Search found 14195 matches

by ViewsAskew
Wed Jun 16, 2021 11:12 pm
Forum: Augmentation
Topic: After augmentation
Replies: 3
Views: 63

Re: After augmentation

Does anyone know if once you recover from augmentation are your RLS symthoms prepanently worse than they were before you started the drug? Said another way, can these drugs cause permanet damage and permanently make your symthoms worse than they ever were? Thanks I am another here who found her sym...
by ViewsAskew
Wed Jun 16, 2021 11:10 pm
Forum: Prescription Medications
Topic: Latest struggles with treatment
Replies: 11
Views: 490

Re: Latest struggles with treatment

"He was opinionated, talked a lot, and definitely thought highly of himself" My RLS has humbled my neurologist who started off like your doc. Now all the can do is scroll down his iPhone and look for meds and dosages. Opioid nightmare has scared all docs. Especially if they are in Florida who model...
by ViewsAskew
Wed Jun 16, 2021 11:07 pm
Forum: Just Joined?
Topic: New member and need help with DAWS
Replies: 8
Views: 1072

Re: New member and need help with DAWS

I have contacted him, both last fall and yesterday. Both times he responded immediately. He has not given me much hope. In fact I will post his letter here: As I told you earlier, DAWS is a very poorly understood condition. However, from my experience (which is likely as much as any other RLS speci...
by ViewsAskew
Wed Jun 16, 2021 11:04 pm
Forum: Physical Treatments
Topic: Massager
Replies: 21
Views: 3926

Re: Massager

It was not able to control symptoms over the long-term. I provided temporary relief, but it isn’t sufficient enough to fall back asleep for very long. 20-30 minutes max If I have breakthrough symptoms, I can use it for short-term relief until the additional medication is needed. This rarely happens...
by ViewsAskew
Tue Jun 08, 2021 7:38 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 16
Views: 1284

Re: Melatonin added to the mix

It's wonderful to hear that melatonin has proved so successful. I had always understood that melatonin could aggravate symptoms (as per my previous) post. Perhaps 'could ' being the operative word and clearly we should never rule anything out. I take note of Views dosage of 2mg divided into 4 piece...
by ViewsAskew
Tue Jun 08, 2021 2:52 am
Forum: Prescription Medications
Topic: marijuana please?
Replies: 12
Views: 189

Re: marijuana please?

Hi Brenda - just wanted to say a quick hello. I hear you on the rural thing (used to live 2 miles south of a town of 600 ppl) and trying SO many medications. I finally just started flying to California to see one of the well-known RLS docs. It was worth it to me. Eventually I just moved to be close ...
by ViewsAskew
Mon Jun 07, 2021 9:15 pm
Forum: Prescription Medications
Topic: Latest struggles with treatment
Replies: 11
Views: 490

Re: Latest struggles with treatment

badnights wrote:
Mon Jun 07, 2021 4:33 am
lol well I'm glad no matter the reason! Sometimes a bit of anger is good.
Indeed!
by ViewsAskew
Mon Jun 07, 2021 9:15 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 16
Views: 1284

Re: Melatonin added to the mix

Beth, thanks for all the details. I have an appointment with an insomnia specialist in 10 days and expect to start on a similar journey. I have had terrible issues with insomnia and poor quality sleep ever since I was improperly send to the behavioral health hospital (aka psyc prison) eighteen mont...
by ViewsAskew
Mon Jun 07, 2021 1:55 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 16
Views: 1284

Re: Melatonin added to the mix

Wow. That is incredible. I have had a much less dramatic experience by taking even smaller amounts of melatonin. I, also, have stopped the sliding (and, like you, it went on for over ten years). When I have to increase my methadone dose, not sure that will be the case, but so far I am keeping it low...
by ViewsAskew
Mon Jun 07, 2021 1:38 am
Forum: Prescription Medications
Topic: Latest struggles with treatment
Replies: 11
Views: 490

Re: Latest struggles with treatment

I think this was much more about the doc than about me. But, as Betty said, I fought for it, which cannot be discounted. We might not always get what we need, but we certainly won't if we don't stand out ground. It was TOTALLY about both of you. He would never have made that remarkable turnaround (...
by ViewsAskew
Fri Jun 04, 2021 6:59 pm
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 86
Views: 36070

Re: RLS, Depression and Anti-depressants

As I just (re-)started Lexapro today, I wanted to take a look at the brochure mentioned, but the link doesn't work. There is a good brochure put out by the RLS Foundation on depression and RLS. It is here: http://www.rls.org/Document.Doc?&id=75 Tried Wellbutrin for 4 days and was a zombie: couldn't...
by ViewsAskew
Thu Jun 03, 2021 9:32 pm
Forum: General Topics: RLS
Topic: Exploding Head Syndrome Gaba Withdrawal
Replies: 6
Views: 226

Re: Exploding Head Syndrome Gaba Withdrawal

I have heard of it...but not had it. Hope that it resolves soon!
by ViewsAskew
Mon May 17, 2021 7:17 am
Forum: Augmentation
Topic: Step by Step - Augmentation & Requip withdrawal
Replies: 5
Views: 1094

Re: Step by Step - Augmentation & Requip withdrawal

Hi RustSmith and ViewsAskew, My PCP was very hesitant, but in the end did prescribe me a low dose of methadone. I started with 2.5mgs, but after 2 hours, my RLS symptoms were still not manageable. After taking another 2.5mgs, my symptoms were all but gone. I have since reduced my nightly dose of Re...
by ViewsAskew
Wed May 12, 2021 1:22 am
Forum: Prescription Medications
Topic: Second Opinion
Replies: 2
Views: 278

Re: Second Opinion

So frustrating.
by ViewsAskew
Fri May 07, 2021 6:33 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Potassium Citrate
Replies: 45
Views: 8945

Re: Potassium Citrate

I tried Potassium Citrate, and it didn't do a thing for my restless legs. However, it did make my urine more alkaline, which for an 80 year old mean less trips to the bathroom at night. Now that I finished my experiment with potassium citrate for restless legs, I found I could reduce it to half the...