Search found 5047 matches

by badnights
Thu Apr 29, 2021 6:14 am
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 47
Views: 3772

Re: Spinal Stimulator

Like I said before, it wasn't an easy process of trial and error, but it has been worth it. I hope my experience will help others. I am not the only one trying this option to help RLS. My Rep has told me that there are others with RLS who have a spinal stimulator.
Thank you for this, Deb.
by badnights
Thu Apr 29, 2021 6:08 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 156
Views: 12336

Re: 1st post after 24 years of RLS

The sh** she was saying to me (later which she profusely apologized for) would make anyone with RLS lose their damn mind I somehow managed to change her mind That kind of stuff is maddening. Absolutely maddening. You somehow managed to make her see things clearly (clearly enough to do you some good...
by badnights
Thu Apr 29, 2021 5:03 am
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 15
Views: 584

Re: Emory Healthcare in Atlanta - Anyone Use?

SleepyBhamster wrote:
Wed Apr 28, 2021 1:44 pm
Good luck with that, Rick. And thanks, Beth, for the head's up on the infusions. I've been having a week from hell with amoxicillin rash head-to-toe, so will make arrangements for a new blood test once I come out of this.
yikes, that sounds dreadful! Good luck
by badnights
Thu Apr 29, 2021 5:01 am
Forum: Prescription Medications
Topic: Medication Timing
Replies: 3
Views: 174

Re: Medication Timing

I've been taking pramipexole, 0.125 mg, as needed. Since achieving a ferritin level of 100, I have only needed to take medication intermittently. The problem I've had is that by the time I have restless legs, it is usually around bedtime and the med takes a couple of hours to kick in. Then I can't ...
by badnights
Thu Apr 29, 2021 4:55 am
Forum: Prescription Medications
Topic: Follow up and Requip questions
Replies: 30
Views: 11150

Re: Follow up and Requip questions

I had bad reactions to Requip twice. The first time was 4 years ago when I first moved to South Dakota; I went to the doctor to set up care and she told me I was taking too high a dose of Mirapex and she would like to try Requip. I took one dose and I was like having a panic attack; I looked up the...
by badnights
Sat Apr 24, 2021 6:54 am
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 15
Views: 584

Re: Emory Healthcare in Atlanta - Anyone Use?

I am only now starting to feel hints of RLS again--but I am going through a stressful time (allergic reaction to antibiotics) so am not at all sure whether this is the iron wearing off or if it's just the high anxiety I'm going through. Just a headsup, it's probably the iron wearing off, it's been ...
by badnights
Sat Apr 24, 2021 6:40 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy and RLS
Replies: 6
Views: 17256

Re: Pregnancy and RLS - resources

Not new, but collecting into one place: A paper entitled "Consensus clinical practice guidelines for the diagnosis and treatment of restless legs syndrome/Willis-Ekbom disease during pregnancy and lactation" at http://scholar.google.ca/scholar_url?ur ... i=scholarr A Foundation brochure called "Preg...
by badnights
Sat Apr 24, 2021 5:46 am
Forum: Augmentation
Topic: RLS in Parkinson's patients
Replies: 14
Views: 754

Re: RLS in Parkinson's patients

was on Neupro patch for 18 months until Augmentation-weaned off 2 weeks ago, now on Gabapentin 400mg with no effect on RLS, makes him very dopey. Targin 10mg 2 tablets about 2-3 hours after Gabapentin has not helped either. He has been on Targin for past 2 years. Your husband could still be feeling...
by badnights
Thu Apr 22, 2021 5:39 am
Forum: Augmentation
Topic: Augmentation or weak Kratom??
Replies: 20
Views: 1839

Re: Augmentation or weak Kratom??

Sorry Ken I had forgotten about that.

I hear you about the unpredictability of it. I can almost never figure out for sure why it's worse some nights.
by badnights
Thu Apr 22, 2021 5:35 am
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 47
Views: 3772

Re: Spinal Stimulator

I don't have a spinal injury.
I didn't mean a traumatic blunt-force type of injury. The osteoarthritis is a type of injury. I'm so glad it's effective for you, hopefully there will be way more good nights than bad.
by badnights
Thu Apr 22, 2021 5:20 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 39
Views: 2069

Re: going "cold turkey"

I wish I had checked in sooner! I hope this information is still useful although you've already talked to the neurology office. The first 2 days on pram. I was totally free of symptoms all day and all night. The most sleep I've had in months I might add. Well, then came day 3 or 4, my legs started f...
by badnights
Thu Apr 22, 2021 4:48 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 156
Views: 12336

Re: 1st post after 24 years of RLS

. ...unbeknownst to me I could have gotten in as early as January but I'll live in the present and not look to lay blame . An admirable stance, to be so equanimical about it. Looking forward. You will probably need to stay completely away form DAs for at least a year. \I'm glad you're - oops - did y...
by badnights
Thu Apr 22, 2021 4:42 am
Forum: Just Joined?
Topic: Venous Insufficiency
Replies: 2
Views: 159

Re: Venous Insufficiency

I've made a number of past posts on this topic. Search "Varicose" as well as "venous insufficiency" for wider results. I think what it comes down to is, there is a subset of people with WED/RLS whose WED/RLS symptoms come from venous insufficiency, and these symptoms will go away after the surgery. ...
by badnights
Thu Apr 22, 2021 4:34 am
Forum: Just Joined?
Topic: RLS behind knee caps New to forum
Replies: 6
Views: 281

Re: RLS behind knee caps New to forum

I get my WED/RLS sensations mostly in/near my joints. My knee sensations are kind of behind the upper part of the patella, somewhere in there - - the lowermost part of the thigh bone too... Anyway,as Holland said, variations are common, and the fact that pramipexole helped you suggests the diagnosis...
by badnights
Mon Apr 19, 2021 7:58 am
Forum: Augmentation
Topic: new member - transitioning from ropinirole to gabapentin
Replies: 49
Views: 5716

Re: new member - transitioning from ropinirole to gabapentin

Getting off of ropinirole will consume all your time and energy for a number of days. It is best to clear your schedule, prepare some meals ahead, and expect nothing of yourself during the time your body is getting used to having no ropinirole fed to it. It can be a brutal adjustment - basically, go...