Search found 14182 matches

by ViewsAskew
Wed May 12, 2021 1:22 am
Forum: Prescription Medications
Topic: Second Opinion
Replies: 1
Views: 56

Re: Second Opinion

So frustrating.
by ViewsAskew
Fri May 07, 2021 6:33 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Potassium Citrate
Replies: 45
Views: 8270

Re: Potassium Citrate

I tried Potassium Citrate, and it didn't do a thing for my restless legs. However, it did make my urine more alkaline, which for an 80 year old mean less trips to the bathroom at night. Now that I finished my experiment with potassium citrate for restless legs, I found I could reduce it to half the...
by ViewsAskew
Fri May 07, 2021 6:33 pm
Forum: General Topics: RLS
Topic: Sore thighs a symptom of RLS?
Replies: 4
Views: 208

Re: Sore thighs a symptom of RLS?

I never have pain with symptoms, so very hard for me to give any help. Mine are always clearly VERY electrical in nature, not so much a buzzing, but a build up that is fast and burst with a movement.

That novacaine ALWAYS makes me feel awful, though. Very cold, very irritable, and very tense.
by ViewsAskew
Fri May 07, 2021 6:31 pm
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 43
Views: 2223

Re: going "cold turkey"

Tomorrow is my surgery day. I'm having 2 surgeries - first the podiatrist is going to remove a bone in my left foot to relieve the pain of a tailor's bunion. Then the surgeon who did my sleeve gastrectomy 18 months ago is going to excise 2-4 hydradenitis cysts. And it is a day surgery and I will be...
by ViewsAskew
Fri May 07, 2021 6:29 pm
Forum: Prescription Medications
Topic: Tramadol Experience
Replies: 9
Views: 368

Re: Tramadol Experience

My neurologist in Florida won’t prescribe any opioids for RLS saying they are just too bad for you, too addictive, blah, blah, blah. I moved from another state that did give me Tramadol and it worked for me. There aren’t any other drugs I can take that are on the market now for RLS that work for me...
by ViewsAskew
Fri May 07, 2021 6:26 pm
Forum: Prescription Medications
Topic: Latest struggles with treatment
Replies: 5
Views: 151

Re: Latest struggles with treatment

I'm happy to read that you were able to bring the doctor around to your side by giving him the article. Honestly, that part felt AWESOME! I just hope he teaches someone else, too, because he is technically retired and only works one day a week. BUT, as long as he practices, he will look out for peo...
by ViewsAskew
Fri May 07, 2021 6:25 pm
Forum: Augmentation
Topic: Pit of despair.
Replies: 9
Views: 492

Re: Pit of despair.

Polar Bear wrote:
Fri May 07, 2021 1:36 pm
frickets - It's wonderful that you are still on track to come off the pramipexole. You have a plan -- Keep hanging on.....
What she said!
by ViewsAskew
Fri May 07, 2021 6:08 pm
Forum: Augmentation
Topic: RLS in Parkinson's patients
Replies: 15
Views: 1123

Re: RLS in Parkinson's patients

Welcome, Sleepeasy. I don't know the answers to your questions about augmentation in PD patients, unfortunately. Hopefully another person will.

In terms of the electrical pulsing, as Betty noted, it sounds more like neuropathy than RLS/WED.
by ViewsAskew
Wed May 05, 2021 9:10 pm
Forum: Prescription Medications
Topic: Pramipexole versus Lyrica/pregabalin? Or gabapentin?
Replies: 8
Views: 359

Re: Pramipexole versus Lyrica/pregabalin? Or gabapentin?

I have tried gabapentin and pregabalin. Also Horizant. They did not work for me. The only med that works for me is pramipexole (unfortunately). I wish I could take something else. I desperately want off of the pramipexole because of the life altering side effects. Best wishes, BBI I am another who ...
by ViewsAskew
Wed May 05, 2021 7:06 pm
Forum: Augmentation
Topic: Step by Step - Augmentation & Requip withdrawal
Replies: 2
Views: 192

Re: Step by Step - Augmentation & Requip withdrawal

Excellent advice from Rustsmith. I would add one thing. My PCP started me on 10 mg of methadone and it resolved ALL withdrawal symptoms. I wish we would have started with 2.5 or 5, because it's much better to come up to the minimum needed to know your baseline. About two weeks after you stop the DA,...
by ViewsAskew
Wed May 05, 2021 5:55 pm
Forum: Prescription Medications
Topic: Latest struggles with treatment
Replies: 5
Views: 151

Re: Latest struggles with treatment

Yankiwi wrote:
Tue May 04, 2021 4:32 am
What an amazing story! Well done to you and the doc.
I think this was much more about the doc than about me. But, as Betty said, I fought for it, which cannot be discounted. We might not always get what we need, but we certainly won't if we don't stand out ground.
by ViewsAskew
Mon May 03, 2021 7:18 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 156
Views: 12481

Re: 1st post after 24 years of RLS

So it's a good thing that the one specialist who is still trying to help me sought the advice of a mental health expert from the Ottawa Hospital as opposed to the Royal Ottawa mental health center This was for my Clonazepam taper , and a full assessment was involved This now trumps the Royal's asse...
by ViewsAskew
Mon May 03, 2021 7:16 pm
Forum: General Topics: RLS
Topic: Trying to sell RLS/WED as a radio program topic
Replies: 3
Views: 272

Re: Trying to sell RLS/WED as a radio program topic

Good heavens. I have nothing to help, but maybe the Foundation has stats you could use.
by ViewsAskew
Mon May 03, 2021 7:15 pm
Forum: Just Joined?
Topic: New Member Augmentation?
Replies: 14
Views: 553

Re: New Member Augmentation?

Thanks again for the good info. I went to a new Neurologist today. I don't have a lot of choices in my area in Sumter County Florida. Although slightly better I feel this guy does not really understand RLS either. He has ordered the Ferritin test along with B12, B6, glucose, folate, TSH Vitamin D, ...
by ViewsAskew
Mon May 03, 2021 7:11 pm
Forum: Augmentation
Topic: Iron Infusion - decreasing dopamine agonist
Replies: 2
Views: 288

Re: Iron Infusion - decreasing dopamine agonist

Hello RLS community, First off, I want to say "thank you" for being a part of this community that has already proved to be an invaluable resource for me and others. I have an Injectafer infusion scheduled tomorrow and am thrilled at the prospect of a decrease in RLS symptoms in augmentation. I have...