Restless Legs Syndrome (RLS) Discussion Board

I am surprised there was such little response to my post. Yes, I still take Gabapentin 900mg daily at the same time as I take the Methadone. Why did the Methadone work so well? There are others on this site that have taken the drug, did it not work for them? Perhaps it was when they took the drug ...

I have had RLS for over 30 years and last winter I augmented on Mirapex. At my suggestion, my GP got me hydrocodone, but I came off Mirapex too fast and suffered greatly for three months. At times wondering if I could go on. I finally got in to a neurologist and she put me on Methadone 7.5mg with ...

tried taking all 7.5mg at 9pm but did not get an effect until midnight or 1am. Miserable up until then. Will try tonight to take it at 6pm and see how that works out.

After six months I finally got in to see a neurologist. My previous meds were 1200mg Gabapentin and 30mg of Hydrocodone nightly. She thought the Hydrocodone was too short acting for me to make it through the night. She was right, I was up two to three times a night. I now have Methadone as a ...

I feel I am doing better now than when my Mirapex augmented. When I stopped taking it last fall, quality of life was such that I considered ending it. Now I take one hydrocodone (10mg) and two gabapentin (300mg each) at 4pm and two hydrocodone and two gabapentin at 8pm. It is better now but RLS has ...

This evening, I watched several YOUTUBE videos sponsored by this foundation and they were great. What I did not hear was my issue of movement from one extremity to another. When I go to bed at night, I never know where the RLS will show up, if it does. Could be just one arm or just one leg, the next ...

I have learned over the years that there are little things that can help me manage my RLS. This is especially true when away from home such as in a hotel. Spent many a night in hotels talking to the desk clerk. In my last experience, the desk clerk also had RLS, he can't sleep so he volunteered to ...

Thank you, will continue as planned.

Well it has been a month now and I think I have a plan that is working. I take meds three times a day. In the morning it is Turmeric and magnesium. Not sure if either of these meds matter. At 4pm it is two Gabapentin, one magnesium, one iron, three D3. At 8pm it is two hydrocodone, two gabapentin ...

Well, it has been a couple of weeks now on Gabapentin and it is working as well as I will probably ever have for relief. Now I take one at 4pm, two at 8pm and two hydrocodone at 8pm as well. I have Clonazepam for emergencies and I have used one tablet about once a week. I hate to use it as I am ...

Thank you so much for your long and thoughtful response Bridgercan. I played golf today, a pick up game with people I did not know. One was a Phyician, and we talked about RLS and my inability to get in to see a neurologist. He looked at me and said "the reason you can't get in to see one is that ...

Thank you for your information, you are a valuable resource.

I have been on this site quite a few times recently and have a primary care doctor who openly admits he is unqualified to help me with my RLS. If I find something that looks to be of value, he is willing to help me through it. I really appreciate him. He is also willing to call a specialist is we ...

Hmmmm.....I take one 300mg capsule at 8am, noon 4 pm and two 300mg capsules at 8pm. that is 1500mg daily. I have been reading about Horizant, if I switched over, how does one transition?

Well with the ongoing treatment of RLS, my local providers is willing to help any way he can but admits this disease is way out of his league. So far I have not been able to get into a neurologist but keep trying. It is doubtful there is one in Oregon that will see me. In the evolution of ...