Search found 153 matches

by Frunobulax
Wed Jul 17, 2019 4:26 pm
Forum: Prescription Medications
Topic: Getting rid of PPIs (acid blockers)
Replies: 3
Views: 18

Re: Getting rid of PPIs (acid blockers)

Interesting story and I'm glad you got off the PPIs. I did have mercury exposure in my teens, but have never had my level checked. I may ask my doctor to do so next visit. I'd suggest to google first. This is a very complex topic, as (a) testing for mercury is difficult and (b) chelating is even mo...
by Frunobulax
Wed Jul 17, 2019 1:10 pm
Forum: Prescription Medications
Topic: Getting rid of PPIs (acid blockers)
Replies: 3
Views: 18

Getting rid of PPIs (acid blockers)

If you take PPIs, you might get relief for your RLS by dropping them. I did it, it wasn't easy, and I'd like to share. Sorry if it's a long read. I had my first RLS symptoms about 2 months after I started taking PPIs (Proton-Pump Inhibitors, stomach acid blockers), Omeprazole 20mg a day. I didn't re...
by Frunobulax
Mon Jul 15, 2019 9:02 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 470
Views: 111883

Re: Published Research - General Sleep and RLS (WED)

... Personally I find it very convincing that the majority of RLS patients suffers from BID. Current thinking is that ALL RLS patients, with the exception of chronic renal failure patients on dialysis, have BID. Can we be sure? There are a few cases of "miracle healings" that don't fit th...
by Frunobulax
Mon Jul 15, 2019 10:26 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 470
Views: 111883

Re: Published Research - General Sleep and RLS (WED)

But the important thing is that research is making major strides. My point is that the research is in the wrong direction. I make these statements presented as a solo and apparent madman, which I’m prepared to accept, based on my own experiences, what I have read on numerous forums, and talking to ...
by Frunobulax
Mon Jul 15, 2019 9:58 am
Forum: Prescription Medications
Topic: Iron Dextran IV
Replies: 2
Views: 38

Re: Iron Dextran IV

Where have you heard that? As for the iron itself, oral iron absorption is very low. I'm not a specialist there but I think one IV will give you as much iron as months or even years of oral iron supplements. I wouldn't expect the oral supplements to have any effect there. Is there any other reason t...
by Frunobulax
Mon Jul 15, 2019 9:50 am
Forum: Prescription Medications
Topic: Started gabapenten - no relief
Replies: 8
Views: 70

Re: Started gabapenten - no relief

Fruno, that sounds exactly like what I experienced. Last night, I didn't take it. My arms were fine and I slept for 3 hours straight, then two more hours of interrupted sleep. 5 hours of sleep total. Finally. Yeah. Gabapentin did nothing for me. Some idiot doctors tried to switch me to Gabapentin/L...
by Frunobulax
Mon Jul 15, 2019 9:35 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Poll: Oral iron and ferritin levels
Replies: 8
Views: 106

Re: Poll: Oral iron and ferritin levels

So far that's not a ringing endorsement for oral iron :-\
by Frunobulax
Mon Jul 15, 2019 9:34 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Dr. Gundry's supplement
Replies: 8
Views: 391

Re: Dr. Gundry's supplement

Glutamine and Carnitine in fairly high doses That is a warning bell to start with, a simple Google will show the link in the microbiome to Carnitine and cardio vascular disease, so ignorant is one appropriate adjective to add to Gundry’s claims about himself. Maybe my english fails me here, it seem...
by Frunobulax
Fri Jul 12, 2019 12:33 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 106
Views: 2961

Re: Attempting to get off Ropinirole - again

Ann, My diabetic diagnosis was about 3 months ago though I've been pre diabetic on several previous occasions. Dr offered metformin but I suggested 3 - 6 months to see if I could make a difference myself. Dr said not to go at it hammer and tongs because whatever I do has to be sustainable.. Have yo...
by Frunobulax
Fri Jul 12, 2019 12:23 pm
Forum: Prescription Medications
Topic: Started gabapenten - no relief
Replies: 8
Views: 70

Re: Started gabapenten - no relief

I was just prescribed Gabapenten, after stopping Ropinirole. The first day, I took 300 mg before bed. The second night, I took 600 mg before bed. Both times I experienced NO relief, my RLS seemed suddenly strong in my arms, and I was groggy headed. I had a similar experience a few years ago, when I...
by Frunobulax
Fri Jul 12, 2019 12:14 pm
Forum: Prescription Medications
Topic: Propofol
Replies: 2
Views: 41

Re: Propofol

I insisted on using an alternative to propofol when I had some operations recently, even though the RLS group over here has written an anesthetics guide that allows propofol. Apparently there are other, benzo based anesthetics that are just as safe and efficient. Why take a risk? I did however exper...
by Frunobulax
Fri Jul 12, 2019 12:11 pm
Forum: Prescription Medications
Topic: Opioids: sedate or stop movement?
Replies: 7
Views: 158

Re: Opioids: sedate or stop movement?

I echo Beth - I am awakened from dreaming at times, deeply asleep, and I am running or things in my dreams are making me move my body. I hardly ever dream at the moment. About once a month I will dream something and remember on the morning after that I did dream, but never the contents of the dream...
by Frunobulax
Fri Jul 12, 2019 12:05 pm
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 71
Views: 2537

Re: Experience with Injectafer?

Curious, one of you reported that Injectafer is $1500 to $2000? I paid about $450 for 1000mg FerInject (same drug, different brand) in Germany, unfortunately healthcare providers over here do not pay for it. They are happy to pay a variety of much more expensive drugs including Oxycodone, ah well......
by Frunobulax
Fri Jul 12, 2019 11:54 am
Forum: General Topics: RLS/WED
Topic: Can some one help me please?
Replies: 16
Views: 119

Re: Can some one help me please?

Hello, I have only ever been to the doctor one time and I was prescribed Trazadone and then I didn't really like the was the meds made me feel. If they didn't knock me out and I was up all night I felt like a zombie at work. [...] This medicine (gabapentin) does help. But this doc is the same doc t...
by Frunobulax
Fri Jul 12, 2019 11:34 am
Forum: General Topics: RLS/WED
Topic: sleep deprivation
Replies: 16
Views: 333

Re: sleep deprivation

For RLS - is it possible for the legs to be better i.e. no twitching, pain etc but the sleep problems persist? Additional to my other response: I did suffer from insomnia for all my adult life (~30 years now), of course it got worse when my RLS manifested itself, about 12 years ago. However, I slep...

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