new member - transitioning from ropinirole to gabapentin

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Polar Bear
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Re: new member - transitioning from ropinirole to gabapentin

Post by Polar Bear »

Please do be careful of your ropinerole dose. The max is considered to be 1 mg daily. You recently went from 1mg to 1.25mg and are now at 1.5mg you are at 50% over max - and still suffering RLS symptoms. I think you need to reconsider whether you should be taking ropinerole.
Bearing in mind that you have already previously augmented on 1mg ropinerole.
Betty
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stjohnh
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Re: new member - transitioning from ropinirole to gabapentin

Post by stjohnh »

Polar Bear wrote:
Wed Mar 24, 2021 12:01 pm
Please do be careful of your ropinerole dose. The max is considered to be 1 mg daily. You recently went from 1mg to 1.25mg and are now at 1.5mg you are at 50% over max - and still suffering RLS symptoms. I think you need to reconsider whether you should be taking ropinerole.
Bearing in mind that you have already previously augmented on 1mg ropinerole.
I agree with Betty (Polar Bear). Sounds like you are already augmenting again. Time to get off the ropinerole.
Blessings,
Holland

ViewsAskew
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Re: new member - transitioning from ropinirole to gabapentin

Post by ViewsAskew »

Agreed with both of the above. That is a high dose of ropinerole given what we know today (vs 15 yrs ago when it was approved).
Ann - Take what you need, leave the rest

Managing Your RLS

Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.

bhud
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Joined: Tue Oct 20, 2020 9:43 pm

Re: new member - transitioning from ropinirole to gabapentin

Post by bhud »

I took 1.5 mg of Ropinirole again tonight. I got about 5 hours sleep last night. I’ll drop back to 1 mg tomorrow, Saturday night. Doctor appt on March 30 so just doing what I can to get sleep so I can function. Getting busy with work so I don’t have option to sleep at odd times like 6 am to 10am. Back in November and December I could do that when I was reducing dosage of Ropinirole.

badnights
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Re: new member - transitioning from ropinirole to gabapentin

Post by badnights »

Getting off of ropinirole will consume all your time and energy for a number of days. It is best to clear your schedule, prepare some meals ahead, and expect nothing of yourself during the time your body is getting used to having no ropinirole fed to it. It can be a brutal adjustment - basically, going without any sleep at all for one to three nights, and very little sleep for a few days after that, all the while experiencing pronounced symptoms (and you know what that's like!).

Despite that, it will be the best thing you've ever done for yourself if you do it. Best is if your doctor will give you a prescription for a couple of weeks of a potent opioid to get you through it humanely.
Beth - Wishing you a restful sleep tonight
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bhud
Posts: 19
Joined: Tue Oct 20, 2020 9:43 pm

Re: new member - transitioning from ropinirole to gabapentin

Post by bhud »

Once again it has been several months since my last post. It is helpful for me to capture my thoughts and current status. I welcome any input but I don't have a question in this post just an update. Thanks again to RLS Foundation for providing this forum and to everyone who has given me advice along this continuing journey.

In April I started taking 1.25 mg of ropinirole with .5 mg of clonazepam. Through trial and error I have found that taking all the meds at the same time and at the same time each night is the most effective approach for me. I take them at 9 pm and then lay down around 9:30 to read or play a word game until I get so tried I cannot continue. This takes between 30 minutes to 1 hour most nights. Most nights I am able to sleep until 6 to 7 am giving me at least 7 hours of sleep. I also try to avoid sitting for more than 45 minutes. We drove to Florida for a vacation and I drove over 10 hours with just one stop. That was a Big mistake and it took me almost a week to recover and get back on a good sleeping routine.

I meet with my neurologist every 3 months to touch base but can request appointment sooner if meds stop working. If I start having afternoon symptoms or am unable to sleep on these meds, the next step is using opioids. My doctor is comfortable using them if necessary and has several patients who have been using them for years. I am surprised the 1.25 mg of ropinirole with .5 mg of clonazepam is working but thankful for the relief. This summer I may try to reduce dosage of ropinirole to 1 mg but hesitant to try it now as my work/travel schedule is busy.

I am also meeting with a counselor today. Not really expecting this to resolve my rls. I have put off meeting with a counselor for several years but I know I need to improve the way I communicate with my wife and the way I deal with stress. We just celebrated our 31st wedding anniversary and I don't want to coast into our next 30 years together. 8)

badnights
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Re: new member - transitioning from ropinirole to gabapentin

Post by badnights »

Thanks for the update! It's always good to hear how people are doing.

Counselling can work wonders, especially if you go into it with a wide open mind (and your counsellor is a good fit for you). Good luck and enjoy what you get out of it :)
Beth - Wishing you a restful sleep tonight
Click for info on WED/RLS AUGMENTATION & IRON
I am a volunteer moderator. My posts are not medical advice. My posts do not reflect RLS Foundation opinion.

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