Search found 4895 matches

by badnights
Wed Sep 30, 2020 5:20 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 8
Views: 65

Re: Melatonin added to the mix

Oh ya, I forgot to tell my dose. I was using 3 mg. Last two nights I've split that in half. No daytime hangover yet. It is my understanding that Melatonin is not generally recommended for use when suffering with RLS. That RLS could be worsened by melatonin as it can intensify RLS symptoms I avoided ...
by badnights
Wed Sep 30, 2020 5:11 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Chromium
Replies: 1
Views: 29

Re: Chromium

Very interesting article on this at https://ods.od.nih.gov/factsheets/Chromium-HealthProfessional/ Sounds like very little is known, not even enough to establish RDAs (recommended daily allowances). "In 1957, a compound in brewers’ yeast was found to prevent an age-related decline in the ability of ...
by badnights
Wed Sep 30, 2020 4:51 am
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 33
Views: 1012

Re: Location of RLS Symptoms Changing

Interesting thoughts, both! As my RLS is from oxalates, symptoms occur when oxalates are broken down though exercise or general oxalate dumping. I have nerve and the corresponding muscle trigger points. It seems the oxalate leaves the nerves and makes them ‘unhappy’ and they activate the correspondi...
by badnights
Wed Sep 30, 2020 4:28 am
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 489
Views: 129738

WED/RLS is associated with SAT3

Here's a weird one that I feel like sharing - I didn't know what SAT3 was. I had to look it up: it's "a condition characterized by progressive problems with movement. People with this condition initially experience problems with coordination and balance" and go on to develop uncontrolled muscle tens...
by badnights
Wed Sep 30, 2020 4:11 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 266
Views: 12401

Re: Attempting to get off Ropinirole - again

did it work? did the nepotism network do its thing?
by badnights
Wed Sep 30, 2020 4:03 am
Forum: Prescription Medications
Topic: Success!!! Iron infusions ordered!
Replies: 12
Views: 98

Re: Success!!! Iron infusions ordered!

Unlike my PCP and the neurologist I saw last week, he didn't show any attitude about being given advice from another doctor via a lowly patient. He immediately read Dr. B's letter and then started right off arranging iron infusions for me. Wow, what an absolute gem of a man. And Dr B! The ultimate ...
by badnights
Wed Sep 30, 2020 3:58 am
Forum: Prescription Medications
Topic: Gabapentin not working so good
Replies: 42
Views: 1840

Re: Gabapentin not working so good

Good to know OJ with iron. I've been on oxycodone for the past week due to an operation so that's really improved things. Too bad this can't last. LOL Oh yes, the joy of symptom relief! It kind of pisses me off (excuse the language) that you can't have that relief full-time. But enjoy it while you ...
by badnights
Wed Sep 30, 2020 3:55 am
Forum: Prescription Medications
Topic: Comimg off of Neupro Patch
Replies: 20
Views: 439

Re: Comimg off of Neupro Patch

Brilliant! Lord, it's so hard to figure out sometimes, isn't it? I'm glad you have a temporary solution (that seems to be all we ever get, temporary solutions). How soon can you get the infusion? Do you switch opioids before or after?
by badnights
Wed Sep 30, 2020 3:50 am
Forum: Prescription Medications
Topic: Help please re Ropinirole
Replies: 4
Views: 32

Re: Help please re Ropinirole

Oh you poor thing! What a horrible experience! Unfortunately, Steve's right; without the ropinirole, you will experience withdrawal - not just untreated symptoms, but worsened symptoms. I'm not a doctor but as far as I know, you can take oxycodone with gabapentin. I have done it without ill effect (...
by badnights
Wed Sep 30, 2020 3:36 am
Forum: Prescription Medications
Topic: Is your DA causing augmentation?
Replies: 148
Views: 55472

Re: Is your DA causing augmentation?

Hello I have been going to a sleep disorder center he understands augmentation. He told me to ask about low dose opiates during pregnancy hopefully this will be okay with my OBGYN Horizant made symptoms worse for me Thanms Excellent! Have you talked to obgyn yet? I sure hope he/she said yes! You ne...
by badnights
Wed Sep 30, 2020 3:34 am
Forum: Augmentation
Topic: Accessing resources
Replies: 5
Views: 61

Re: Accessing resources

I agree with Ann. If a doctor responds well to being shown that book, then that doctor might be one who can help you. You could also or alternatively print the RLS Foundation's Medical Bulletin for healthcare providers (see my signature link for how to access it). Whether book or brochure, be sure t...
by badnights
Wed Sep 30, 2020 3:26 am
Forum: Augmentation
Topic: Please help
Replies: 17
Views: 232

Re: Please help

Just be aware that Neupro is also a dopamine agonist, and it is quite possible to augment on it just like you augmented on Mirapex. Keep the dose as low as possible (some people cut the patches). Don't neglect your iron - your main solution to this WED/RLS problem will be through iron, not through a...
by badnights
Mon Sep 28, 2020 1:20 am
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 33
Views: 1012

Re: Location of RLS Symptoms Changing

I have never heard any explanations for location of symptoms. I used to always have it in both legs (+/- arms), but recently I've been having it only in my left leg much of the time. Weird.
by badnights
Sun Sep 27, 2020 1:39 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Sleep, microbiome, high blood pressure
Replies: 3
Views: 112

Re: Sleep, microbiome, high blood pressure

I thought the study Ann references below was intriguing, especially since people with WED/RLS are more likely to have cardiovascular disease than the general population. I'm glad to see people researching the effects of sleep deprivation.
by badnights
Sun Sep 27, 2020 1:33 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin added to the mix
Replies: 8
Views: 65

Melatonin added to the mix

I've recently started using melatonin. The first night was insane. I took it 2 hr before I expected to go to bed, but after 1 hr, I was too sleepy to stay up. I had taken no zopiclone, yet I slept like a log most of the night. It hasn't been that good since but still pretty good, for about a week, b...