Postby Bronwen » Sun May 27, 2018 7:55 am
Thank you StJohn and Rustsmith, I am most grateful for your input.
On Friday I took a file full of information from rls.org, PubMed and various other sites to my GP.
He took one look at (very small) me and my (very fat) file and said - 'Here comes trouble!'
I said - 'You have no idea Doc'.
Last month I had insisted he measure my ferritin, but he had not seen me since.
My level is 20.
He sat and listened to every word of my epically long lecture on dopamine, ferritin, methadone, DAWS, glutamate, GABA, Dr. Earley and on and on. He did not interrupt me once.
After hearing the evidence, he said- 'When would you like to start the iron infusions? Now?' I said - 'Now would be good.'
So, he infused 200mg of iron sucrose over three hours and will do 300mg more next week. Then check in a month or so.
I am fortunate to have a doctor whose ego does not get in the way of new information, and he rather enjoys uppity web-searchers like me.
Now he has my copious file, and I hope it may help other patients.
So, given my ferritin levels, it would seem wise to wait until at least the first course is complete before doing anything else. Or is that the terror of withdrawal speaking? What would be your advice?
I gave the doc my methadone lecture about two months ago. He baulked a bit, of course, but I insisted he keep searching through his desk reference, and he dutifully did so, and he found it and gave me a little. I won that battle without difficulty - except for finding a pharmacy to dispense it. There were a lot of hilarious interactions, given the fact that I am 5 ft 2in, and weigh about 105 pounds, and am seventy-three.
Woohoo.
I first found the methadone information here, some time ago, and I was startled, but it is what started my long hunt for all the facts on WED that I could glean, and take back my agency. It is thanks to people like you that I have easily won two significant battles. And my doctor has learned some new lessons with enormous grace.
I will keep you posted. Now I must start the first chapter of 'My Great WED Novel' - or have I just done that? Thanks for your endurance.