Search found 5053 matches

by badnights
Sun May 09, 2021 8:32 pm
Forum: Just Joined?
Topic: Can Adult ADHD cause RLS
Replies: 4
Views: 212

Re: Can Adult ADHD cause RLS

I am currently taking Ropinirole - 3.5mg per day. The maximum RLS dose is 4 mg per day. I have been taking Ropinirole for over 15 years ... so I am worried about augmentation as well as the fact that I am approaching the daily limit for RLS treatment. Tom, the dose you are taking, while ok as far a...
by badnights
Sun May 09, 2021 8:14 pm
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 43
Views: 2223

Re: going "cold turkey"

I'm glad the surgeries went well. And fantastic, that the card worked and the anesthesiologist adjusted appropriately. I have had nothing but good experiences informing anesthesiologists that way. Oh yikes, tachycardia! I am about to put on a Holter monitor, they just called me to schedule it. I hop...
by badnights
Sun May 09, 2021 6:05 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 43
Views: 2223

Re: going "cold turkey"

I also let her know about the surgery tomorrow and I will be non-weight-bearing for a while and so will be unable to "walk it off". I suggested I would like to add .125 mg at suppertime for a week. She said that would be alright and she hoped my surgeon would be giving me pain killers. Just today I...
by badnights
Sun May 09, 2021 5:32 am
Forum: Just Joined?
Topic: New Member Augmentation?
Replies: 14
Views: 553

Re: New Member Augmentation?

Definitely see Dr B. He will help you understand what's going on, and he will have a plan as well as alternate plans for how to deal with it.
by badnights
Sun May 09, 2021 12:19 am
Forum: Just Joined?
Topic: Need help for mom
Replies: 22
Views: 3846

Re: Need help for mom

Tammy, thanks for letting us know. I am so very sorry about the way your mom went. I just lost my mother, almost identically. She had Alzheimer's and had to be moved to a home in 2019. The lockdown was extremely hard on her, mentally and emotionally - - but also physically because the home she was i...
by badnights
Sat May 08, 2021 6:06 pm
Forum: General Topics: RLS
Topic: Should the name RLS be changed?
Replies: 5
Views: 286

Re: Should the name RLS be changed?

I always use WED/RLS. The disease has two names and each name is valid. The Foundation did change its name in 2013, after the International RLS Study Group made a recommendation that the name of the disease be changed to Willis-Ekbom disease. In my estimation, the change would have taken a minimum o...
by badnights
Thu Apr 29, 2021 6:14 am
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 47
Views: 3996

Re: Spinal Stimulator

Like I said before, it wasn't an easy process of trial and error, but it has been worth it. I hope my experience will help others. I am not the only one trying this option to help RLS. My Rep has told me that there are others with RLS who have a spinal stimulator.
Thank you for this, Deb.
by badnights
Thu Apr 29, 2021 6:08 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 156
Views: 12481

Re: 1st post after 24 years of RLS

The sh** she was saying to me (later which she profusely apologized for) would make anyone with RLS lose their damn mind I somehow managed to change her mind That kind of stuff is maddening. Absolutely maddening. You somehow managed to make her see things clearly (clearly enough to do you some good...
by badnights
Thu Apr 29, 2021 5:03 am
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 15
Views: 634

Re: Emory Healthcare in Atlanta - Anyone Use?

SleepyBhamster wrote:
Wed Apr 28, 2021 1:44 pm
Good luck with that, Rick. And thanks, Beth, for the head's up on the infusions. I've been having a week from hell with amoxicillin rash head-to-toe, so will make arrangements for a new blood test once I come out of this.
yikes, that sounds dreadful! Good luck
by badnights
Thu Apr 29, 2021 5:01 am
Forum: Prescription Medications
Topic: Medication Timing
Replies: 3
Views: 197

Re: Medication Timing

I've been taking pramipexole, 0.125 mg, as needed. Since achieving a ferritin level of 100, I have only needed to take medication intermittently. The problem I've had is that by the time I have restless legs, it is usually around bedtime and the med takes a couple of hours to kick in. Then I can't ...
by badnights
Thu Apr 29, 2021 4:55 am
Forum: Prescription Medications
Topic: Follow up and Requip questions
Replies: 30
Views: 11187

Re: Follow up and Requip questions

I had bad reactions to Requip twice. The first time was 4 years ago when I first moved to South Dakota; I went to the doctor to set up care and she told me I was taking too high a dose of Mirapex and she would like to try Requip. I took one dose and I was like having a panic attack; I looked up the...
by badnights
Sat Apr 24, 2021 6:54 am
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 15
Views: 634

Re: Emory Healthcare in Atlanta - Anyone Use?

I am only now starting to feel hints of RLS again--but I am going through a stressful time (allergic reaction to antibiotics) so am not at all sure whether this is the iron wearing off or if it's just the high anxiety I'm going through. Just a headsup, it's probably the iron wearing off, it's been ...
by badnights
Sat Apr 24, 2021 6:40 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy and RLS
Replies: 6
Views: 17348

Re: Pregnancy and RLS - resources

Not new, but collecting into one place: A paper entitled "Consensus clinical practice guidelines for the diagnosis and treatment of restless legs syndrome/Willis-Ekbom disease during pregnancy and lactation" at http://scholar.google.ca/scholar_url?ur ... i=scholarr A Foundation brochure called "Preg...
by badnights
Sat Apr 24, 2021 5:46 am
Forum: Augmentation
Topic: RLS in Parkinson's patients
Replies: 15
Views: 1123

Re: RLS in Parkinson's patients

was on Neupro patch for 18 months until Augmentation-weaned off 2 weeks ago, now on Gabapentin 400mg with no effect on RLS, makes him very dopey. Targin 10mg 2 tablets about 2-3 hours after Gabapentin has not helped either. He has been on Targin for past 2 years. Your husband could still be feeling...
by badnights
Thu Apr 22, 2021 5:39 am
Forum: Augmentation
Topic: Augmentation or weak Kratom??
Replies: 20
Views: 1890

Re: Augmentation or weak Kratom??

Sorry Ken I had forgotten about that.

I hear you about the unpredictability of it. I can almost never figure out for sure why it's worse some nights.