Search found 192 matches

by Stainless
Tue May 11, 2021 2:35 pm
Forum: Prescription Medications
Topic: Second Opinion
Replies: 1
Views: 56

Second Opinion

I saw another neurologist in my plan. Articulate, knew more about RLS than the guy I’m seeing, listened to what I had to say, but his only advise was seek out a specialist. He seemed to have no interest in taking me on as a patient. Both neurologist told me their hands are tied as to what they can p...
by Stainless
Sat Apr 24, 2021 5:48 pm
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 15
Views: 634

Re: Emory Healthcare in Atlanta - Anyone Use?

Sleep, thx for the response. Sounds like we have ended up in the same place by different paths. I think getting off clonazepam compounded my issues resulting in getting back on and adding Lyrica. I think I still have side effects more than four years later one being my RLS is more painful. My plan i...
by Stainless
Fri Apr 16, 2021 9:01 pm
Forum: Prescription Medications
Topic: Pramipexole versus Lyrica/pregabalin? Or gabapentin?
Replies: 8
Views: 359

Re: Pramipexole versus Lyrica/pregabalin? Or gabapentin?

Pregabalin is generic now or made under license. What I take it made by NOZADOZ. Pharmacist told me ask for it. When I did Dr. & office did not know. First time it was about 10% off. This time it was %80 less. No clue why. I asked pharmacist and she just shrugged.
by Stainless
Wed Apr 14, 2021 10:46 am
Forum: Prescription Medications
Topic: Tramadol Experience
Replies: 9
Views: 368

Re: Tramadol Experience

Thanks Yankiwi. I think Tramadol is in my rear view mirror too.
by Stainless
Wed Apr 14, 2021 12:43 am
Forum: Prescription Medications
Topic: Tramadol Experience
Replies: 9
Views: 368

Re: Tramadol Experience

Thx for the response QyX. I’m getting significant and sometimes severe pain particularly during sleep even on Clonazepam and Lyrica. I wake up like in pain during the night and the next morning. Sometimes it’s like needles, sometimes like running a very long distance and sometimes it’s like getting ...
by Stainless
Wed Apr 14, 2021 12:09 am
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 15
Views: 634

Re: Emory Healthcare in Atlanta - Anyone Use?

Sleepy, Thx for the response. Can you tell us about your IV Iron experience? Did you go from severe RLS / PLM to mild or none? How many treatments, how long until results. Your input would be great. Rick
by Stainless
Sat Apr 03, 2021 4:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Stressless Chairs
Replies: 12
Views: 810

Re: Stressless Chairs

Over 20 years ago I was walking through a big mall. My legs were going crazy which was not the norm but did happen. I went into a Sharper Image and sat on a Panasonic Massage Recliner. Instantly my legs went silent. When I got home I shopped around, found a better price and ordered it. It never stop...
by Stainless
Sat Apr 03, 2021 4:31 pm
Forum: Just Joined?
Topic: RLS and the COVID Vaccine
Replies: 7
Views: 488

Re: RLS and the COVID Vaccine

I had my first shot of Moderna two weeks ago. My legs lit up for the rest of the day but besides a sore arm it subsided in a few hours.
by Stainless
Sat Apr 03, 2021 3:47 pm
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 15
Views: 634

Re: Emory Healthcare in Atlanta - Anyone Use?

That’s good to know. A trip to Maryland might be interesting. Never been there. Thanks Rust.

Edited by Moderators 2021/05/09
by Stainless
Fri Apr 02, 2021 1:43 pm
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 15
Views: 634

Re: Emory Healthcare in Atlanta - Anyone Use?

Are the Foundation Quality Care Centers doing IV Iron? Does anyone know of a clinic near Florida that does? My neurologist literally threw up his hands yesterday and then prescribed a "sleeping pill" Flurazepam. I thought that term literally died in 1960. I get home and research it and find it is an...
by Stainless
Thu Apr 01, 2021 3:38 pm
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 15
Views: 634

Emory Healthcare in Atlanta - Anyone Use?

Has anyone used this Sleep Center. It’s one of the RLS Foundation’s Quality Care Centers. I’m a day’s drive away but I am desperate. I just don’t want to start from square 1. I’d like to get a hotel, stay a few days, do a sleep study or whatever. I can show up with decades of treatments tried, blood...
by Stainless
Mon Mar 29, 2021 2:32 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Stressless Chairs
Replies: 12
Views: 810

Re: Stressless Chairs

We have a room full of them. The first one we've had for well over 10 years and ordered a new one to replace it. It's not ready to go to the curb but will go elsewhere in the house. I like them a lot, better than anything else we could find, but we have noticed they don't give a lot of support to th...
by Stainless
Sat Mar 27, 2021 2:25 pm
Forum: Prescription Medications
Topic: Iron Infusion - When Will Insurance Pay?
Replies: 10
Views: 550

Re: Iron Infusion - When Will Insurance Pay?

Consensus for oral iron I s 2 x 325 mg Ferris Sulfate with Vitamin C on an empty stomach. I do it 4 or 5 times a week and things are just getting worse. My hematologist will not consider IV unless anemic. I’m hoping it gets more accepted and somebody in Florida will provide. Best of Luck
by Stainless
Sat Mar 27, 2021 2:14 pm
Forum: Prescription Medications
Topic: Tramadol Experience
Replies: 9
Views: 368

Tramadol Experience

My neurologist gave me a script for 50 or 100 mg of Tramadol. I tried it a few nights, didn’t feel any different except some insomnia and all day mild headache that wouldn’t go away with Tylenol or Advil. One time the headache lasted two days. I only tried it 4 times, 3 at the low dose. He added thi...
by Stainless
Sat Mar 27, 2021 1:43 pm
Forum: Physical Treatments
Topic: Healy Device
Replies: 8
Views: 1462

Re: Healy Device

My wife bought a Haely device. Top of the line that apparently allows changing frequency. I don’t put much stock in cure all devices but my wife seeks them out. She is treating arthritis and after a few weeks says she thinks it’s doing something. She put it on my legs one evening and I think set it ...