Search found 162 matches

by 2BassetMom
Sat Dec 29, 2018 9:28 am
Forum: Everything Else...just no RLS/WED!
Topic: where is everyone?
Replies: 18
Views: 553

Re: where is everyone?

Betty, Thanks for the laugh! I had to somehow laugh silently because I didn't want to wake my husband.
by 2BassetMom
Thu Nov 29, 2018 10:14 am
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 17
Views: 545

Re: Any luck with a sleep study?

I have had 2 sleep studies, one in San Diego at my specialists and one up here in Idaho with a local sleep/neurologist. The first was done to observe my rls and see what else was going on. I was found to have sleep apnea. My doctor up here wanted one to determine if my opioids would adversely affect...
by 2BassetMom
Fri Oct 26, 2018 5:38 am
Forum: Prescription Medications
Topic: Neupro and Anxiety
Replies: 6
Views: 715

Re: Neupro and Anxiety

Yes, I have had only 1 brief attack since I last posted. I think that being up all night with symptoms vs anxiety I would choose being up all night. But, maybe I won't need to decided. Hopefully that was a side effect that has come and gone. Thanks for your concern.
by 2BassetMom
Mon Oct 22, 2018 5:31 am
Forum: Prescription Medications
Topic: Neupro and Anxiety
Replies: 6
Views: 715

Re: Neupro and Anxiety

Steve, I have messaged my doctor. I'm leaving the patch off tonight to see if there is a difference.
by 2BassetMom
Sun Oct 21, 2018 11:13 pm
Forum: Prescription Medications
Topic: Neupro and Anxiety
Replies: 6
Views: 715

Neupro and Anxiety

I have been on the Neupro Patch, 1mg every 24 hours, for close to a month with great success. I am starting to wake up with anxiety attacks during the night and also experienced them during the day. I had this reaction while on Ropinirole. I am wondering if anyone else has had this side-effect?
by 2BassetMom
Mon Oct 08, 2018 4:15 am
Forum: General Topics: RLS/WED
Topic: refractory rls and psoriasis relationship
Replies: 7
Views: 383

Re: refractory rls and psoriasis relationship

I have plaque psoriasis on my scalp. I've had it for about 10 years. It absolutely can drive me crazy along with not being able to wear dark shirts.
by 2BassetMom
Mon Oct 08, 2018 4:09 am
Forum: Physical Treatments
Topic: Oils
Replies: 3
Views: 434

Re: Oils

I have tired several oils using a diffuser. They smell nice but I haven't seen any effect on my RLS. I have a sweet daughter-in-law who is quite knowledgeable on this subject and she has tried several combinations to no avail. The best I can say is that I found them to be comforting.
by 2BassetMom
Sat Oct 06, 2018 8:19 am
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 704

Re: RLS Patient Symposium

I was without a stash until recently. I am on oxycodone 7.5/3.25 that I take midday. I found that I often was taking it also at 4:00am because of pain and rls. My PA prescribed enough for me to take 2 a day if needed so now I am building up a small stash. I feel better having that. I helped me throu...
by 2BassetMom
Thu Oct 04, 2018 9:04 pm
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 704

Re: RLS Patient Symposium

Ann, My daughter along with my husband make it possible for me to lead an active life. She is very special indeed!
by 2BassetMom
Thu Oct 04, 2018 8:55 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 89
Views: 2446

Re: Back Surgery and RLS plus spasms

I hope this surgery is successful and the recovery is not as difficult as you anticipate. As for the spinal problems connected to RLS: I have had a bulging disk in my L4&5. I originally went to pain management for this but RLS developed also. My neurosurgeon says that their is a connection betwe...
by 2BassetMom
Thu Oct 04, 2018 8:46 pm
Forum: General Topics: RLS/WED
Topic: RLS and Alcohol remedies....?
Replies: 5
Views: 361

Re: RLS and Alcohol remedies....?

I will have a very small amount of red wine at dinner. This happens maybe once a month. I don't notice any change in my symptoms. Occasionally, when I am having a very bad night I will have a "wee dram" of good single malt scotch with a bit of water. I don't know what it does for my physic...
by 2BassetMom
Thu Oct 04, 2018 8:38 pm
Forum: General Topics: RLS/WED
Topic: RLS Patient Symposium
Replies: 20
Views: 704

Re: RLS Patient Symposium

I was at the symposium also and had my daughter take notes. As soon as she types them up I'll be able to add to this conversation. One item I found disturbing also is #5. I was surprised that these experts didn't have much input on the suicide issue. If they could read the stories on this forum and ...
by 2BassetMom
Sat Sep 08, 2018 6:59 pm
Forum: General Topics: RLS/WED
Topic: How long have you had RLS/WED
Replies: 9
Views: 527

Re: How long have you had RLS/WED

I had RLS intermittently from around 40 years of age. Usually I would get it on long flights. I didn't know there was a name for this. My mom had it in her later years and took Xanax for it. About 3 years ago I started having a problem with pain in my left knee. I was on hydrocodone for that but it ...
by 2BassetMom
Thu Aug 30, 2018 6:19 am
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 16
Views: 1029

Re: Need Sleep

I'll discuss that with this doctor.
I was able to get a sleep study next Wednesday.
by 2BassetMom
Wed Aug 29, 2018 7:51 am
Forum: General Topics: RLS/WED
Topic: Need Sleep
Replies: 16
Views: 1029

Re: Need Sleep

The sleep doctor knows RLS very well. I was so pleased with his knowledge. I don't have slight sleep apnea, actually it is severe at different times during the early morning hours. He is concerned and will do a sleep study with a c-pap machine in the lab. We talked about medications and he understan...

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