Search found 171 matches

by Frunobulax
Mon Sep 16, 2019 3:17 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Increasing REM sleep
Replies: 15
Views: 120

Re: Increasing REM sleep

Is REM sleep the phase where we dream? For the last 4 years or so I hardly dream at all, so basically this may have started when I went on Oxycodone. It's not about remembering dreams, and I know that we dream sometime but don't realize it. But until then I would wake up now and then and remember th...
by Frunobulax
Mon Sep 16, 2019 7:19 am
Forum: Augmentation
Topic: Augmentation and gut microbiome
Replies: 12
Views: 238

Re: Augmentation and gut microbiome

My primary care doctor, who is the best doctor I’ve ever had, had my ferritin tested recently, came in at 402. She also ordered my vitamin D level checked, that came in low as usual at 23, even after midday summer sun exposure 3x/week for fifteen minutes. I live at altitude and have fair skin that ...
by Frunobulax
Sun Sep 15, 2019 2:22 pm
Forum: Augmentation
Topic: Augmentation and gut microbiome
Replies: 12
Views: 238

Re: Augmentation and gut microbiome

Pardon the pun, but my gut says we’re getting closer to uncovering what the links between the gut microbiome, BID, and RLS symptoms are. My gut also agrees with the hypothesis? theory? DAs somehow are damaging to the gut biome and are what lead in some way to augmentation. I can’t explain why this ...
by Frunobulax
Thu Sep 12, 2019 5:46 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: NADH Article by Professor George D. Birkmayer, MD/PhD, Vienna
Replies: 5
Views: 133

Re: NADH Article by Professor George D. Birkmayer, MD/PhD, Vienna

NADH is required by the cells to produce ATP, our energy "currency". It does help some ME/CFS patients, but this is pretty much the only context where I heard about it. Apparently it can be deficient if you lack Niacin. If you suffer from fatigue and tire easily, it may be worth a shot. Ot...
by Frunobulax
Wed Sep 04, 2019 2:16 pm
Forum: Augmentation
Topic: Augmentation and gut microbiome
Replies: 12
Views: 238

Re: Augmentation and gut microbiome

⋅  This theory explains why augmentation is partially reversible. With time, some gut bacteria restore themselves. However, severe damages may never be repaired as we live in a mostly bacteria-free environment and don't digest as many different types of bacteria as our ancestors did. Also...
by Frunobulax
Wed Sep 04, 2019 2:11 pm
Forum: Augmentation
Topic: Augmentation and gut microbiome
Replies: 12
Views: 238

Re: Augmentation and gut microbiome

Interesting theory, and I too have been amazed at the wide ranging effects of varying gut bacteria environment. Problem is, BID (Brain Iron Deficiency) has been shown to be the cause of RLS by numerous methods. The basics are: 1) Autopsy studies of brains of patients with RLS show low brain iron. 2...
by Frunobulax
Wed Sep 04, 2019 11:24 am
Forum: Augmentation
Topic: Augmentation and gut microbiome
Replies: 12
Views: 238

Augmentation and gut microbiome

Over the last months I was amazed in how many context the microbiome plays a fundamental role. I wonder if anybody has considered the microbiome in the context of augmentation? I found little research connecting RLS to gut microbiota research, but one thing caught my eye: https://neurosciencenews.co...
by Frunobulax
Tue Aug 27, 2019 10:14 am
Forum: General Topics: RLS/WED
Topic: Insomnia
Replies: 8
Views: 135

Re: Insomnia

Vichic wrote::yawn: 4.30 am & im the only person browsing on here.


Chances are 4:30 am for you is something like 1:30pm for me, give or take a few hours :)
by Frunobulax
Wed Aug 21, 2019 7:46 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 74
Views: 2972

Re: Experience with Injectafer?

So, a month after my Injectafer IV. Unfortunately I can report no significant improvement, I was on 25mg oxycodone before (10 in the morning and 15 in the evening) and tried to reduce that to 20mg (10/10) twice, once a week after the IV and once more last week, but it seems the RLS breaks through in...
by Frunobulax
Wed Aug 21, 2019 7:42 pm
Forum: Prescription Medications
Topic: Psychotic withdrawals from Pramipexole?
Replies: 7
Views: 90

Re: Psychotic withdrawals from Pramipexole?

I had withdrawal from Pramipexole too, I was on 1mg a day and stopped cold turkey. Mood swings, from depression to high and back in a day. Nausea, sweat outbreaks, I felt hot and cold at times, probably some more things I have forgotten. After 2 weeks only the depression stayed, and it took roughly ...
by Frunobulax
Wed Jul 31, 2019 2:55 pm
Forum: Physical Treatments
Topic: What’s working for me
Replies: 16
Views: 504

Re: What’s working for me

I had my Iron tested and it was just somewhat low according to the doc, so he did put me on iron supplant, but didn't seem to help my RLS. It takes month until oral iron takes effect. Very slow, and often very disappointing results. IVs are much better if you can get them. For oral iron you have to...
by Frunobulax
Tue Jul 23, 2019 6:10 pm
Forum: Everything Else...just no RLS/WED!
Topic: Weight Loss
Replies: 41
Views: 8068

Re: Weight Loss

I've lost 20 pounds in the last month. The same 20 that I have lost before. I decided to do Keto this time. It's similar to what I have done in the past, just fewer carbs. I will go back to my other plan once I get this weight off. It is a combination of keto and paleo. Keto is just like Atkins. Ju...
by Frunobulax
Tue Jul 23, 2019 6:41 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Discovered something but it could be bad for me
Replies: 6
Views: 289

Re: Discovered something but it could be bad for me

My Doctor said that the dose of Gabapentin I am on is fine. I've been on this regiment for a while now and I am doing quite fine it is like a miracle find for me. My understanding is that Gabapentin has a limit that the body can process, and it won't be more efficient if you take more. IIRC the lim...
by Frunobulax
Tue Jul 23, 2019 6:35 am
Forum: General Topics: RLS/WED
Topic: Inlfammation and RLS
Replies: 3
Views: 100

Re: Inlfammation and RLS

Inflammation causes increased ferritin levels, so it does something to our iron stores. Of course we have no clue (yet) what exactly that something is :)
by Frunobulax
Fri Jul 19, 2019 9:04 pm
Forum: Prescription Medications
Topic: myoclonus
Replies: 16
Views: 232

Re: myoclonus

Curious. I remember this from augmenting too, but for me it was never periodic, hence I never called it PLMW. Please help me understand...when you say it wasn't periodic, I am not following. Did it just happen once in awhile rather then several in succession? Yes, exactly. But it would usually forc...

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