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by badnights
Tue Mar 31, 2020 7:39 am
Forum: Physical Treatments
Topic: What’s working for me
Replies: 23
Views: 1721

Re: What’s working for me

Yes, your initial awakenings were probably caused by the higher dose of kratom. But the awakenings are probably being exacerbated by the diphenhydramine. It is very true that medications affect everyone differently but there are some things that seem to hold for everyone. One is that everyone with R...
by badnights
Tue Mar 31, 2020 7:16 am
Forum: Just Joined?
Topic: Hello
Replies: 4
Views: 58

Re: Hello

Hi and welcome! stjohnh has some good questions for you whic I am curious to see the answers to. Are you saying that you're beginning to get RLS/WED again since dropping your daily dose of notriptyline? That's interesting because usually medications like nortriptyline don't help RLS/WED at all. What...
by badnights
Tue Mar 31, 2020 7:09 am
Forum: General Topics: RLS/WED
Topic: 54 years Dealing with RLS
Replies: 7
Views: 65

Re: 54 years Dealing with RLS

So I will keep experimenting and thank you all for your warm welcomes'.. It really means a lot. I feel like I have people, a team. Your diet experiments are perfect! I hope it makes a noticeable difference in your life. Be patient, the improvements are gradual over months. And yes, you've got a tea...
by badnights
Mon Mar 30, 2020 5:54 am
Forum: General Topics: RLS/WED
Topic: 54 years Dealing with RLS
Replies: 7
Views: 65

Re: 54 years Dealing with RLS

Hi Robin. Welcome to the community here. I like your "long-winded" intro - I feel like I know you a bit now. You've had an exceptionally bad case of WED/RLS all your life - and if I'm not mistaken, there's something else going on as well. I'm glad you found a specialist who knew enough to ...
by badnights
Sun Mar 29, 2020 6:01 pm
Forum: Physical Treatments
Topic: What’s working for me
Replies: 23
Views: 1721

Re: What’s working for me

Yup. Like Holland said. Usually the stuff with "PM" on it - the stuff that makes normal people drowsy - has diphenhydramine in it and will make our legs go nuts. As your intake of the opioid-like kratom increases, it might be having an alerting effect, just like an actual opioid would. Tha...
by badnights
Sun Mar 29, 2020 6:45 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 121
Views: 5285

Re: Cannabis

wow. I thought you'd tried everything. Just goes to show us that giving up is always a bad policy. I have mentioned here before that when I stop iron, I have a backlash of worsened WED after 1-3 weeks. Likewise when I add the iron back in, the WED improves in 1-3 weeks. I don't notice the changes in...
by badnights
Sat Mar 28, 2020 5:37 pm
Forum: Prescription Medications
Topic: Tramadol vs Kratom to stop requip
Replies: 12
Views: 759

Re: Tramadol vs Kratom to stop requip

Well I guess I’m gonna have to taper it even slower. I had expected an rls rebound as the thing that would make it hard but not jittery and nauseous. After this is over, Never touching a DA again.
Amen.
by badnights
Sat Mar 28, 2020 5:35 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 121
Views: 5285

Re: Cannabis

QyX had you never taken iron before?
by badnights
Sat Mar 28, 2020 5:32 pm
Forum: Just Joined?
Topic: New member with a few questions
Replies: 19
Views: 972

Re: New member with a few questions

sounds good, perry01! The longer taper makes sense. You're right you'll probably need more gabapentin. Did you ask about Horizant? It's more expensive but more predictable - gabapentin is absorbed erratically and therefore the same dose might not have the same effect from day to day. Horizant was de...
by badnights
Sat Mar 28, 2020 3:36 am
Forum: Everything Else...just no RLS/WED!
Topic: Stay Safe!
Replies: 20
Views: 276

Re: Stay Safe!

Yikes of course we are here to talk only about WED/RLS! I take our rules to say that we talk ONLY about RLS. As such, if someone invokes their religion in relation to how it supports them, but talks primarily about RLS, it's OK to mention. I thought that was a given but it would have been best to me...
by badnights
Fri Mar 27, 2020 1:39 am
Forum: Prescription Medications
Topic: Oxycontin vs Methadone
Replies: 6
Views: 69

Re: Oxycontin vs Methadone

I agree it's better to keep your opioid dose low by supplementing with vaping. You're lucky it works for you. If you didn't want to vape, you would probably need to up your dose of oxycontin or, as your doctor suggested, switch to a different opioid. Methadone is less likely to cause suicidal depres...
by badnights
Thu Mar 26, 2020 2:42 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 224
Views: 9062

Re: Attempting to get off Ropinirole - again

@Yankiwi - good! I hope she ups your dose without argument and your sleep improves.
by badnights
Thu Mar 26, 2020 5:03 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 224
Views: 9062

Re: Attempting to get off Ropinirole - again

@polar bear Dr C talked about how sleep gets disturbed by rls, then gets disturbed more until eventally it has its own entity separate from the original rls disturbances and is Insomnia as a separate condtion. This is an old theory about WED/RLS and insomnia that is still bandied about - more or les...
by badnights
Thu Mar 26, 2020 5:01 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 224
Views: 9062

Re: Attempting to get off Ropinirole - again

An error was made in the new calcium where for nearly three months I was taking a double dose every day. This nearly killed me, literally. Dear God! I am so glad you survived this. She does have to specify the dose on the prescription though. At first she prescribed 70 tablets but the dose said one...
by badnights
Thu Mar 26, 2020 4:33 am
Forum: Prescription Medications
Topic: Need advice
Replies: 5
Views: 1292

Re: Need advice

GAK I'm late here but absolutely agree not to start ropinirole at 2 mg, and heck, you've hung on this long, why start it at all, given the evidence that taking a DA with low ferritin correlates with a high risk of augmentation. (e.g. paper by Frauscher et al in the page accessed by the link in my si...

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