Search found 166 matches

by 2BassetMom
Wed Jul 03, 2019 1:51 pm
Forum: Prescription Medications
Topic: Getting off Neupro Patch
Replies: 2
Views: 134

Getting off Neupro Patch

After close to 18 months on the Neupro patch, I am getting off. It worked beautifully for about a year but the last 6 months have been a roller coaster. I started to get rashes on the patch site and in the last month these rashes have moved on to welts. Also, it has become less effective with my sym...
by 2BassetMom
Wed Jun 12, 2019 7:37 am
Forum: Augmentation
Topic: Augmentation on Neupro vs augmentation on pramixepole
Replies: 8
Views: 283

Re: Augmentation on Neupro vs augmentation on pramixepole

As much as I hate to admit it I think I'm augmenting on the Neupro Patch. I augmented on the other DA's and Neupro was the last chance. I currently am on 1 mg having come down from 2. I also take oxycodone 7.5 and that helps relieve the symptoms. I have found that OxyContin CR 10mg does very little ...
by 2BassetMom
Tue Apr 23, 2019 3:44 pm
Forum: Everything Else...just no RLS/WED!
Topic: Very Sad
Replies: 15
Views: 1354

Re: Very Sad

This is so sad. You and your husband were there for him and gave him love and comfort as he passed. Two years ago we had to put our 11 year old yellow lab down as she was suffering with cancer. I stayed with her at the vets until she stopped breathing. My husband was so overwrought he couldn't bear ...
by 2BassetMom
Fri Feb 08, 2019 8:03 am
Forum: Everything Else...just no RLS/WED!
Topic: Very Sad
Replies: 15
Views: 1354

Re: Very Sad

Deb, I just now read your sad news. I am very sorry for your family's loss. You will be in my prayers.
by 2BassetMom
Sat Dec 29, 2018 9:28 am
Forum: Everything Else...just no RLS/WED!
Topic: where is everyone?
Replies: 18
Views: 958

Re: where is everyone?

Betty, Thanks for the laugh! I had to somehow laugh silently because I didn't want to wake my husband.
by 2BassetMom
Thu Nov 29, 2018 10:14 am
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 23
Views: 1259

Re: Any luck with a sleep study?

I have had 2 sleep studies, one in San Diego at my specialists and one up here in Idaho with a local sleep/neurologist. The first was done to observe my rls and see what else was going on. I was found to have sleep apnea. My doctor up here wanted one to determine if my opioids would adversely affect...
by 2BassetMom
Fri Oct 26, 2018 5:38 am
Forum: Prescription Medications
Topic: Neupro and Anxiety
Replies: 6
Views: 876

Re: Neupro and Anxiety

Yes, I have had only 1 brief attack since I last posted. I think that being up all night with symptoms vs anxiety I would choose being up all night. But, maybe I won't need to decided. Hopefully that was a side effect that has come and gone. Thanks for your concern.
by 2BassetMom
Mon Oct 22, 2018 5:31 am
Forum: Prescription Medications
Topic: Neupro and Anxiety
Replies: 6
Views: 876

Re: Neupro and Anxiety

Steve, I have messaged my doctor. I'm leaving the patch off tonight to see if there is a difference.
by 2BassetMom
Sun Oct 21, 2018 11:13 pm
Forum: Prescription Medications
Topic: Neupro and Anxiety
Replies: 6
Views: 876

Neupro and Anxiety

I have been on the Neupro Patch, 1mg every 24 hours, for close to a month with great success. I am starting to wake up with anxiety attacks during the night and also experienced them during the day. I had this reaction while on Ropinirole. I am wondering if anyone else has had this side-effect?
by 2BassetMom
Mon Oct 08, 2018 4:15 am
Forum: General Topics: RLS/WED
Topic: refractory rls and psoriasis relationship
Replies: 7
Views: 550

Re: refractory rls and psoriasis relationship

I have plaque psoriasis on my scalp. I've had it for about 10 years. It absolutely can drive me crazy along with not being able to wear dark shirts.
by 2BassetMom
Mon Oct 08, 2018 4:09 am
Forum: Physical Treatments
Topic: Oils
Replies: 3
Views: 619

Re: Oils

I have tired several oils using a diffuser. They smell nice but I haven't seen any effect on my RLS. I have a sweet daughter-in-law who is quite knowledgeable on this subject and she has tried several combinations to no avail. The best I can say is that I found them to be comforting.
by 2BassetMom
Sat Oct 06, 2018 8:19 am
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 921

Re: RLS Patient Symposium

I was without a stash until recently. I am on oxycodone 7.5/3.25 that I take midday. I found that I often was taking it also at 4:00am because of pain and rls. My PA prescribed enough for me to take 2 a day if needed so now I am building up a small stash. I feel better having that. I helped me throu...
by 2BassetMom
Thu Oct 04, 2018 9:04 pm
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 921

Re: RLS Patient Symposium

Ann, My daughter along with my husband make it possible for me to lead an active life. She is very special indeed!
by 2BassetMom
Thu Oct 04, 2018 8:55 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 94
Views: 3760

Re: Back Surgery and RLS plus spasms

I hope this surgery is successful and the recovery is not as difficult as you anticipate. As for the spinal problems connected to RLS: I have had a bulging disk in my L4&5. I originally went to pain management for this but RLS developed also. My neurosurgeon says that their is a connection betwe...
by 2BassetMom
Thu Oct 04, 2018 8:46 pm
Forum: General Topics: RLS/WED
Topic: RLS and Alcohol remedies....?
Replies: 5
Views: 453

Re: RLS and Alcohol remedies....?

I will have a very small amount of red wine at dinner. This happens maybe once a month. I don't notice any change in my symptoms. Occasionally, when I am having a very bad night I will have a "wee dram" of good single malt scotch with a bit of water. I don't know what it does for my physic...

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