Lymphadema leg wraps for RLs pain

Please share your experiences, successes, and failures in using non-drug therapies for RLS/WED (methods of relief that don't involve swallowing or injecting anything), including compression, heat, light, stretches, acupuncture, etc. Also under this heading, medical interventions that don't involve the administration of a medicine to the body (eg. varicose-vein operations, deep-brain stimulation). [This forum contains Topics started prior to 2009 that deal with Non-prescription Medicines, Supplements, & Diet.]
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JLECH75
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Joined: Sun Jul 07, 2024 5:29 am

Lymphadema leg wraps for RLs pain

Post by JLECH75 »

So my PCP is insisting on the cure for my excruciating lower leg pain be managed by lymphadema leg wraps done by a PT. I've seen lympadema in my days as an rn and I'm not seeing this in my legs. Cellulite maybe... lymphadema no. I did try compression socks that down right made the pain worse in my opinion. I'd love to know how I am even going to shower with these on and worried that it's going to make my pain worse. Not to mention it's 100 degrees here now with 60-80% humidity. I can't get into a neurologist without a referral. I am beyond miserable and frustrated
Anyone on here be3n treated for RLS pain with lymphadema wraps
Rustsmith
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Location: Colorado Springs, Colorado

Re: Lymphadema leg wraps for RLs pain

Post by Rustsmith »

I have never even heard of lymphadema leg wraps even being suggested as a treatment for RLS much less tried and failed. RLS is a neurological disease, not one that has any known involvement with the lymphatic system. Some vein doctors claim that they can provide help for RLS sufferers, but the reports from people who have tried that approach have generally been either minor improvement or none at all.

My only thought is to find a different PCP and this time, one that is familiar with treating RLS. If you don't have another PCP in your area that accepts your insurance, it may be necessary to do a bit of travel. Many of us with severe RLS have to travel to see a doctor who is "qualified" to treat RLS properly.
Steve

https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
Vadowa
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Joined: Thu Jul 04, 2024 7:24 pm

Re: Lymphadema leg wraps for RLs pain

Post by Vadowa »

I hear you—I had a similar experience with compression socks making my pain worse, so I understand your frustration. I didn’t have any luck with lymphadema wraps for RLS either. It’s tough dealing with the heat and humidity on top of the pain. If your PCP isn’t listening, maybe it’s time for a second opinion or ask for different treatment options.
Polar Bear
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Location: United Kingdom

Re: Lymphadema leg wraps for RLs pain

Post by Polar Bear »

I don't have lymphedema but I know that the very thought of compression wraps/socks drives me crazy.
Betty
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation
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