Search found 310 matches

by Frunobulax
Fri Nov 06, 2020 10:34 am
Forum: Augmentation
Topic: Pramipexole withdrawal
Replies: 13
Views: 568

Re: Pramipexole withdrawal

I am also taking 600mg of gabapentin and am concerned about the sedative effect at night when legs are bad. Should I stop that as well? I'm late here, but I don't think anyone answered you on this. The gabapentin shouldn't be a problem, not like an actual hypnotic would be. The gabapentin might be ...
by Frunobulax
Tue Oct 13, 2020 8:06 pm
Forum: Augmentation
Topic: Pramipexole withdrawal
Replies: 13
Views: 568

Re: Pramipexole withdrawal

To all those brave souls that have gone before me withdrawing from pramipexole following augmentation I am seeking advice. My doctor wants me to taper off. 5mg that I am currently taking and I am wondering what is the most effective schedule. I am also taking 600mg of gabapentin and am concerned ab...
by Frunobulax
Thu Oct 08, 2020 5:35 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Chromium
Replies: 2
Views: 609

Re: Chromium

I'm not sure if it will be the solution to all my troubles, but I'll add some chromium to my supplement mix for a few weeks and we'll see if it does something. Has anyone seen improvement with chromium? After a week I can say it's not a wonder drug, but it does have one rather interesting effect on...
by Frunobulax
Wed Oct 07, 2020 9:02 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 107
Views: 24360

Re: Another year of relief (Low-oxalate diet)

thank you for all the info on a low-oxalate diet! after 2 months on it my rls is improved though not completely gone. I realized the applesauce I was eating had vit c added! so I got some yesterday without it. What is the correlation with vitamin C and the low oxalate diet? I have found fairly cont...
by Frunobulax
Wed Sep 30, 2020 5:25 am
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 33
Views: 1510

Re: Location of RLS Symptoms Changing

I don't see a reason here for the symptoms to be restricted to any particular place, unless there is some reason why oxalate dumping /breakdown might be spatially restricted? I know you're just speculating & learning as you go, but might you have any idea why oxalates would get dumped in the legs a...
by Frunobulax
Mon Sep 28, 2020 7:35 pm
Forum: General Topics: RLS
Topic: Location of RLS Symptoms Changing
Replies: 33
Views: 1510

Re: Location of RLS Symptoms Changing

As my RLS is from oxalates, symptoms occur when oxalates are broken down though exercise or general oxalate dumping. I have nerve and the corresponding muscle trigger points. It seems the oxalate leaves the nerves and makes them ‘unhappy’ and they activate the corresponding muscles, which then crea...
by Frunobulax
Mon Sep 28, 2020 7:54 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Chromium
Replies: 2
Views: 609

Chromium

Since this hasn't been discussed in a long time... I recently got a recommendation from a patient that claimed a chromium supplement fixed all her (severe) RLS issues. I dug around a little, and found next to nothing on this. One doctor states on his webpage that he routinely measures chromium level...
by Frunobulax
Thu Sep 24, 2020 4:27 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Sleep, microbiome, high blood pressure
Replies: 3
Views: 267

Re: Sleep, microbiome, high blood pressure

Ben Bikman has published a very good book on insulin resistance this year ("why we get sick"). Highly recommended. He writes basically that it's a vicious circuit, with inflammation causing IR and IR causing inflammation. (Similar with obesity.) IR is thought to be the major cause for high blood pre...
by Frunobulax
Mon Sep 07, 2020 6:42 am
Forum: General Topics: RLS
Topic: Could it be more than RLS?
Replies: 9
Views: 369

Re: Could it be more than RLS?

There are no widely accepted definitions that allow a clear-cut distinction between disease and syndrome. Look at us, discussing terminology, while we fully agree on what needs to be done ;) I guess you're right. I looked at it from the standpoint of an underlying root cause. But the diagnostic cri...
by Frunobulax
Fri Sep 04, 2020 9:29 am
Forum: General Topics: RLS
Topic: Could it be more than RLS?
Replies: 9
Views: 369

Re: Could it be more than RLS? Disease vs syndrome. WED vs RLS.

RLS is not a disease, but a syndrome . This is not true, although it does depend on how you define disease and syndrome, which actually is not clear. The reasons given by the RLS Foundation when it decided in 2013 to change its name to the WED Foundation and refer to the disease as Willis-Ekbom dis...
by Frunobulax
Wed Sep 02, 2020 9:43 am
Forum: General Topics: RLS
Topic: Could it be more than RLS?
Replies: 9
Views: 369

Re: Could it be more than RLS?

A couple months ago I was diagnosed with RLS. But I still have other issues that are not common with RLS like brain fog, dizziness, joint pain, tingling throughout my body, headaches, unable to sleep. The doctor does thinks its just RLS and stress but my gut says it is more. RLS is not a disease, b...
by Frunobulax
Mon Aug 17, 2020 6:13 am
Forum: Physical Treatments
Topic: Keto & RLS
Replies: 9
Views: 781

Re: Keto & RLS

Now ethanol and fructose are metabolized in the same way, except that alcohol is metabolized in the central nervous system and fructose is not, therefore only alcohol gives a buzz Not quite, for those of you who are interested in details. Alcohol is metabolized primarily in the liver, with small am...
by Frunobulax
Mon Aug 10, 2020 8:04 am
Forum: Physical Treatments
Topic: Keto & RLS
Replies: 9
Views: 781

Re: Keto & RLS

I was on keto for about 4 months in 2014. I did not take any meds during that time and my RLS was under control. But after 4 months it stopped working. I started it again in December of 2019 and have been doing it since then. My RLS is worse now and it did not totally control my symptoms this time....
by Frunobulax
Wed Aug 05, 2020 6:04 am
Forum: Physical Treatments
Topic: Keto & RLS
Replies: 9
Views: 781

Re: Keto & RLS

Anyone else have this reaction to carbs? I am wondering if it is all carbs, or just sugar or flour (wheat)? i will have to do more trial and error to see how far I can push the carb eating without going into RLS mode again. Keto has done a lot for me. http://bb.rls.org/viewtopic.php?p=99988#p99988 ...
by Frunobulax
Sun Aug 02, 2020 11:40 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief (Low-oxalate diet)
Replies: 107
Views: 24360

Re: Another year of relief (Low-oxalate diet)

You may be in for some good luck. If you reduced your high oxalates you may have achieved an equilibrium with variable effects. I would have expected your RLS to improve, so that is not a good sign. But if you go no oxalates for at least 5 days you will know for sure. Eating keto, I eliminated almo...