Search found 399 matches

by jul2873
Wed Jun 10, 2020 4:10 pm
Forum: Prescription Medications
Topic: Experience of having IV iron
Replies: 6
Views: 363

Re: Experience of having IV iron

Hi Legsbestill, Thanks for the nice note. So glad kratom has been helping you. It is still my major med after 8 years, although now I have added a little marijuana (a couple of the edible candies every 24 hours) and a very small ropinarole). They have allowed me to cut down on the kratom. I do use k...
by jul2873
Fri May 15, 2020 6:04 pm
Forum: Prescription Medications
Topic: Experience of having IV iron
Replies: 6
Views: 363

Re: Experience of having IV iron

Thanks. I wasn't sure where to post it.
by jul2873
Thu May 14, 2020 7:51 pm
Forum: Prescription Medications
Topic: Experience of having IV iron
Replies: 6
Views: 363

Experience of having IV iron

I had my first IV iron infusion yesterday. I decided to post about it in case anyone out there was as scared as I was. I had read online that the infusion would last 3-4 hours. I would have an IV inserted, and then 3-4 later I would be finished. So I was very nervous. Six months earlier I had a colo...
by jul2873
Tue Apr 07, 2020 1:43 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Don't do this when a car passenger
Replies: 7
Views: 1437

Re: Don't do this when a car passenger

When I’m in a car (driving or riding) and RLS kicks in, there is nothing for it but I need to find a safe place to stop, take some kratom, and then get out and walk around for 5 to 10 minutes. That usually takes care of it.
by jul2873
Thu Mar 12, 2020 12:37 am
Forum: Prescription Medications
Topic: Need advice
Replies: 5
Views: 1434

Re: Need advice

Holland and Betty, thank you both very much--such good info. and suggestions. I'm going to follow them all! I think I'll try it with just the kratom/pot while I get the infusions, and then see how things are. And meanwhile I'll ask my primary care to prescribe me a much lower dose ropinirole. Kratom...
by jul2873
Wed Mar 11, 2020 4:41 pm
Forum: Prescription Medications
Topic: Need advice
Replies: 5
Views: 1434

Need advice

I've been using kratom for the last 8 years to manage the RLS symptoms. It's worked very well, and still works. I just need more of it now, and a good night is one where I'm only up twice for another dose. An average night has me up 3 or 4 times, and, of course, a lousy night has me up even more, al...
by jul2873
Mon Dec 23, 2019 8:00 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New Kratom User - when to take
Replies: 49
Views: 3449

Re: New Kratom User - when to take

I've taken kratom for almost seven years, for RLS. It's really all I've taken. And it has worked very well until about a year ago when I started developing issues with tolerance. When I first started taking it, 1/2 tsp. was plenty, and it stayed enough for a couple of years. Now I'm up to 2 tsp. for...
by jul2873
Sat Aug 24, 2019 11:47 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 47
Views: 1705

Re: Excellent article on opioids

I'm afraid you'll have trouble getting it sent to the UK. You might have to have it sent to a friend in France or Spain or Portugal. It is also illegal in Ireland. But it's been wonderful for me, and I've used it for almost six years. Good luck to you.
by jul2873
Fri Jun 28, 2019 12:47 pm
Forum: Prescription Medications
Topic: Request for Comments on Opioids
Replies: 0
Views: 1888

Request for Comments on Opioids

Joint Meeting of the Drug Safety and Risk Management Advisory Committee and the Anesthetic and Analgesic Drug Products Advisory Committee; Notice of Meeting; Establishment of a Public Docket; Request for Comments

https://www.regulations.gov/docket?D=FDA-2019-N-1646
by jul2873
Wed May 29, 2019 12:47 am
Forum: Prescription Medications
Topic: If you have been denied opioid treatment
Replies: 5
Views: 345

Re: If you have been denied opioid treatment

Actually, I think many of the people in the suit were cut off. Sorry that I didn't describe it accurately.
by jul2873
Tue May 28, 2019 9:25 am
Forum: Prescription Medications
Topic: If you have been denied opioid treatment
Replies: 5
Views: 345

If you have been denied opioid treatment

If you have been denied treatment with opioids, you should check out this link which is a description of a class action suit brought against the government for putting out the regs. that have made opioids unattainable for many suffering people. I think 16 states have joined so far. https://sickofsuf...
by jul2873
Fri May 03, 2019 2:47 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 47
Views: 1705

Excellent article on opioids

The New England Journal of Medicine and the CDC have put out articles admitting that the "one size fits all" for prescribing opioids has done immeasurable harm. And the comments after the article have many examples. None for RLS yet. Perhaps someone who has their opioids that were working well disco...
by jul2873
Tue Apr 09, 2019 5:20 pm
Forum: Prescription Medications
Topic: Gabapentin withdraw symptoms
Replies: 34
Views: 1185

Re: Gabapentin withdraw symptoms

Gabapentin didn't work for me, but I did have significant withdrawal symptoms when I gave up on it. Finally I had to taper really slowly--cutting the pills in half, and then in fourths. I may even have had to go to eighths. Can't remember.
by jul2873
Thu Mar 14, 2019 12:13 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Hyland's Restful Legs
Replies: 6
Views: 1302

Re: Hyland's Restful Legs

Before my RLS got so bad, I used to use this. It usually helped some. Now that the RLS has gotten much worse it doesn't usually work well at all.
by jul2873
Mon Mar 04, 2019 4:46 pm
Forum: Prescription Medications
Topic: Super interesting connection between opioids and cannabis...
Replies: 13
Views: 685

Re: Super interesting connection between opioids and cannabis...

Yes, very interesting. There is also a considerable body of anecdotes saying that kratom has helped people get off of opioids. And kratom does not make you high.

I'm so glad we have this new research. Maybe, sooner or later, we can com up with good long term treatments for RLS.