Search found 5110 matches

by badnights
Sun Jul 04, 2021 6:40 am
Forum: Physical Treatments
Topic: Light Therapy Patches
Replies: 2
Views: 158

Re: Light Therapy Patches

I had to look them up. They seem pretty hokey to me. "When you place a patch over a specific acupuncture point, that infrared light [emitted by your body] is reflected back into the body at specific light wavelengths that create beneficial changes in your cells....Each patch has different actions. F...
by badnights
Sun Jul 04, 2021 6:04 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 180
Views: 19676

Re: 1st post after 24 years of RLS

It's sad but there's no way to tell what the side effects will be until you try them. I hope the Neupro is helping and that the Butrans Monday is the beginning of a wonderful new period in your life :) :)
by badnights
Thu Jul 01, 2021 7:21 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 180
Views: 19676

Re: 1st post after 24 years of RLS

Pity rants are allowed. This is a dreadful condition we're living with (trying to live) and no one out there understands it, so rant away.

Why no swimming? It would be a crying shame to lose that precious contact with your child.
by badnights
Sat Jun 26, 2021 6:32 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 22
Views: 2591

Re: Melatonin added to the mix

legsbestill, thank you for the kind words! It has been - and still is - an adventure, that's for sure. I expect that the doctor will prescribe a form of light therapy to help me shift back toward "normal" hours. As for melatonin, I tried it a number of years ago and it didn't do anything, one way or...
by badnights
Fri Jun 25, 2021 4:13 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 120
Views: 34859

Re: Another year of relief (Low-oxalate diet)

Is your diet very salty? Maybe you are not potassium deficient, but your balance between sodium and potassium is bad? Furthermore oxalic acid likes to react with potassium and other minerals to form oxalate salts. Maybe the vegetables that you eat are high in oxalic acid, which reacts with the pota...
by badnights
Wed Jun 23, 2021 5:25 am
Forum: Augmentation
Topic: new member - transitioning from ropinirole to gabapentin
Replies: 51
Views: 9347

Re: new member - transitioning from ropinirole to gabapentin

Thanks for the update! It's always good to hear how people are doing.

Counselling can work wonders, especially if you go into it with a wide open mind (and your counsellor is a good fit for you). Good luck and enjoy what you get out of it :)
by badnights
Wed Jun 23, 2021 5:20 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 120
Views: 34859

Re: Another year of relief (Low-oxalate diet)

Thank you for this information! It certainly has me thinking. Again. How have you managed your potassium supplementation - with any doctor's advice, or totally on your own? hypokalemia (K+ <3.5 mmol/l), to a decrease in the contractility of muscles, increased excitation, disruption of excitation con...
by badnights
Wed Jun 23, 2021 5:05 am
Forum: Just Joined?
Topic: New member and need help with DAWS
Replies: 9
Views: 1934

Re: New member and need help with DAWS

I disagree with the assessment that Dr B did not offer much hope. He said the depression might be a life-long condition, not the DAWS. Depression outside of DAWS is treatable. So let's aim for that. Let's get rid of the DAWS then treat whatever depression remains. Last October you felt that the answ...
by badnights
Wed Jun 23, 2021 4:39 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 180
Views: 19676

Re: 1st post after 24 years of RLS

Well, here's a long post: First, you might not have to worry much about reducing the marijuana; marijuana and opioids have an interesting relationship, seeming (in one study that I know of) to enhance each other's effects, which theoretically should enable you to keep the dose of each lower than if ...
by badnights
Wed Jun 23, 2021 3:36 am
Forum: General Topics: RLS
Topic: Doctor near St Petersburg Florida?
Replies: 2
Views: 145

Re: Doctor near St Petersburg Florida?

I can't offhand recall anyone here mentioning a good WED/RLS doctor anywhere in Florida. The closest RLS Quality Care Center is the Emory Sleep Clinic Center in Atlanta. There is also the Vanderbilt University Medical Center in Nashville. It might be worth it for your friend to call all the QCCs (ht...
by badnights
Fri Jun 18, 2021 5:24 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 180
Views: 19676

Re: 1st post after 24 years of RLS

You don't really need to understand all of the dipyridamole stuff - - I can't remember it once I've written it down, it leaks right out of my brain. The important thing to remember is that a few members here have tried it, and it worked well for some and not at all for others. Those for whom it work...
by badnights
Tue Jun 15, 2021 6:02 am
Forum: Physical Treatments
Topic: Massager
Replies: 21
Views: 5691

Re: Massager

I get it. Thank you.
Too bad.
by badnights
Tue Jun 15, 2021 6:00 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 120
Views: 34859

Re: Another year of relief (Low-oxalate diet)

Wow, Deb! Thanks for making us aware of the benefits it has for you. I was motivated enough after reading your earlier post to re-print lists of low and high oxalate foods. But again, just like the other times I've thought I would try a low/no-oxylate diet, I changed my mind, thinking I can't avoid ...
by badnights
Tue Jun 15, 2021 5:48 am
Forum: Prescription Medications
Topic: marijuana please?
Replies: 14
Views: 411

Re: marijuana please?

debbluebird on this forum has recently had a spinal stimulator implanted - you could connect with her about it. I believe its primary purpose is to help Deb's RLS/WED, but she has other problems too. She could tell you how she got it, if her insurance paid for any of it, and what settings they've fo...
by badnights
Sun Jun 13, 2021 2:03 am
Forum: Just Joined?
Topic: A silent sufferer!
Replies: 6
Views: 184

Re: A silent sufferer!

Yankiwi makes a good point. When we try to remove all our symptoms, they seem to get worse, just enough to make us need more meds; then if we again try to take enough meds to cover them, they get worse again. Whereas if we just tolerate some level of symptoms - mild evening symptoms maybe - the symp...