20 different meds for RLS (some conventional, some were pretty off the wall). I've seen 17 different doctors from PAs and family...
by Brenda B
Sat Dec 19, 2020 3:53 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 2970

Re: Spinal stimulation?

I agree! Most people don't realize how destructive it is! I wish I had the last 25 years of my life back as well as all the money spent on doctors, neurologists, spine doctors, MRIs, medications and emergency room visits (not RLS but caused by it). I even lost most of the vision in one eye (the resu...
by Brenda B
Fri Dec 18, 2020 4:03 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 2970

Re: Spinal stimulation?

I have no idea, mine was from Boston Scientific out of California (but the surgeon was SD). They just run the 'wiring' up your spine a short way.
by Brenda B
Thu Dec 17, 2020 1:10 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 2970

Re: Spinal stimulation?

Thank you for your reply. I can't say that SCS has made my RLS worse but it certainly hasn't helped. I still think it has the capacity to help but they just need to figure out the right program and I don't know if they're even trying. Most people don't think RLS is a big deal. If they've even heard ...
by Brenda B
Sat Jun 20, 2020 2:14 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 2970

Re: Spinal stimulation?

I know. I've read about Dr. Ekbom. He was a smart man to have figured it out back then. Guess I'm not fond of that name either! Just doesn't sound 'mean' enough... How come all these modern day Dr's are so far behind Dr Ekbom? ; ) Thanks for your post. PS: The last few days have been so much better,...
by Brenda B
Fri Jun 19, 2020 2:06 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 2970

Re: Spinal stimulation?

Wow, you have been on so many meds! Most of the ones that you're on now, I'd never get here. It's a rural, sparely populated part of the US and the doctors here are very conservative with the medications they use. Since the government crack down on opioid use, most are afraid to prescribe them. Cann...
by Brenda B
Thu Jun 18, 2020 4:52 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 2970

Re: Spinal stimulation?

Thank you Beth for the nice long reply. I know you're right. I've never been satisfied with the care I received at Mayo. I've been there twice in the past 23 years (which isn't a lot, I know). The Dr. there seems to understand RLS but he's not a good listener, has a rather arrogant attitude and disa...
by Brenda B
Tue Jun 16, 2020 11:26 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 2970

Re: Spinal stimulation?

I wish sometimes that moving was an option but it's not. My husband and I ranch for a living, therefore we own land, have a daughter and son-in-law who work with us and honestly, I love where I live. I to have to drive 200 miles to see any neurologist but even then, it's hard to find one that knows ...
by Brenda B
Tue Jun 16, 2020 2:03 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 2970

Re: Spinal stimulation?

It's pretty much neutral. It stops certain kinds of back pain, mostly nerve, such as sciatica or neuropathy, but most of mine is probably arthritis and worn out discs. You're so right, I KNOW this has the potential to help me but no one will/can try so I'm frustrated. It's so hard to find anyone who...
by Brenda B
Tue Jun 16, 2020 3:33 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Spinal stimulation?
Replies: 37
Views: 2970

Spinal stimulation?

I browsed through the posts here but did not find any regarding using a spinal cord stimulator. I haven't visited this forum in about 5 years as I've somewhat kept my (severe) RLS under control with the Neupro Patch and methadone but this past few months have been very hard. I'm a 64 year old female...
by Brenda B
Sat Aug 05, 2006 11:54 pm
Forum: Prescription Medications
Topic: Experiences with Methadone
Replies: 131
Views: 36182

methadone problems

Hi, I'm new to methadone also, after developing terrible augmentation from 8 years worth of Mirapex. It seems to take awhile to adjust to. I'm only in my 3rd week of using it, I'm on 2.5 mgs once at night and still trying to cut down the Mirapex. At one time I was as high as 1.5 mg, now I'm down to ...