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by badnights
Fri May 24, 2019 4:43 am
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 19
Views: 195

Re: Excellent article on opioids

Everyone is so kind and compassionate, and knowledgeable. Wish my doctors were... :(
A lot of us find ourselves providing information for our doctors, or pointing them to information - educating them, in a sense. If they need it, and are open to it, it might as well be one of us who does it.
by badnights
Thu May 23, 2019 6:18 pm
Forum: Just Joined?
Topic: Travel
Replies: 6
Views: 77

Re: Travel

Some of the airline stewards do understand, some have no clue. For them, it;s a safety thing. I have a note from my doctor saying that I need an aisle seat. I've never had to use it but I always imagine it would be useful if I needed to justify standing up a lot because it says an aisle seat allows ...
by badnights
Thu May 23, 2019 8:25 am
Forum: Everything Else...just no RLS/WED!
Topic: Weight Loss
Replies: 35
Views: 6237

Re: Weight Loss

Wow, how many of your meds had swelling as a possible side effect! Maybe you were getting hit by all of them at once. Your doctor seems to have left no stone unturned.
by badnights
Thu May 23, 2019 7:22 am
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 19
Views: 195

Re: Excellent article on opioids

The pain medicine doc even said "They call it restless LEGS, so you CAN'T have it in your arm!" I've had that said to me too, and also "it's only at night, you can't have it in the daytime". Same doctor said both things to me, I corrected her and she seemed to accept it. That's ...
by badnights
Thu May 23, 2019 7:09 am
Forum: Prescription Medications
Topic: New to Forum Need advice about Ropinirole
Replies: 11
Views: 124

Re: New to Forum Need advice about Ropinirole

WED/RLS cannot be detected on a sleep study. The diagnosis can only be made by talking to the patient, because the primary symptom is the un-ignorable urge to move at night when you're resting. Although it's not clear from your description here, let's assume you have WED/RLS. Based on what I know, I...
by badnights
Thu May 23, 2019 5:41 am
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 27
Views: 417

Re: New here, just diagnosed but not sure it really is RLS...

jerry it's ok to be one-sided here. I think almost everyone here started in a desperate state that was necessarily very self-centered. A lot of people interact most during their darkest phase and then we hear less as they get better. That's OK. It's also wonderful to want to give back. But if you do...
by badnights
Wed May 22, 2019 5:05 pm
Forum: Augmentation
Topic: augmentation with lyrica?
Replies: 4
Views: 98

Re: augmentation with lyrica?

James, what were your symptoms like before the Lyrica? Have you ever taken anything else?
by badnights
Tue May 21, 2019 6:52 am
Forum: Prescription Medications
Topic: Aimovig
Replies: 5
Views: 119

Re: Aimovig

Wild. Very encouraging. What is the dosing schedule? How many shots to go ? How far apart are they?
by badnights
Tue May 21, 2019 6:48 am
Forum: Prescription Medications
Topic: New to Forum Need advice about Ropinirole
Replies: 11
Views: 124

Re: New to Forum Need advice about Ropinirole

The tingling is not likley to be RLS/WED if it is surficial, or if it starts or gets worse while you are walking. Can you describe your symptoms for us? Is there something other than the tingling? Reading thru Ann's list of the 4 criteria, where do they match your situation and where don't they? Re ...
by badnights
Tue May 21, 2019 6:40 am
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 19
Views: 195

Re: Excellent article on opioids

My doctor suggested mirapex. I haven't heard off this and will do some research on the boards. Mirapex/pramipexole is one of the dopamine agonists used to treat Parkinson's and WED/RLS. Most specialists agree now that dopamine agonists such as Mirapex should not be tried in WED/RLS patients unless ...
by badnights
Tue May 21, 2019 6:08 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 461
Views: 48255

Re: Medical Marijuana

With the help of Lyrica, I am starting to wean off pramipexole and Neupro because of augmentation and impulse control disorders. However, my starting dose of Lyrica (as I titrate up) definitely is not strong enough. I was up most of the night last night. I have some MM that is CBD dominant, 4:1 CBD...
by badnights
Tue May 21, 2019 5:52 am
Forum: Prescription Medications
Topic: IRLS Study group and iron IVs
Replies: 13
Views: 483

Re: IRLS Study group and iron IVs

I have moved this topic to the Prescription forum. A pointer left behind in the Physical Treatments forum will lead you here.
by badnights
Tue May 21, 2019 5:43 am
Forum: Just Joined?
Topic: Travel
Replies: 6
Views: 77

Re: Travel

If you don't need to sleep, then mentally alerting activities can hold things at bay (though they're not much use if you already have intense symptoms). Depending on your interests, reading something that requires concentration, doing crosswords or sudoku, doing a handicraft. Also if you have to sta...
by badnights
Tue May 21, 2019 5:32 am
Forum: Just Joined?
Topic: New to group old acquaintance of RLS
Replies: 4
Views: 76

Re: New to group old acquaintance of RLS

Nice! I hope it works. Feels great to get a good night's sleep after so many bad ones, doesn't it? :)
by badnights
Tue May 21, 2019 5:29 am
Forum: Just Joined?
Topic: New Member
Replies: 4
Views: 65

Re: New Member

Doug, you're in a horrible spot, but I'm glad you're talking to us here, because so many of us have had the same experience. It breaks my heart that this still happens, when it's so preventable. The ropinirole didn't stop working: it caused the disease to worsen. The good news is that the disease wi...

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