Search found 4447 matches

by badnights
Tue Jul 16, 2019 5:38 am
Forum: Just Joined?
Topic: How to Increase Ferritin
Replies: 2
Views: 66

Re: How to Increase Ferritin

Apparently the ideal concentration of ferritin varies from patient to patient (according to the researchers and clinicians who co-presented one of the Foundation's webinars a few years ago). So for some people - like Holland - it would be 300, whereas for another it might be 150. The guys who pionee...
by badnights
Thu Jul 11, 2019 7:48 am
Forum: Just Joined?
Topic: JULY 2019 - New Members
Replies: 35
Views: 359

Welcome to cdnuturn

Welcome today to cdnuturn, who was diagnosed with WED/RLS nine years ago but due to a recent move, has ended up with a doctor who seems to be treating drug addiction instead of the actual issue, WED/RLS. cdnuturn, it would be good if you started a new Topic with a post telling us more about yourself...
by badnights
Tue Jul 09, 2019 11:13 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 71
Views: 2627

Re: Experience with Injectafer?

the original IV iron preparation (iron dextran) DID have a high risk of anaphylactic shock Low molecular weight iron dextran is still available (INFeD). It is high molecular weight iron dextran that causes anaphylactic shock and is no longer manufactured. There were cases in which HMW was substitut...
by badnights
Tue Jul 09, 2019 5:44 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 71
Views: 2627

Re: Experience with Injectafer?

I should have emailed Dr B first. Why did I even bother with Johns Hopkins! Dr B has answered me positively; he is liberal with initial ferritin levels so I don't have to be under 100. I am calling his office tomorrow to book an appointment. :D
by badnights
Tue Jul 09, 2019 5:35 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 106
Views: 2977

Re: Attempting to get off Ropinirole - again

Your slow taper seems to be working for you. Fingers crossed. When the time comes to bite the bullet, don't worry about your commitments and how you would cope. You will cope like a champion. Simply shut down for a number of days, if necessary. Betty comes first in this, otherwise you're no good to ...
by badnights
Tue Jul 09, 2019 5:28 am
Forum: Prescription Medications
Topic: Methadone in Florida?
Replies: 4
Views: 91

Re: Methadone in Florida?

I hope you can work something out. The situation is ridiculous but not the laughable kind of ridiculous. How important is your job ...
by badnights
Tue Jul 09, 2019 5:25 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 71
Views: 2627

Re: Experience with Injectafer?

Thanks Holland. I have reached out to Dr B (whom I have pestered with questions before), so I'll see what he says. If he's negative, I will try the Stanford QCC, and if that fails, I'll ask you for contact info for your GP. Johns Hopkins can give me an appt in September, but not with anyone who has ...
by badnights
Mon Jul 08, 2019 4:09 pm
Forum: Prescription Medications
Topic: RLS from 12mn to 7AM on Methadone
Replies: 9
Views: 152

Re: RLS from 12mn to 7AM on Methadone

My thoughts are the same as views and deb. If he never stopped the pramipexole completely, his symptoms will still be worse than they should be. If he did stop it completely for two weeks, then his symptoms are bad enough that he needs more. It also sounds like his day has shifted such that midnight...
by badnights
Mon Jul 01, 2019 9:35 pm
Forum: Prescription Medications
Topic: Alerting question?
Replies: 5
Views: 114

Re: Alerting question?

Big issue for me since I started codeine and moved to hydromorph contin, about 10 years now. I have had to add medications to deal with it, which super-sucks. Adjusting the timing won't work because hydromorph contin doesn't have as long of a half-life as methadone.
by badnights
Mon Jul 01, 2019 9:26 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: New member - 8 year old son diagnosed at 6 with RLS/PLMD
Replies: 18
Views: 2658

Re: New member - 8 year old son diagnosed at 6 with RLS/PLMD

A good test would be to let them eat a serving of Doritos. If you notice a huge increase in movement by them, then they may be affected by glutamate. I would be happy to tell you more about it, if you thought it would help. You must know about the research that connects high levels of glutamate in ...
by badnights
Mon Jul 01, 2019 9:20 pm
Forum: Augmentation
Topic: Augmentation again (of course)
Replies: 46
Views: 940

Re: Augmentation again (of course)

She's an amazing doc but in this dept it's not working to date
She's had a long time with you to learn about WED/RLS and has failed to, so I don't think she's an amazing doc at all :). Maybe it's time to take charge and find a new one!
by badnights
Mon Jul 01, 2019 6:59 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: RLS brought on by Clozapine
Replies: 12
Views: 210

Re: RLS brought on by Clozapine

My med Clozaril is a Dopamine Suppressor so getting a Dopamine agonist would counteract with the med I'm taking possibly making it ineffective. Dopamine agonists are not the best idea for WED/RLS anyway, since they usually eventually lead to augmentation. Horizant or gabapentin enacarbil is suppose...
by badnights
Mon Jul 01, 2019 6:24 pm
Forum: Augmentation
Topic: How long before I should worry about augmentation?...
Replies: 12
Views: 862

Re: How long before I should worry about augmentation?...

In addition to the signs Steve wrote, a fourth sign is that symptom intensity increases. The dopamine agonist medications used most for WED/RLS are ropinirole (trade name in North America is Requip) and pramipexole (Mirapex). Another dopamine medication, not a dopamine agonist, causes augmentation e...
by badnights
Mon Jul 01, 2019 6:06 pm
Forum: Augmentation
Topic: Augmentation again (of course)
Replies: 46
Views: 940

Re: Augmentation again (of course)

I should say congratulations, too, Marie! You've come down a lot.
Are you following Betty's story? (polar bear). She's doing the same thing as you right now.
by badnights
Mon Jul 01, 2019 6:03 pm
Forum: Augmentation
Topic: Augmentation again (of course)
Replies: 46
Views: 940

Re: Augmentation again (of course)

Are you taking iron? You ought to qualify for infusions, but I know firsthand how hard it can be to convince doctors. The consensus guidelines (available in my signature link) say iron infusions can be regarded as an appropriate first-line treatment for people whose ferritin is under 100. I bet you ...

Go to advanced search