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by badnights
Mon Jan 27, 2020 8:02 am
Forum: Prescription Medications
Topic: Requip to Horizant and dizziness
Replies: 12
Views: 79

Re: Requip to Horizant and dizziness

I agree with QyX, you have to give Horizant a fair trial or the dcotor will not even consider opioids. I really do want to do an experiment where i go 2 or 3 weeks with absolutely no DA and see if RLS goes back to how it was in my thirties - just my lower legs, not my torso and arms/hands and no rea...
by badnights
Mon Jan 27, 2020 12:36 am
Forum: Just Joined?
Topic: Saying hello!
Replies: 9
Views: 176

Re: Saying hello!

@cravenmonket I don't know if kratom can cause WED/RLS. It would surprise me, since so many people on this board use it to relieve their symptoms, and it has opioid-like properties, and opioids are well known to relieve WED/RLS. Nevertheless, anything is possible. Are there any other substances you ...
by badnights
Mon Jan 27, 2020 12:23 am
Forum: Just Joined?
Topic: Saying hello!
Replies: 9
Views: 176

Re: Saying hello!

I have split off some posts into a new topic called "Saying hello! - driven to distraction", in order to reduce confusion.
by badnights
Mon Jan 27, 2020 12:11 am
Forum: Just Joined?
Topic: New Member
Replies: 3
Views: 180

Re: New Member

Hi Starkloph How's it going? Have things gotten any worse or are they about the same? However, it is still frustrating, life changing and a constant worry about getting to sleep. That is for sure. My house gradually changed as I moved all my books to the kitchen counter so I could stand up to read a...
by badnights
Mon Jan 27, 2020 12:04 am
Forum: Physical Treatments
Topic: Sequential compression device/air leg massager
Replies: 14
Views: 776

Re: Sequential compression device/air leg massager

I wish they were that effective for me. That would be nice. As it is, reducing by 1 mg when I still take 6 mg is not a big effect. Ideally they would be bigger, so I could put them where I need them - sometimes thigh, sometimes calf, sometimes both, sometimes it would be nice to have something on my...
by badnights
Sun Jan 26, 2020 11:38 pm
Forum: Prescription Medications
Topic: Requip to Horizant and dizziness
Replies: 12
Views: 79

Re: Requip to Horizant and dizziness

If that was indeed a response to the Horizant, it's very positive news :) Take it whenever you can get it! You've got guts, to be tackling this reduction without opioids. I hope the Horizant continues to help and stops making you dizzy. (One can hope?) I will talk to sleep specialist in 20 days and ...
by badnights
Sun Jan 26, 2020 11:13 pm
Forum: Augmentation
Topic: Augmentation tied to stroke ?
Replies: 24
Views: 463

Re: Augmentation tied to stroke ?

Increase what to 2 mg? the magnesium? or the Neupro? Have you reduced the Mirapex to only that 0.25, or are you still taking more thruout the day? Don't worry about magnesium or any of those things you mentioned making the WED/RLS worse. Any worsening will probably just be random fluctuations or som...
by badnights
Sun Jan 26, 2020 11:05 pm
Forum: General Topics: RLS/WED
Topic: How to find a RLS Psychiatrist?
Replies: 7
Views: 257

Re: How to find a RLS Psychiatrist?

Ya, I hear you. I'm afraid to move because I don't know if I'll find another doctor who gets it (despite her continual balking at iron infusions)/
by badnights
Sun Jan 26, 2020 11:04 pm
Forum: General Topics: RLS/WED
Topic: A complete RLS theory; oxalates and mast cells?
Replies: 5
Views: 49

Re: A complete RLS theory; oxalates and mast cells?

Nice work but some issues with it. As I mentioned in the other Topic, the mast cell study shows that WED/RLS is more common in people with MCAS (actually the result with females didn't reach statistical significance, but for sure, males with MCAS are more likely to have WED/RLS). Nothing is revealed...
by badnights
Sat Jan 25, 2020 5:40 pm
Forum: Physical Treatments
Topic: Sequential compression device/air leg massager
Replies: 14
Views: 776

Re: Sequential compression device/air leg massager

They are helpful but not hugely so. If I put them on a few hours before bed, I can usually avoid taking a single 1 mg pill of hydromorphone immediate release that I sometimes take when I go to bed if the symptoms are preventing sleep.
by badnights
Sat Jan 25, 2020 8:19 am
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 8
Views: 406

Re: Iron Infusion Worked for me

Interesting! Part of it is not surprising, though. A GP is always busy, and sees a bazillion different patients, I don't know how they could ever keep up on all the multitude of maladies out there. Even a specialist. They see so many patients. But I gave her the paper and made it easy for her to dig...
by badnights
Sat Jan 25, 2020 7:55 am
Forum: Prescription Medications
Topic: IV iron therapy
Replies: 3
Views: 85

Re: IV iron therapy

The 2018 consensus guidelines on iron treatment for WED/RLS address repeat infusions. A link to get the paper is in the page opened by clicking my signature-block link. It is section 9.3 of the paper. It reads as follows: IV Iron treatments will definitively increase peripheral iron stores. If iron t...
by badnights
Sat Jan 25, 2020 7:41 am
Forum: Prescription Medications
Topic: What's Worked for Me
Replies: 3
Views: 41

Re: What's Worked for Me

Hi dwhite00. As Holland noted, pramipexole and other dopamine agonists cause RLS/WED augmentation - that is, they worsen the disease over time. Unfortunately, this is such an unusual phenomenon that many doctors aren't aware of it, or if they've heard of it, they don't know how to deal with it. Prev...
by badnights
Sat Jan 25, 2020 7:25 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 87
Views: 4114

Re: Experience with Injectafer?

Holland, what are you taking for WED now? I am sure you have it written here somewhere, apologies for asking. Are you still taking dipyridamole?
by badnights
Sat Jan 25, 2020 7:21 am
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 71
Views: 20083

Re: RLS, Depression and Anti-depressants

Exercise is an all-natural treatment to fight depression (https://www.health.harvard.edu/mind-and-mood/exercise-is-an-all-natural-treatment-to-fight-depression) Exercise is as effective as drugs in some cases. One in 10 adults in the United States struggles with depression, and antidepressant medica...

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