Search found 5002 matches

by badnights
Sun Jan 17, 2021 4:01 am
Forum: Just Joined?
Topic: JANUARY 2020 - New Members
Replies: 38
Views: 524

Welcome to BonnieWills

BonnieWills was on Mirapex for many years but was taken off it for reasons unknown & put on opioids, which caused other problems. BonnieWills is now going through withdrawals from opioids. BonnieWills welcome to the group. Isn't this a dreadful disease? If you start a Topic, you can give us more bac...
by badnights
Thu Jan 14, 2021 7:48 am
Forum: Just Joined?
Topic: New member seeking advice
Replies: 7
Views: 150

Re: New member seeking advice

A criterion that you didn't mention that is key to the diganosis of RLS/WED is that it's circadian, worsening in the evening and early night, getting better toward morning and during the daytime. For instance, if you lie down during the day, are the symptoms just as bad as if you lay down at night? ...
by badnights
Thu Jan 14, 2021 6:51 am
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 22
Views: 520

Re: going "cold turkey"

As for the opioids, I have taken oxycodone in the past ten years, off and on, for foot neuropathy. And in the last couple of years I have had vicodan prescribed for post-op pain. Both of these worked some of the time but for the really bad times I would double the dose. So while I have had medical ...
by badnights
Thu Jan 14, 2021 6:32 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 782
Views: 63547

Re: Riding the Big One (RLS 24/7, Hanging Ten)

A doc I saw for my perpetually sprained ankle recommended "Dr. Jo"!
by badnights
Thu Jan 14, 2021 6:20 am
Forum: Physical Treatments
Topic: Vibrating Platform
Replies: 5
Views: 92

Re: Vibrating Platform

I'm not totally impulsive, but a little - - I remember when I looked at these vibration plates before, I wanted to try one but they seemed a little expensive. Well, I just bought one. So - thank you reminding me of it. I will let you all know if it helps at all. Assuming it gets here, that is. I cho...
by badnights
Thu Jan 14, 2021 5:11 am
Forum: Physical Treatments
Topic: Vibrating Platform
Replies: 5
Views: 92

Re: Vibrating Platform

To continue, there's also this one-pager from the Mayo Clinic https://www.mayoclinic.org/healthy-lifestyle/fitness/expert-answers/whole-body-vibration/faq-20057958 the gist of it "Some research does show that whole-body vibration may help improve muscle strength and that it may help with weight loss...
by badnights
Thu Jan 14, 2021 5:05 am
Forum: Physical Treatments
Topic: Vibrating Platform
Replies: 5
Views: 92

Re: Vibrating Platform

There have been a few conversations here about vibration plates, and the positive effect they have on WED/RLS. They seem to work by forcing your muscles to make continual micro-movements to stabilize you as you stand on a vibrating plate. People were using them when WED/RLS awoke them at night, and/...
by badnights
Thu Jan 14, 2021 4:29 am
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 18
Views: 310

Re: Spinal Stimulator

Excellent! Who would have guessed! They must have recognized the distress you had as soon as it was removed. Good on them.
by badnights
Wed Jan 13, 2021 7:06 am
Forum: General Topics: RLS
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 782
Views: 63547

Re: Riding the Big One (RLS 24/7, Hanging Ten)

good to hear from you. Glad you're hanging in there! Keep doing the exercises, it might take a while; also there's a lot of good info on shoulder rehab if you can dig it out of the truckloads of not-so-good info online. Funny, I also am having left shoulder issues and bunion issues - I am doing a se...
by badnights
Mon Jan 11, 2021 1:45 am
Forum: Physical Treatments
Topic: PA’s Diagnosis
Replies: 3
Views: 72

Re: PA’s Diagnosis

Same same! I agree with the others. Sounds like an ill-considered remark off the top of his/her head. What actually is deterioration of muscle? The term implies some kind of abnormal destruction of tissue; to detect that, they would have to sample the muscle itself, wouldn't they? But as far as I ca...
by badnights
Sat Jan 09, 2021 7:43 pm
Forum: Prescription Medications
Topic: Anyone using Symbicort inhaler?
Replies: 3
Views: 61

Symbicort (& dairy)

I used Symbicort for a while. I also have (had) exercise- and cold-induced asthma, which developed in my 40's. I had no problems with it as far as my WED/RLS goes, but I think it caused some minor growth of facial hair(downy stuff, but still). I switched back to Advair and it went away. My doctor ha...
by badnights
Sat Jan 09, 2021 7:20 pm
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 18
Views: 310

Re: Spinal Stimulator

This sounds very promising for you, Deb! Between Monday and Feb 10 might be hard to bear, but maybe not so hard, knowing that a solution is coming.
by badnights
Thu Jan 07, 2021 3:56 am
Forum: General Topics: RLS
Topic: Sad news - passing of Dr. Richard Allen
Replies: 5
Views: 86

Re: Sad news - passing of Dr. Richard Allen

We wouldn't be where we are today if it wasn't for this man. Not just the work he did himself, but also he mentored generations of students who have gone on to study WED/RLS. His legacy continues.
by badnights
Thu Jan 07, 2021 3:53 am
Forum: Prescription Medications
Topic: buprenorphine sublingual
Replies: 2
Views: 93

Re: buprenorphine sublingual

Sounds weird. Have you asked your doctor to re-write the prescription the way the pharmacy wants? That would seem to be the only way out.
by badnights
Thu Jan 07, 2021 3:52 am
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 18
Views: 310

Re: Spinal Stimulator

I hope it works. You've been so up and down, makes me think there is some key to your symptoms, just don't know what it is yet.