Darvocet
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Walking After Midnight
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Guest
Hi Em,
I'm posting from a hotel room, so just have a second - darvocet is one of the weaker opioids. It works best for less severe RLS. It also didn't work for me - it didn't hurt, and it releived the RLS some, just not all the way. For me, that meant I still didn't get sleep. Since yours doesn't keep you from sleeping, it might be great.
Again, this is not medical advice and is not recommended, but this is what I did when I was desperate. I had a one month script of it for a tiny amount. I wanted to see if an opioid would work instead of the Mirapex. So, I took doses I found on another Website (not sure where) for Darvocet and used my whole month's worth in a week (it really was for a tiny amount and I didn't take more than was a recommended dosage). I found out that it reduced my RLS tremendously, but wasn't the right opioid for me. That in itself was a relief.
When I got a doc to work with me, at least I knew opioids would work. We tried Ultram first - it also wasn't strong enough. Then based on Dr Buchfurer's advice and an email from him to take to me doctor, my doc prescribed the methadone. It is a great drug in the sense that there is no "high" and the abuse of it is almost nil. It also lasts up to 12 hours for most RLSers.
If you can get your local doc to listen to your far-away doc, I'd say go for it. FYI, I was thinking of emailing you some RLS literature I have. If you feel comfortable, send me your address to the private mail thingee. I'm out of town until Monday, but will try to get it out soon after I get home.
I'm posting from a hotel room, so just have a second - darvocet is one of the weaker opioids. It works best for less severe RLS. It also didn't work for me - it didn't hurt, and it releived the RLS some, just not all the way. For me, that meant I still didn't get sleep. Since yours doesn't keep you from sleeping, it might be great.
Again, this is not medical advice and is not recommended, but this is what I did when I was desperate. I had a one month script of it for a tiny amount. I wanted to see if an opioid would work instead of the Mirapex. So, I took doses I found on another Website (not sure where) for Darvocet and used my whole month's worth in a week (it really was for a tiny amount and I didn't take more than was a recommended dosage). I found out that it reduced my RLS tremendously, but wasn't the right opioid for me. That in itself was a relief.
When I got a doc to work with me, at least I knew opioids would work. We tried Ultram first - it also wasn't strong enough. Then based on Dr Buchfurer's advice and an email from him to take to me doctor, my doc prescribed the methadone. It is a great drug in the sense that there is no "high" and the abuse of it is almost nil. It also lasts up to 12 hours for most RLSers.
If you can get your local doc to listen to your far-away doc, I'd say go for it. FYI, I was thinking of emailing you some RLS literature I have. If you feel comfortable, send me your address to the private mail thingee. I'm out of town until Monday, but will try to get it out soon after I get home.
Like Ann, the darvocet, actually the dr prescribed darvon for my RLS, did not help reduce the RLS enough to allow me to sleep. He did not change the doseage on the darvon, but decided to go with the Ultram during the day and Hydrocodone (Lortab, vicodin) at night ...
Rowing madly trying to stir up some hope for you lil one! Hope it helps! Hazey
Rowing madly trying to stir up some hope for you lil one! Hope it helps! Hazey
Opinions presented by Discussion Board Moderators are personal in nature and do not, in any way, represent the opinion of the RLS Foundation.
Music can be made anywhere, is invisible and does not smell. --W H Auden
Music can be made anywhere, is invisible and does not smell. --W H Auden
I was taught in pharmacy school that propoxyphene (darvocet) was not recommended for pain (and maybe not a good option for RLS either??):
"As with codeine, propoxyphene has poor efficacy and significant side effects. A meta-analysis of 26 trials involving 2,231 patients compared the combination of acetaminophen and propoxyphene with acetaminophen alone or placebo. The narcotic combination offered little benefit over acetaminophen alone. Another systematic review found that the NNT for a single 65-mg dose of propoxyphene to achieve at least 50 percent pain relief was 7.7 (95 percent CI, 4.6 to 22) when compared with placebo. For the combination of propoxyphene and acetaminophen (650 mg), the NNT was 4.4 (95 percent CI, 3.5 to 5.6) when compared with placebo, similar to the NNT for acetaminophen alone. Adverse effects of propoxyphene were similar to those reported in trials of codeine. Thus, propoxyphene provides minimal if any additional analgesia to acetaminophen alone and is associated with significant adverse effects. It cannot be recommended for routine use."
"As with codeine, propoxyphene has poor efficacy and significant side effects. A meta-analysis of 26 trials involving 2,231 patients compared the combination of acetaminophen and propoxyphene with acetaminophen alone or placebo. The narcotic combination offered little benefit over acetaminophen alone. Another systematic review found that the NNT for a single 65-mg dose of propoxyphene to achieve at least 50 percent pain relief was 7.7 (95 percent CI, 4.6 to 22) when compared with placebo. For the combination of propoxyphene and acetaminophen (650 mg), the NNT was 4.4 (95 percent CI, 3.5 to 5.6) when compared with placebo, similar to the NNT for acetaminophen alone. Adverse effects of propoxyphene were similar to those reported in trials of codeine. Thus, propoxyphene provides minimal if any additional analgesia to acetaminophen alone and is associated with significant adverse effects. It cannot be recommended for routine use."
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Guest
Immediately. I am glad you got it, but I wish your neuro wasn't doing the same things mine did!!!! I thought she really "got" it, but ultimately I had to find someone else. I do think Darvon and Darvocet will work in milder cases. but as Fidget said, it doesn't have the best risk profile. Most doctors haven't read it, but in the Winter 05 Nightwalkers, there was reserach published that Methadone and one other (can't think of the name and I'm not at home), were the ONLY two opioids worth the risk - they offered the most benefit for the risk based on many studies he had reviewed.
Ann, who still can't sign in
Ann, who still can't sign in
Hi em,
It is used and I thought was considered a pain med. , think it is. So you should see some help within the time it takes to get into your system, like 45 minutes or so.
Remeber that since we are all slightly different it may work well for you.
Your doing great by my measure. Didn't you try the botox?
is that helping?
Hug and the moon
Lynne
It is used and I thought was considered a pain med. , think it is. So you should see some help within the time it takes to get into your system, like 45 minutes or so.
Remeber that since we are all slightly different it may work well for you.
Your doing great by my measure. Didn't you try the botox?
is that helping?
Hug and the moon
Lynne
Hi Miss Ann can't sign in..... 
That was my doc that did that study and he compare methadone to Percodan. The methadone being the better choice because the Perc seems to effects the ablity to breathe right, normally, or it slows resperations down....thats it. I believe the other med was an older form of methadone.
Em honey I'm sorry the darvocet is not working. According to what Dr. B said at the national meeting, it would have been a better choice to use darvon, without the tylenol. The cleanest form, of the lowest class of drug, and the lowest dose possible. That one stuck in my head for some good reason.
Em, I'd call the doc tomorrow and ask for something better or at least different. Don't give up hope yet Em, theres something out there that will help, just take a breath and have faith. Ann's right sometimes it's a matter of time or a matter of the doc.
Hang in there.
Ann safe travels my dear.
Lynne
That was my doc that did that study and he compare methadone to Percodan. The methadone being the better choice because the Perc seems to effects the ablity to breathe right, normally, or it slows resperations down....thats it. I believe the other med was an older form of methadone.
Em honey I'm sorry the darvocet is not working. According to what Dr. B said at the national meeting, it would have been a better choice to use darvon, without the tylenol. The cleanest form, of the lowest class of drug, and the lowest dose possible. That one stuck in my head for some good reason.
Em, I'd call the doc tomorrow and ask for something better or at least different. Don't give up hope yet Em, theres something out there that will help, just take a breath and have faith. Ann's right sometimes it's a matter of time or a matter of the doc.
Hang in there.
Ann safe travels my dear.
Lynne