Search found 180 matches

by 2BassetMom
Thu Sep 10, 2020 10:31 am
Forum: Prescription Medications
Topic: Comimg off of Neupro Patch
Replies: 18
Views: 398

Re: Comimg off of Neupro Patch

Thanks for the encouragement! It has been tough with setbacks now & then. Tonight has been particularly rough with hip pain accompanying the dancing legs. My appointment can't get here fast enough!
by 2BassetMom
Thu Sep 10, 2020 10:22 am
Forum: General Topics: RLS
Topic: RLS Revelation from the Past
Replies: 3
Views: 44

RLS Revelation from the Past

I want to share something I learned today about a loving personthat meant a lot to me in my younger years. Growing up my best friend lived next door and our moms were best friends too. We would freely go from one house to another that's how close we were. As we became adults, I moved away and we bec...
by 2BassetMom
Wed Aug 26, 2020 6:28 am
Forum: Prescription Medications
Topic: Comimg off of Neupro Patch
Replies: 18
Views: 398

Re: Comimg off of Neupro Patch

Beth I was wondering the same thing. I have scheduled an appointment for September 24. I will be able to get an early morning flight and go to my appointment the same day. Meanwhile I will just have to get along to best I can with hot baths and lots of pacing.
by 2BassetMom
Wed Aug 26, 2020 6:24 am
Forum: Everything Else...just no RLS!
Topic: An understanding dental assistant
Replies: 3
Views: 434

An understanding dental assistant

I felt I had to share my good visit to my dentist today. I have been going to this office for about 5 years. I have gotten to know the staff well and really like them. In the past year I have had the same hygienist/assistant work on me and she understands restless legs! She has them too but not as s...
by 2BassetMom
Sun Aug 23, 2020 7:17 am
Forum: Prescription Medications
Topic: Comimg off of Neupro Patch
Replies: 18
Views: 398

Re: Comimg off of Neupro Patch

The battle continues. I am down to using the Neupro Patch maybe once a week and that is 1/2 patch or .5mg. I only use it if I am at the breaking point. I have restless legs throughout the night and several times a day. Still on oxycodone. I will be making an appointment to fly down to see my RLS spe...
by 2BassetMom
Wed Jul 29, 2020 7:36 pm
Forum: Physical Treatments
Topic: Counter- Intuitive Tricks to Get Rid of RLS, including Caffeine
Replies: 12
Views: 615

Re: Counter- Intuitive Tricks to Get Rid of RLS, including Caffeine

I just read through these tips and plan to try the ones I haven't used before. I too have cereal and coffee if I get up and it does help. My cereal of choice is Honey Nut Cheerios:) I take hot baths but I'm going to try to cold method too. My favorite brain distraction is crossword puzzles. I keep a...
by 2BassetMom
Wed Jul 29, 2020 7:26 pm
Forum: Prescription Medications
Topic: Comimg off of Neupro Patch
Replies: 18
Views: 398

Re: Comimg off of Neupro Patch

I heard from my RLS doctor's nurse. She told me what I have read on here that there will be 3-4 weeks of hell coming off of a dopamine agonist. When this time is up I may need to fly down to see the doctor so they can evaluate how I am without a DA. )ne of our sons lives there and it will be great t...
by 2BassetMom
Wed Jul 29, 2020 5:03 am
Forum: Prescription Medications
Topic: Comimg off of Neupro Patch
Replies: 18
Views: 398

Re: Comimg off of Neupro Patch

I heard from my primary care doctor's office today and was told my Ferritin level is 113. I have a call into Dr. Poceta's nurse and expect to hear within a day or two. My RLS has been relentless in the last 24 hours. I didn't replace my last bit of patch. I have had maybe an hour's worth of sleep. I...
by 2BassetMom
Fri Jul 24, 2020 6:06 am
Forum: Prescription Medications
Topic: Comimg off of Neupro Patch
Replies: 18
Views: 398

Re: Comimg off of Neupro Patch

I'm almost off the Neupro Patch. I had my Ferritin level tested last week and waiting for the results. I'll then contact my doctor to see where we go from there.
by 2BassetMom
Fri Jul 17, 2020 10:00 am
Forum: Prescription Medications
Topic: Comimg off of Neupro Patch
Replies: 18
Views: 398

Re: Comimg off of Neupro Patch

I really appreciate the info. I'll see what Dr. Poceta suggests and go from there. The combining of meds looks like a good option. I would have loved to have gone to the fall event to see people I met in La Jolla. It's good to have faces to go with names. I'll let you know what comes of my med dilem...
by 2BassetMom
Fri Jul 17, 2020 2:55 am
Forum: Prescription Medications
Topic: Comimg off of Neupro Patch
Replies: 18
Views: 398

Comimg off of Neupro Patch

I am currently coming off of the Neupro Patch having been on it for about 2 1/2 years. My reasons for getting off are, Expense ( I'm in the Medicare "donut hole"), the itching at the site of the patch and I believe I have been experiencing augmentation. I have gone from 2mg down to .5mg. I am also o...
by 2BassetMom
Thu Jun 04, 2020 7:06 am
Forum: Physical Treatments
Topic: Healy Device
Replies: 7
Views: 759

Re: Healy Device

This was my impression also. Another sign was that the gal my friend had me listen to as she gave her testimony lumped RLS in with a myriad of other aches and pains. Red flag! she claimed to have RLS at one time and it went completely away with just a few treatments. Aargh! I'm used to people sharin...
by 2BassetMom
Wed Jun 03, 2020 7:20 am
Forum: Physical Treatments
Topic: Healy Device
Replies: 7
Views: 759

Re: Healy Device

Thanks badnights! I appreciate the speedy answer. My friend was really putting on the pressure even to the point of making an appointment for me. I felt as though I was being hounded by an over enthusiastic car salesman. No put down on car salespeople, I known some very helpful ones:)The sentence yo...
by 2BassetMom
Wed Jun 03, 2020 3:21 am
Forum: Physical Treatments
Topic: Healy Device
Replies: 7
Views: 759

Healy Device

Hi RLS Friends, I have been absent for quite awhile but I am back and so happy to be here. I had a conversation with a person whom I could call a friend but not close. she called me all excited about a treatment from Germany called the Healy Device. she was sure this would be the cure for my restles...
by 2BassetMom
Wed Jul 03, 2019 1:51 pm
Forum: Prescription Medications
Topic: Getting off Neupro Patch
Replies: 2
Views: 224

Getting off Neupro Patch

After close to 18 months on the Neupro patch, I am getting off. It worked beautifully for about a year but the last 6 months have been a roller coaster. I started to get rashes on the patch site and in the last month these rashes have moved on to welts. Also, it has become less effective with my sym...