Restless Legs Syndrome (RLS) Discussion Board

there are certainly doctors out there who can help you. They're so darn hard to find because severe cases usually end up needing opioids, and doctors are scared to risk prescribing opioids. But these doctors do exist, and you now know of 3 clinics "near" you. At this point, I'm willing to fly ...

Hi esmith428 and welcome

All that Ann said is true. Except the iron posts tend to be all over, e.g. since infusions are by prescription they can be in the Prescription forum. And posts like this one are all over. You can search for "iron" in the search bar (but be prepared for LOTS of results ...

For what it's worth, I couldn't tolerate pregabalin. Was on the lowest dosage and had to discontinue. Too depressing and it didn't seem to help RLS for me.
This is a good illustration of how it's different for everyone. Some people benefit without side effects, while others have this potentially ...

Research into brain iron regulation in RLS seems to drop off a cliff in mid 2010’s. Any insight on what happened?

Did they think it was a dead-end?
Just off the top of my head, there were not that many people looking into iron. There were Allen and Early, but Allen has passed away, and Early I ...

Brynmr wrote: Sun May 25, 2025 11:42 am I'm confused. Why are you on these drugs when your RLS has disappeared? BTW, I'm taking 3,000 mg of gabapentin daily with no depression.

I think pexj keeps taking the medication to keep the WED/RLS away.
That's wonderful to have no depression side effects

Wow. I'm reading this while brain-dead so I will have to come back to it when I'm more normal.

I used to get (still get?) alerting from my opioid medication. It was a "constant hyperarousal which prevented me from sleeping" - akathisia entirely controlled but unable to sleep. What, then, is the ...

Thank you for that update!

Lord I want one.....

Please welcome JGuzman to the board.

JGuzman cant sleep, has no energy and is struggling to heal from new compression fx(s). JGuzman worries that the movement and lack of sleep might be interfering with the healing process.

Did you recently have surgery or an injury? Please tell us more. You can ...

Please welcome esmith428 to the board.

esmith428 has had WED/RLS for years but didn't realize what it was. S/he has tried some medication that was not agreeable, currently is not taking anything for the WED/RLS, and would like to connect with others who have it.

esmith428, you're in the right ...

I have just upped my Ropinerole dosage from .5 mg to 1.0 mg. I could not tolerate the side effects of vivid dreams, sweating, and nausea so I cut back to .75 mg. It is effective 3 hours after I take it, but I'm still suffering from the same side effects. I have also recently weaned off Clonazapam ...

When you talk to your doctor, begin with an explanation of what your life is like. She probably doesn't appreciate what you're dealing with. Keep it short, but don't pull your punches. "I get about 5 hours of sleep a night. I wake up at 4 AM and have to get up and walk around. I used to be able to ...

Welcome, Seth. You've received some good advice, including Steve's reply in the Just Joined forum. Truly it's a balancing act - you don't want to stop the DA so fast that you get DAWS, but you don't want to prolong the agony any longer than you have to. I tend toward the "get it over quickly" method ...

I figured out what caused this for me so I will update this post in case anyone else experiences this.

D1 super sensitivity. I basically developed augmentation in another part of my brain, most likely the nucleus acumben.

I was able to counteract the hyperarousal I was experience from any ...

I found a sleep specialist willing to prescribe opioids. He let me choose what I wanted and I wend for Buprenorphine. After a few weeks I found the right dose of 1/2 patch of 35 mcg/h (probably equivalent to 10-20 mg morphine). It worked really well for a little more than two month. I could finally ...

Well, I'll just re-iterate that the Ambien has the potential to make things worse. Based mostly on my personal experiences, I think you should make sure your other meds have the WED/RLS largely under control before you take it. I hope it works out well for you! The best solution might be to just get ...