JULY 2019 - New Members
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- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to alaka3355
Tuesday, July 23
Welcome to
alaka3355, for whom RLS is a constant battle....alaka has been on medication for years and would like to contact others with the condition to find out if there is something working better for them.
If you will post a note telling us about your medication, we would be happy to share what is working for us.
Welcome to
alaka3355, for whom RLS is a constant battle....alaka has been on medication for years and would like to contact others with the condition to find out if there is something working better for them.
If you will post a note telling us about your medication, we would be happy to share what is working for us.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Taco Bill
Tuesday, July 23
Welcome to
Taco Bill, who has a case of refractory RLS. It has unequivocally destroyed his life. His biggest struggle is obtaining the medication he needs to live. Without medication he cannot sleep, even a nap. He can go days without sleep. The problem is that the only medication that helps is an opiate.
Please post a note giving us a bit better idea of the challenges you face getting an opioid med. Many of us have faced the same challenge and we have a few suggestions that may help. The RLS Foundation is also working on federal regulators to try to get them to ease up on doctors and pharmacies when it comes to providing this type of medication that is so critical to so many of us.
Welcome to
Taco Bill, who has a case of refractory RLS. It has unequivocally destroyed his life. His biggest struggle is obtaining the medication he needs to live. Without medication he cannot sleep, even a nap. He can go days without sleep. The problem is that the only medication that helps is an opiate.
Please post a note giving us a bit better idea of the challenges you face getting an opioid med. Many of us have faced the same challenge and we have a few suggestions that may help. The RLS Foundation is also working on federal regulators to try to get them to ease up on doctors and pharmacies when it comes to providing this type of medication that is so critical to so many of us.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
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- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to tallbald
Thursday, July 25
Welcome to
tallbald, who is interested in hearing the experiences of others, getting support and new ideas for coping with RLS. He has had RLS for over 40 years.
If you will post a note telling us what you are currently doing to manage your RLS, we would be happy to share our experiences as well as provide any support that you need.
Welcome to
tallbald, who is interested in hearing the experiences of others, getting support and new ideas for coping with RLS. He has had RLS for over 40 years.
If you will post a note telling us what you are currently doing to manage your RLS, we would be happy to share our experiences as well as provide any support that you need.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to JonathanS
Thursday, July 25
Welcome to
JonathanS, who can't sleep and can't do a full-time job so he has no money. His productivity hours are few.
Please post a note telling us what you are doing to manage your RLS and asking any questions you have so that we can provide any help possible.
Welcome to
JonathanS, who can't sleep and can't do a full-time job so he has no money. His productivity hours are few.
Please post a note telling us what you are doing to manage your RLS and asking any questions you have so that we can provide any help possible.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to tension55
Friday, July 26
Welcome to
tension55, who needs informations about mirapex withdrawal.
Please post a note telling us what dose of mirapex you are taking so that we can have an idea of what to suggest to you.
Welcome to
tension55, who needs informations about mirapex withdrawal.
Please post a note telling us what dose of mirapex you are taking so that we can have an idea of what to suggest to you.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Rugerhd
Saturday, July 27
Welcome to
Rugerhd, who is in RLs augmentation needs help on what medication is the best.
If you will post a note telling us about the dose and medication that has you augmenting, we can offer you some suggestions about the medications that will help (and those that will not).
Welcome to
Rugerhd, who is in RLs augmentation needs help on what medication is the best.
If you will post a note telling us about the dose and medication that has you augmenting, we can offer you some suggestions about the medications that will help (and those that will not).
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Jeanpernia1958
Saturday, July 27
Welcome to
Jeanpernia1958, who has lived in denial for very long time but is aware that it is a very present problem in her life.
If you will post a note, we can advise you on how to get started with treatment and what you should expect from a doctor.
Welcome to
Jeanpernia1958, who has lived in denial for very long time but is aware that it is a very present problem in her life.
If you will post a note, we can advise you on how to get started with treatment and what you should expect from a doctor.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Tpr
Saturday, July 27
Welcome to
Tpr, whose quality of sleep has gotten bad.
If you will post a note telling us what you are currently doing to manage your RLS, we can offer some suggestions for improving the quality of your sleep.
Welcome to
Tpr, whose quality of sleep has gotten bad.
If you will post a note telling us what you are currently doing to manage your RLS, we can offer some suggestions for improving the quality of your sleep.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Mroe67
Sunday, July 28
Welcome to
Mroe67, who wants to see what others are doing to relieve their RLS.
If you will post a message telling us what you currently do, we would be happy to share our experiences.
Welcome to
Mroe67, who wants to see what others are doing to relieve their RLS.
If you will post a message telling us what you currently do, we would be happy to share our experiences.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to JKaylor03
Monday, July 29
Welcome to
JKaylor03, who has RLS and it’s making JKaylor miserable. Not getting sleep is causing depression and bringing about anxiety. JKaylor is considering medication but want to reads about others experiences!
There are a number of medication options, if you will post a note telling us about your symptoms, we can walk you through the current recommendations and point you to publications that you can share with your doctor.
Welcome to
JKaylor03, who has RLS and it’s making JKaylor miserable. Not getting sleep is causing depression and bringing about anxiety. JKaylor is considering medication but want to reads about others experiences!
There are a number of medication options, if you will post a note telling us about your symptoms, we can walk you through the current recommendations and point you to publications that you can share with your doctor.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Lorry
Tuesday, July 30
Welcome to
Lorry, who has suffered from RLS for many years. Lorry started taking Maripex a year ago. It helps but doesn't always stop all of the RLS sensations. So, Lorry would like to know how others are treating their symptoms.
If you will post a note telling us about your dose of Mirapex and asking any questions that you have, I am sure that many of us will be more than happy to share our experiences and opinions.
Welcome to
Lorry, who has suffered from RLS for many years. Lorry started taking Maripex a year ago. It helps but doesn't always stop all of the RLS sensations. So, Lorry would like to know how others are treating their symptoms.
If you will post a note telling us about your dose of Mirapex and asking any questions that you have, I am sure that many of us will be more than happy to share our experiences and opinions.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Dial911
Tuesday, July 30
Welcome to
Dial911, who hasn't been diagnosed yet, but she is being driven nuts by these symptoms that seem to match with RLS, and she can't get an appointment with a neurologist for another couple of months. Her internist and physical therapist have tried some things, but nothing works, so she is hoping to get some ideas here.
Please post a note telling us about your symptoms so that we can point you to some things to help educate yourself. As for a "treatment" that does not involve meds, try soaking your legs in very hot water (as hot as you can stand) or very cold water. This often helps calm the sensations of RLS for long enough to be able to fall asleep.
Welcome to
Dial911, who hasn't been diagnosed yet, but she is being driven nuts by these symptoms that seem to match with RLS, and she can't get an appointment with a neurologist for another couple of months. Her internist and physical therapist have tried some things, but nothing works, so she is hoping to get some ideas here.
Please post a note telling us about your symptoms so that we can point you to some things to help educate yourself. As for a "treatment" that does not involve meds, try soaking your legs in very hot water (as hot as you can stand) or very cold water. This often helps calm the sensations of RLS for long enough to be able to fall asleep.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to Lisa*
Wednesday, July 31
Welcome to
Lisa*, whose RLS is so awful she cannot fall asleep. She went to bed at 10:30pm and was still suffering at 2:15. This is happening every night. She is nearly falling asleep driving because RLS is preventing her from getting enough sleep. She is becoming very depressed because of it.
Lisa, we can all relate. Please post a note telling us what you are doing to treat your RLS so that we will know what we can suggest so that you can get some sleep.
Welcome to
Lisa*, whose RLS is so awful she cannot fall asleep. She went to bed at 10:30pm and was still suffering at 2:15. This is happening every night. She is nearly falling asleep driving because RLS is preventing her from getting enough sleep. She is becoming very depressed because of it.
Lisa, we can all relate. Please post a note telling us what you are doing to treat your RLS so that we will know what we can suggest so that you can get some sleep.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
-
- Moderator
- Posts: 6557
- Joined: Sat Sep 28, 2013 9:31 pm
- Location: Colorado Springs, Colorado
Welcome to krockwell
Wednesday, July 31
Welcome to
krockwell, whose RLS has been difficult to manage most of the time. krockwell doesn't get good sleep and that affects so many aspects of life.
Please post a note telling us what you are currently doing to manage your RLS so that we can offer you some suggestions to improve how well it is managed.
Welcome to
krockwell, whose RLS has been difficult to manage most of the time. krockwell doesn't get good sleep and that affects so many aspects of life.
Please post a note telling us what you are currently doing to manage your RLS so that we can offer you some suggestions to improve how well it is managed.
Steve
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.
https://www.mayoclinicproceedings.org/a ... 0/fulltext
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation, and are not medical advice.